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Living with fibromyalgia

Mar 02, 2018 3:02 PM

Alright so I’m trying to finally get ahold of everything with my fibromyalgia and acceptance of this new thing in my life. So I need yalls help, how do I turn all my complaints and moaning and groaning into positivity and like nice things haha. I just know since I’ve been dealing with this it’s like my pain runs my life and I’m tired of it!

Mar 02, 2018 3:11 PM

Im the same but im having a hard time excepting the fact i went to the doctor hoping my pain was something i could fix instead i end up getting a life sentence and i cant stop it so im no where near accepting this atm because i have lost the ability to do tge things i love the most playing with my kids comes with a cost now and i cant deal with that i really hope you find some balance whith your pain hun stay strong its a long road ❤❤❤

Mar 02, 2018 3:49 PM

Don’t worry I say that I’ve come to except it but don’t think I really comprehend it I just really hope something happens and it all clicks

Mar 02, 2018 5:14 PM

Its a lot to take in i find the one thing i have the hardest time trying to deal with is that there is no cure and ill be in pain for the rest of my life i never thought id wake up one day sick and never get better and the frustration that nothing takes all the pain away it only dulls the pain im sure one say ill get there where im close to excepting it but that day is a long way away yet you will get there to its going to take a while though ❤

Mar 02, 2018 5:31 PM

thanks just glad to know I’m not alone

Mar 02, 2018 6:10 PM

Definitely not alone sweets 💪😆

Mar 05, 2018 2:17 PM

I’ve recently been diagnosed and I’m struggling. I’m a 19 year old student and I feel like I can’t keep up with everyone else my age. Nobody really understands the pain and fatigue. Advice?❤️

Mar 05, 2018 7:40 PM

I totally understand redstringsss! I’m lucky enough that I’m already married and was diagnosed after so he’s stuck now haha. he struggles with it just like anyone would but luckily he’s supportive but I know it’s not easy. I’ve quite college but me and my husband also own our own business but I honestly still probably need to go back but anyway... I could feel symptoms in my mid teens I could sleep forever because I was always soooo fatigued but keep your head up there will be better day and enjoy those! Because we all know there are bad ones to come my best advice is find that support it can help more then anything when nothing else will honestly this support and knowing someone else out there feels the same and goes through what I am too

Mar 09, 2018 9:13 PM

I wish I could give some kind of positive feedback about fibro and chronic pain, but the last 6 years of my life have just gone from bad to worse. The last 6 months I’ve been nearly home bound other than church when I can, and the doctors appointments. I’m 42 yrs. old and I feel horrible all the time. My 88 yr old grandma gets around better than I do. It’s horrible...I have to call on my parents who are in their late 60’s to come and help me do basic housework or grocery shopping...I wish I knew of a way to cope or a support group or something that would help me look on the bright side more often. Don’t get me wrong, I do have a good day (7 instead of 9 or 10) once in a while but they are few and far between.

Mar 10, 2018 9:25 AM

I understand I’m still just trying to figure it all out but looks like we’re all figuring it out together

Jul 11, 2018 9:20 AM

I have fibromyalgia and was diagnosed 10 yrs ago but dealing with it for much longer, but when I was a kid doctors didn’t know or never mentioned fibromyalgia. I want to doctors and parents thought I was wanting attention I was always spraining ankles or wrists or my back hurt all the time, then migraine headaches since I was 7 doctors even suggested ADD meds made me sick so I stopped those I was relieved to know I wasn’t crazy since I was a kid, but sad cuz there’s no end in sight for us with it, never alone I’m glad I personally found this app cuz I had no one to talk too about this so I was going into my depressed wanting to cry all the time. I have nothing positive just your never alone and someone on here is alway ready to chat and give something to help in ways. I’m here for you and all the rest! Have a beautiful day 😊

Jul 26, 2018 8:44 PM

I was diagnosed over 25 years ago, I am sure that I had it long before that! All I can recommend is to take it one moment at a time! Do not overdue would be one of the key things! Just know that I am available to you if you need advice! Take care one and all! God Bless!

Jul 27, 2018 6:07 AM

I have been diagnosed with chronic pain which I have struggled with since a workplace injury 2 years ago which no one could really diagnose. Hand went numb one day during work (workload was overwhelming as s phlebotomist) and seven days later could not move my neck. Had Physio for last 2yesrs and exercise Physio. At first was thought to be a brachial plexus strain but after being reviewed by private workplace insurance Ortho apparently nothing other than symptomology was present. Things got worse over the last two years with constant trapezius muscle spasm and tightness, neck joints inflamed and stabbing neck pain. Have worked through it all apart from a few days off here and there due to migraines and extreme pain and depression. Send neurologists, vascular surgeons had numerous MRIs and CTs and ultrasounds all showing certain issues but reported as "insignificant". Nothing makes sense. Now GP thinks it's CRPS (Chronic Regional Pain Syndrome) and from all my reading and self education there is not a lot that will help me. Been referred to a pain management program which is anti medication. I practice mindfulness and meditation like body scanning every day to relax my body mind and soul but it does no good long term. I'm struggling with accepting that I'm going to have to deal with this forever and I don't know how, especially if I'm taken off basic meds which I only take at night to get some minimal sleep to function at work. I'm 39 and always been healthy and strong. I have no partner nor kids and my career which everyone thinks I should give away is my only sense of identity. So many complex issues to comprehend and deal with it seems I'm never going to be the same again and it scares me. I feel everyone's angst in this forum and wish I had answers for you all and myself. It's somewhat heartwarming to know I'm not alone in this struggle. I wish everyone the best of luck and hope to continue following all your comments and progress. I pray for you all and myself that we can find peace with this awful chronic pain. 😢❤️

Jul 30, 2018 5:18 AM

I also live with this pain

Jul 31, 2018 12:16 AM

I need help. My dr has given me meds for depression but it doesnt work. I need something that works. Any recommendations on what i should talk to him about trying? Fibromyalgia is more than just depression and im so ready to be done with taking pain pills that dont work! Help

Aug 08, 2018 10:14 PM

This year I just got diagnosed with fibro, when shortly before that I had just gotten diagnosed with GAD,and depression. Well when I got diagnosed, that same day was when that I have been in pain all my life since I was 2yrs old and I had gotten a high fever which effected my joints and never out grew.

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