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Living with constant pain

Mar 06, 2016 2:12 PM

Assistance needed or advice as to how does everyone deal or live with pain?

Mar 06, 2016 2:19 PM

That's a tough one. Pain killers and no other choice really. I started a candle making business to help take my mind off the pain and not let it completely rob me of my life. I also have a supportive husband who helps me. I take time to rest every day. I exercise and stretch most days. Sorry you're in pain too. Do you have a diagnosis?

Mar 06, 2016 2:35 PM

One second at a time.
I try not to think about the future because that causes stress and stress makes everything worse.
I try to eat healthy and stay as active as possible. I find that staying active helps my mental heath more than my physical health.
I play games on my phone and tablet to distract myself (at work) and i have a lot of lego at home. I also have that little foam millennium falcon quad-copter that i havent figured out how to fly without smashing into a wall or a light fixture yet. And retro video games, the ones without save points so i can quit whenever. I have the sega one so i play a lot of sonic the hedgehog, my boyfriend likes golden axe 3 so we play that one together sometimes.
Rest is also important.
I think finding a balance helps, it doesn't take much to upset that balance.
And dont beat yourself up for not being able to do things (still working on the last few myself)

Mar 06, 2016 3:29 PM

Thank you for your post unfortunately I am diagnosised with CRPS/PTSD, I worked 25 years in the mental health and juvenile justice system. There in lays the problem I gave my entire being to my job, I loved the work, the field was fascinating. I did raise two very well rounded children because of the work I was involved in. I have a 27 year old and 22 year old, 1 in New Mexico (2 granddaughters), 1 at Portland State University. I was attacked at work by a client (gang member), which ended my career. I would not change a thing except the injury. But once you devote your life to your children and work, there was no time for friends or social activities. Thus my days roll into the next, the pain has increased, mobility has decreased, I never developed hobbies (children were my hobby), I rarely leave the house. As time passes the condition continues to spread, lost the battle with work comp, bills pile up so the the thought of living like this for the rest of my life is becoming difficult. Because of the PTSD Facebook triggered to much, crowds I stay away from my husband is a teacher and out of the house a lot or very tired when home. I do have three fur buddies but as my condition declines I read many of the post to find hope and advice. So I ask this community advice, suggestions as to what to add to your daily regime to bring back a purpose. Just looking for ideas other than going to gym, doctors or picking up prescriptions what have you found to help on bad days and good days.

Mar 06, 2016 3:55 PM

I deal choose to try and do as much as possible, I was born with severe spinal conditions which affected me from a young age, at 20 was when I noticed a big jump in pain, I was still working... As a Professional Chef and often worked through 18 hour days, propping myself up with a stool. Unfortunately I had a spinal cord injury when I was 32(I'm nearly 36) and everything changed, chronic pain is hard, and everyone copes differently, I suddenly was unable to do anything for myself (I'm quadriplegic) so I went through a time where I didn't cope, didn't want to try in rehab because I thought it was pointless, but then something in me switched, and, I met someone else with an SCI who inspired me. Yes I have days where I find it difficult to find things to do to occupy my mind, to try and take the pain away, but for me, I try and have an activity that I do each day that can help me focus off of the pain.... (Not always successful) I have pretty much 24 hour care do my PA's serve as a distraction too, but sometimes it's ok to just shut yourself away. 😊

Mar 06, 2016 4:04 PM

I too have ptsd. So sorry you were attacked. I've been in years of therapy. It taught how to be able to leave the house. I still battle constant triggers, but therapy has taught me to recognize them as such and how to deal with them better when happen. Have you considered therapy?

Mar 06, 2016 4:07 PM

It's never to late to pick up a hobby. Youtube is great for instructional videos. I encourage you to try a few things. Who knows, you might find something you like. Coloring is in right now

Mar 06, 2016 4:07 PM

I find taking even just 5 minutes and going somewhere quiet to be have some 'me' time. I usually use that time to just focus on my breathing and really centre myself around the intake and exhalation of my breathes, making sure to relax all muscles on each exhalation. I find that this not only helps keep pain in check but it keeps my emotions and mental state in check as well. I try to do this at least twice a day, more if I can. Hope this helps.

