I've had Lupus / Fibro / RA / Sjorgens since 2010 and I've been trying to cope with the effects. It seems that rest is the most important thing that makes me feel better. However, I don't just want to stay in bed all day. It seems that my full-time job is going to doctors appointments, physical therapy, tests, etc. The closest friends I have are my mother, my husband, and the people who work in these offices. I am in pain of some sort all of my waking days. Household chores are falling behind; it's hard to cook, clean, or do other things people just expect me to be able to do. I am disappointed in myself. How do the rest of you cope with you illness on a daily basis?
Hi , lbravo, I try to make it a goal each day to find something to be thankful for, one thing to get done, and I spend a lot of time thinking of what to make my life simple. Less is definitely more when we have limited ability to do things each day.
peoples expectations are for fully healthy people, I tell everyone that thinks it's their right to verbally judge me, I have enough stress in my life dealing with pain levels they can't even comprehend, that housework is the last thing I would stress about. ( my mother did not appreciate this piece of wisdom but that's her problem.)
it helps to educate your family and communication is key. I have RA and movin helps but it hurts to move. I rest often, do what you can, forgive what you can't. go easy on yourself, you've got enough to battle.