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Life passing you by?

Oct 07, 2015 2:07 PM

I just feel life is a blur, the days are passing by and blending into a sleeping and waking circle of pain. I can't work, van no longer drove sue to the fog and my world is becoming smaller. I used to work in a busy call centre with people around me all the time. I now feel fairly isolated. I am exhausted all the time. Even when I am meant 5o socialise I am too knackered or in too much pain to go. What happened to the happy go lucky person that I once was, always smiling and laughing. Now everything is an effort. Sorry for the moan

Oct 07, 2015 2:26 PM

Please don't be sorry, I Too used to work in customer service and loved my daily routine. My coworkers brightened my days. I've not worked since the end of 2007. I have no social life or friends now. I have my children which helps, but I'm exhausted always and in tremendous pain. Being sick or in pain really takes a toll on us. It can change our personalities. I'm sorry if you're feeling down or lonely. We're all here for each other. Have a good moan anytime you need. Hoping for better days for you! Blessings ✌️❤️

Oct 07, 2015 4:19 PM

I think I have hit a wall pain wise and emotionally. I have been putting on a brave face for so long. Wearing a mask because if I were to show how crappy I feel to the world, then no one would want to spend time with me. I guess we all need to mourn the life we once had at some point. X

Oct 07, 2015 4:27 PM

One of the sad things I find Gracegrower, most of the people I once considered my friends, dropped me like a hot potato once I was put on disability. I try not to complain about my pain to my family or anyone. Not that I never do, it's just that I feel most people who don't suffer, don't understand and some just don't want to hear about it. ✌️❤️

Oct 07, 2015 4:36 PM

Yep. I have had to learn to cope with a lot of life changes in the last few years. I can't drive anymore. Can't take care of my own lawn. If I go grocery shopping then I'm whipped for the rest of the day, so only something simple for dinner that night. Plan on tomorrow for the nice home cooked meal...
The pain, fatigue, and loneliness can easily lead to depression then it spirals from there.
I have found if I set daily goals for my self it helps.
Even little one can make all the difference in my day. And if it's a bad day and it don't get done I have learned not to beat my self up, theirs always tomorrow.
When it all gets to much I just look at my wife and sat the man's prayer. " I'm a man but I can change if I have to I guess." (Look up the Red Green Show if you don't understand ) and we both smile, maybe chuckle and I feel better about it all.

Oct 07, 2015 5:10 PM

Wow. I'm in the same boat. I was running a 133 person brokerage and making my place in the industry. Now I can't work can't teach my kids a cartwheel. This is not life it's surviving. And I don't know how much longer I can

Oct 07, 2015 9:36 PM

Wow! Everything I have read in this post has nailed it for me! With the exception of "I'm a man" part, lol. I thought I was the only one who felt this way. I am so glad to know it isn't just me.

Oct 07, 2015 9:46 PM

Don't worry, your a women, you can change too😊

Oct 08, 2015 2:43 AM

I think there are a lot of us who are all suffering in silence. Lbroomfield you are my kindred spirit. I have been thinking exactly that lately. It is survival big time. I have been in my current condition for 5 years and my son has never seen me well. I am not sure what sex you are ( not that it matters ) or what country you are in but if you ever need to talk I am happy to give you my email. We all need to take care of each other. Xxxx

Oct 08, 2015 2:46 AM

It's always good to know that you're not alone in this quagmire of pain and lost life. I have found that it's pointless to try to explain to others that I'm in pain 24/7 Let's be honest ifwe weren't LIVING this pain would we be able to understand what it's like? Good to read comments and how others cope. Most of us could be nominated for Oscars for our "acting normal" skills. Gentle hugs to all

Oct 08, 2015 2:50 AM

Oh I'm a woman in the USA :) which happens to be hell if you actually need pain meds. Druggies can get them hand over fist. I don't understand.

Oct 08, 2015 3:13 AM

Also female but i am from Australia. That is not something I have to worry about thank goodness. I have been and am on most pain meds. My doctor has to call for a permit to get them but I always do. If it weren't illegal i would send you some of mine.😉 I worry all the time about what these meds are doing to my body. I keep stressing that i will die young being on them for so long. 😢 . Lately my pain has been getting worse and I have to take more than i use too. Life really does suck when you survive with pain. Being stuck at home for so long i am now agoraphobic. So even if i wanted to leave my house i have panic attacks. American health system seems odd but at the same time you guys get things that we don't. Please take care and like I said you can have my email if you want. Xxxx