Mar 06, 2016 5:25 PM

Thank you for doing one of the toughest jobs I can imagine. I'm sorry for all you went through from the attack to now. I do t know how that feels. I have some idea what it's like to lose yourself somewhere along the way, however. Trying to figure out who I was again was a struggle, made worse by being in chronic pain. It took time, but I figured it out.

If I were to break it down, it isn't so much the hobbies or the new friends, as it is learning to take time for myself...not the time I need to deal with the pain, but real time that's mine. I've learned to be comfortable just doing nothing. I was so busy before that, at first, it made me so anxious!

What do I do in my time? Depends on what I can handle on the day. I listen to audio books, or read, binge watch TV series, knit, walk to the tea shop, stroll along the breakwater or if I need fewer people around the dog park down on the beach, cook ... I have limitations there so I use a food processor and a slow cooker, so, not real cooking, but hey ..., get a pedicure ... Now that my short term disability is done, I can't afford a lot of pedicures, but ... I used to do volunteer work, and hope to again at some point. I try to do things for myself that keep my mind busy, okay, to distract myself.

Mar 06, 2016 5:41 PM

Ptsd sucks. I did Cognitive Behavior Modification in a group of women veterans for years, and it is VERY helpful. There are apps to help as well.
For pain I take Tylenol 3, medical cannabis, and a TENS unit. The VA won't give me strong meds for my fibro or spinal ddd, but my Medicare doc does.
I spend my days watching YouTube videos and reading Harry Potter fanfics. They amuse me and pass the time. When I'm bedridden or need distraction, they help!

Mar 06, 2016 6:16 PM

I have a long list of pain and spine issues topped with ptsd, anxiety, anxiety induced ocd, depression and much more. I recently opted out of pain meds because it was taking what little of life I had left. I can't use heat or ice it irritates the issues. I have exercises from physical therapy, have rearranged things in the house so I don't bend or reach, learning my limitations, resting frequently, counselor and at time just having a good old cry. I wish I could say that all helps but sadly a lot is just learning to live with it. I am learning to be grateful for good days that are a 7 or 8.

Mar 07, 2016 8:02 PM

One activity, one hour, one day at a time. Praying attention to my body's signals so that I pace myself and don't overdo it, and rest when my body says I need to. I've lost the ability to do many hobbies I loved, like sewing, crosses stitching, canning & preserving, hiking. I can still do genealogy research which has been interesting to learn. I have my dog to spend time with and relax. I average anywhere from 8-16 appts ACH month, which is exhausting to say the least. It's taken me 4+ years to come to accept my new normal life. I enjoy what I can when I can and rest when I can't. Hugs & prayers you will find the best way to cope through your days! 🙂💕🙏🌼

Mar 09, 2016 6:28 PM

Flappy, I had a pain free/ low pain today. It was a good day. I do not get these days often. But now that I am hope I am having some discomfort in my chest. Legs and arms hurting just a enough to let me know...I am not cured. It's hard not to get excited and want to go go go... I know better. Like you I need to pace myself. I have stocked up on some of my hobbies... Got a new sewing machine but haven't taken it out the box yet.... beading, scrap booking, I have the stuff but have done little to none. I am fighting the "new normal" and haven't gotten on board with grieving. Days like these make me very hopeful... God has decide to heal me...I think and say in a quiet voice as not to want the wrong person to hear me. I have a little dog who is my company. As well as everyone who interacts with me in this community. I want to get well. I do not want to be sick. But I know who on here does? I will drop if I get up tomorrow and my pain comes through with a vengeance! I kind of chilled today....even though I felt good! I got a call from the Pain Management Clinic today scheduling an appointment... I thought about saying I do not need the appointment my pain has gone away. Of course I didn't. It was a thought though. Peace & Grace!

Mar 10, 2016 12:39 PM

Mysisterskeeper, I completely understand. No one in their right mind would want what any one of us has. Monday my hubby sent me a text saying, "I hurt all over real bad and I know why. It was running uphill with the kids in the pasture with the grandchild. Ugh!". I sent him a message that I was sorry he hurt, and completely understood because my pain was 24-7-365. He responded, " I'm sorry. " Gold days tend to make us forget what's around the corner.

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