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CatchMyPain Community and Pain Diary App to manage chronic illness

Leaving Catch My Pain

Apr 07, 2018 10:12 AM

I recently read an in depth description of the app. Weโ€™re not participants as we think. Our information is being sold to third parties. Just like facebook! They are using our emotional turmoil/Pain to profit off of. I can no longer participate in this forum. I enjoyed discussing with many of you your issues with chronic ongoing pain. I wish all of you my best. I no longer wish to be a guinea pig emptying my soul to others, only to having my information used to make a profit off of. ๐Ÿค— ๐ŸŒน

Apr 07, 2018 10:24 AM

I enjoyed talking to you. It pains me more to think of how in my most personal anguish (pain) I shared mydeepest concerns (thoughts) only to have that info used for others to make profit off of. I think the world of the users of this app because I can truly relate.๐ŸŒธ

Apr 07, 2018 1:24 PM

I think I need to read up on this also! Take care Hayley ๐ŸŒˆ

Apr 07, 2018 3:22 PM

I also would like to read this!

Apr 07, 2018 5:44 PM

I'd like to hear from the creators/owners of the app if possible.

Apr 08, 2018 4:21 PM

I think they are selling the information to scientist so that there is more information about chronic pain out there and maybe someone will be able to figure out causes and maybe even cures for some of the pain conditions we have. I could be wrong but that's what it says on the description in the App Store. If that's where all of the information we put on here goes I'm personally ok with it. Hopefully all of this will help us in the future... If not hopefully it can help someone else in the future

Apr 10, 2018 9:53 AM

What do they want to sell then?
You do not have your real personal information like on Facebook?
In any case, they can only sell my age and probably that I come from the Netherlands
All the notes that I make in my diary can not be used to advertise me
If they share the data with doctors, I think it's good, because phybromyalgia is a shitty disease and I'd like to see a cure
This is only possible with parts of data and experience and there is this forum

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