Oct 08, 2015 3:39 AM

No friends...check, no family(except my kids)...check, no working anymore...check, no life...double check. So on the bright side I don't have fake friends, family looking down on me and treating me like a faker, no working hard for the tax man or having a crummy boss and finally not having to do things I really don't want to because hey I can't even do the things I want to do. Hmmmm while there is a little bad it all the sudden it doesn't seem near as bad as I thought. ( ;

Oct 08, 2015 6:10 AM

Fibro sucks big time, sucks the life out of us at one point or another. I used to belong to a large on line fibro support group and they were constantly posting links to the samaritans. There is a high suicide rate for fibro sufferers, I guess it's down to the feeling of complete hopelessness. I have always been quite a positive thinker, and have been able to support other sufferers. But I have to hold my hands up these days and admit that whilst I am not totally beaten, I am exhausted from the constant pain and lack of interaction with other people. The distraction of having someone to laugh with really is a massive thing (even if I have to rest before a visit and it will wipe me out for a couple of days afterwards) I am generally a peraon with a sunny disposition but it's hard to be like that when there is no one to "bounce off" . Chatting on the phone is hard for me, I find concentrating on what the person is saying really difficult. I am much better in person. Without FB I would have little interaction with anyone for days (apart from hubby)

Oct 08, 2015 6:11 AM

Isnt it ironic how so many of us feel this way, yet we feel so alone. I think We live in a really screwed up world. Where it's fine to be fake. No one is encouraged to be real, share their feelings. In fact we are shamed into pretending everything is just fine. I also have gotten to the point that leaving the house is scary. Not that I have any choice at times but I avoid it or put it off until I can't any longer. I too am a female living in the U.S. Our system is screwed by the minority of drug abusers. We are paying the price for them. It is very hard to get what we need for pain. Doctors are seriously scared to write prescriptions for opiate based pain meds. They're being watched under a microscope. It makes me madder than a wet hen! We need serious reform in the US. Socialized medicine is not a dirty word. My sister lives in Germany and she has wonderful health care. Of course you only get opiate pain meds if you're dying there. They're big on naturopathic medicine and are terrified of anyone getting addicted to anything other than cigarettes and beer lol when my sisters husband was killed in a car accident, she was given Ativan for a couple of months then weaned off. She was given an opiate based pain medication with an antagonist for her injuries and poison ivy pills for muscle tension. So in that aspect I'm grateful that I live here in the US. ✌️❤️

Oct 08, 2015 6:17 AM

I saw a rheumatologist that has published papers on fibro, he told me that morphine doesn't touch our condition. I did try tamazapam for a while but that also did nothing. It's not easy when one med helps one person but not another. It's like we are being told to "suck it up" even Dr's with the best intentions honestly don't know what to do with us because of the way we all react differently to mess. Many fibro suffered are intolerant to some drugs or have increased likelihood of getting the side effects. Pants eh?

Oct 08, 2015 6:31 AM

This is why it's called "practicing" medicine. I was put on morphine, it helped my migraines as long as I had phenegran suppositories to stop the vomiting. Yet it caused such horrible muscle tension it made the rest of my issues worse. Same with oxycodone and OxyContin. I do not like those drugs. I was given Tramadol, it did nothing for my pain. They tell me not to take so much of the over the counter pain stuff like ibuprofen. There is no easy answer. We do all respond differently to meds. I now get 4 Norco per day. It seems to help the best without the nasty muscle tension worsening. I just have to take them at the right times, it takes 2 to touch my pain so I am careful. Just another day in the life eh? I'm not sure what tamazapam is, I will look it up. Are you in the UK?

Oct 08, 2015 6:34 AM

Okay it is a benzodiazepine. Yes, I used to take Xanax, then klonopin, now I take diazepam. It seems to help with my ptsd and my tension headaches.

Oct 08, 2015 8:18 AM

Sorry I meant tramadol ... brain fog duh??

Oct 08, 2015 8:19 AM

I am taking diazepam at the moment but more for panic attacks. Yes in UK

Oct 08, 2015 9:14 AM

Gracegrower, boy do I hear you loud and clear. Your post resonated very strongly with me. I could feel your words. I am so sorry that you suffer so. I have to say that since finding this wonderful, zany, loving group of people, I have felt better about things. I don't feel so alone. Even though I am not physically with everyone, we are still here all together. Never be sorry for moaning or venting. You have arrived in the no judgement zone!! We are all here to help you when you need us and try to help you have a better day. I hope that you stay with us and that by reading our posts and chatting with us that it brightens your days. Sending you gentle {{{{Hugs}}}} to get you through and know your in my prayers.🌻🙏🏻

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