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Living with Fibro / Lupus / RA

Sep 25, 2014 1:16 PM

I've had Lupus / Fibro / RA / Sjorgens since 2010 and I've been trying to cope with the effects. It seems that rest is the most important thing that makes me feel better. However, I don't just want to stay in bed all day. It seems that my full-time job is going to doctors appointments, physical therapy, tests, etc. The closest friends I have are my mother, my husband, and the people who work in these offices. I am in pain of some sort all of my waking days. Household chores are falling behind; it's hard to cook, clean, or do other things people just expect me to be able to do. I am disappointed in myself. How do the rest of you cope with you illness on a daily basis?

Sep 25, 2014 2:00 PM

Hi...just downloaded this app, didn't realise you could chat to like wise people. sorry to hear your also a sufferer....I'm also the same. life is not my own no more!

Sep 25, 2014 4:32 PM

Hu all new to this app. But it's been a life saver. Never realised it had its own community

Sep 29, 2014 1:01 AM

Hi , lbravo, I try to make it a goal each day to find something to be thankful for, one thing to get done, and I spend a lot of time thinking of what to make my life simple. Less is definitely more when we have limited ability to do things each day.

Sep 29, 2014 6:42 AM

peoples expectations are for fully healthy people, I tell everyone that thinks it's their right to verbally judge me, I have enough stress in my life dealing with pain levels they can't even comprehend, that housework is the last thing I would stress about. ( my mother did not appreciate this piece of wisdom but that's her problem.)

Oct 19, 2014 12:04 PM

it helps to educate your family and communication is key. I have RA and movin helps but it hurts to move. I rest often, do what you can, forgive what you can't. go easy on yourself, you've got enough to battle.

Oct 20, 2014 6:34 AM

I have fibro and RA. I totally agree with you.

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