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Lifetime of Pain

Oct 08, 2017 4:24 PM

I'm new here but, not new to pain. Oh it's growing pains. Oh it's from activity. Oh it's from working in a factory. Oh it's normal wear and tear. Oh it's in your head. Oh it's because you had a baby. Oh it's because you had a second baby.
Oh come on Doctors, listen to me. Every joint in my body hurts. Muscles bunch up into knots.
I'm waiting to get Medicaid then, this time, I'm going to find a new doctor and tell them that I'm not leaving until I'm listened to. Don't drug me up and send me on my way. Don't use Band-Aids and dental floss. Give me a value of life. Give me more days I can get up and do things with my kids. Give me more days where I can smile. Give me something I can be grateful for. I'm ready to fight to get diagnosed. I'm ready to survive!!!

Oct 08, 2017 5:11 PM

Everything you wrote is exactly what I've experienced. My advice is to keep seeing doctors until you get answers. Doctors never listened to me when I told them I was in pain for 7 years from age 12 to 19. I finally was referred to an adult rheumatologist a few months ago and he didn't know what was going on, but did acknowledge that my pain is medical. Through my own research I'm 99% sure I have Juvenile Enthetisis Related Arthritis, but can't get a diagnosis or treatment.

Oct 08, 2017 5:26 PM

I'll be 40 in December. I can't even take a ride in our truck for more than 15-20 minutes. I'm ready to live again. I think you all understand.

Oct 08, 2017 5:38 PM

Ive been in pain my whole life. I finally 2 months ago found a doctor to take me seriously. Im 21 and i danced until the pain got 2 bad at 16 to continue. The doctors mostly just said it was growing pains or because of dance, you are being a baby, you just want attention... etc, but i knew that wasnt it. I found a new doctor and said to him i dont want pain killers or muscle relaxers. They dont work and i want to know whats wrong. He says its fibromyalgia. Dont give up. If your knew doctor wont treat you, then find another doctor. Do not take no for an answer. Keeping a pain diary can help doctors diagnose you and what triggers your pain. So far non of the meds he has tried on me work, but at least he believes me and is trying.

Oct 08, 2017 8:20 PM

I am right there with you! I recently moved and I am not thrilled with my new rheumatologist. My pain doctor, however, does listen and is trying different treatments. My biggest frustration is that my doctors don't talk to each other! Despite my urging them to... I need one of them to step up and be the quarter back!!!.
Also, my neurologist told me not to say fibromyalgia, that it meant the Drs didn't know what as wrong/ causing the symptoms. So. After much testing, he determined my peripheral neuropathy was caused by a B6 toxicity. then they knew about treatment. And then iI was disguised 2 years later with RA on top of it.

Oct 08, 2017 8:46 PM

Yea. I dont like the fibromyalgia term either. It just means you have a lot of problems everywhere and we dont know why. At least im getting some help.

Oct 09, 2017 12:54 PM

Thank you all. I finally feel understood.

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