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Living with chronic pain

Feb 27, 2017 10:13 PM

I would like to know if anyone experience is like mine. I have done everything from needlepoint injections, lidocane ( works for 6 weeks max but does not take away completely), massage, physio, kinisiologist, all the while taking 900 mg of Gabapentin.
I dont think ive come to the realization that perhaps chronic pain is a permanent thing?
It sure messes with my mind...headaches, anger, sadness, insecure, incapable, introvert ( i was the life of the party) , cautious with conversations because i not only have the pain i have cognitive issues too. Im fearful i will say the wrong thing cause i have trouble finding words ( and im in healthcare ) where all that is important to have excellent communication skills.
Such a life altering experience.
Now im trying to learn how to deal with all this without being judged cause i apparently according to others , i look fine on the outside but fricking miserable and in pain both emotionally and physically.
I cant remember shit for the life of me ...grrrr.

Thanks for allowing me to rant. Ok i think im done my lil speech🙄

Feb 28, 2017 1:23 AM

We here to listen to you rant and offer you support when you need it.

Everyone here has been judged and will always be judged because we suffer from invisible illness/conditions and it is most annoying and such a let down. There's been times where I'm in soo much pain and I'm soo tired yet people have said how well I look and I'm like seriously you must be joking!!!
My anxiety is soo high that I can't go into a supermarket without having someone with me, which is normally my 10yr daughter, but people tell me to just push thro it and I'm being silly and the anxiety is just ridiculous.

I can't take any of the normal meds for my trigeminal neuralgia (they're the same as fibro meds) as they make me soooooo tired they counteract themselves and make me feel worse.

I use a lidocaine plaster which numbs the area for 12hrs so I can at least function a little bit on my bad days (which are more often than not nowadays!) but none of my meds takeaway the pain completely and that's true for most people here so you're not alone on that one xx

Feb 28, 2017 1:40 AM

Your experience sounds a lot like mine. I'm better than I was a year ago, but it's always a day at a time. The biggest difference for me has come from slowing down (I literally dropped everything nonessential and some things I thought were essential) and changing my eating habits. Nothing processed, fried, no sugar, no meat, no dairy. It sounds restrictive, but it's the best thing I've ever done for myself. There are a ton of great websites filled with tips and recipes. If you're interested, Forks Over Knives is a great place to start.

Feb 28, 2017 9:27 AM

Thank you for youre support, FatiguedFighter&Sezzy ❤
That means alot to me. It was nice reading youre messages forst thing in the morning😊
I will look up the website that you recommended. Any other ones i will welcome!

Feb 28, 2017 11:06 AM

I was on 900 mg of gabapentin & had to lower my dose & only take at night due to the dizziness & slowed cognitive function. I was always at a loss for words & would fall asleep if I was still for longer than a few minutes. You definitely can't drive on it either. My mom was just put on it for the shingles and she scared us to death by displaying signs of dementia. She couldn't stay on a topic and would randomly think she was in another decade. So my point is: your symptoms may be from taking that medicine. It takes a few days to get out of your system, so you won't notice a difference for a few days. Although it does help with nerve pain, you may not need as much. Discuss with your doctor.

Feb 28, 2017 11:17 AM

Good point. I will look at that as well.!

Feb 28, 2017 11:23 AM

I can totally sympathise with what your saying I don't think I've totally accepted I live with chronic pain.And while others say "Awww you poor thing" they don't have a bloody clue what your going through. The struggle just to get out of bed in the morning . Let alone make it through a day . Sending everyone big (gentle) hugs xx

Feb 28, 2017 11:52 AM

Hi Allie
Your description rang true for me too. You've done the first and maybe hardest part, you recognised the pain's role in a whole bunch of things. The most useful things I have found are , giving up meat and dairy, doing all the exercise I can, deepening my understanding of what pain is and mindfulness. I cannot overstate how effective I found mindful meditation. It changed my life from day one. It allows insight as well as calmness. A week long retreat really cements changes. Some days (weeks, months) are harder than others but I now know that while they are happening which makes them easier.
Vidyamala Burch and Jon Kabat-Zinn are the names to google.

Feb 28, 2017 1:25 PM

Oh wow, thank you so much. I appreciate feedback.❤

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