I've had it ,so down ! I'am 46 years old with Jhm ,eds v11c and osteoporosis ,married with five kids ,All but one lives at home ,my husband work ,some days from home some days he has to go out ,so I'am alone most days ,and when he home is up in his office ,so most time I'am alone , Fed up and pissed off with keep asking and tell him how much I hate it , but it go's in one ear and out the other side !lost most of my friends when I became disabled ! ,so don't get visitors ,and it's hard for me to go out , sorry for the moan but fed up !
I have mrsa and have had two surgeries in two year and can no longer do job I did for twenty years after second surfery calls stopped from fellow workers friends recentl contact with best friend is less and less i understand loneliness hang in u will find support
I'm happy to provide support as well! It's so important to have people to talk who understand. I'm clearly better off than many of you as I can still do my job with minimal disruption. Yet, the blues hit me hard yesterday when I was turned down for a job I applied for. I'm realizing my upward and lateral professional mobility has become restricted, ergo I'll be likely stuck in my current job until I can no longer work. I love what I do, don't get me wrong, it was the feeling of being "trapped" that got me down. Today, I'm taking a day off, relaxing with my hubby and pups, enjoying a beautiful, ice cold Northwest Florida morning (35 degrees). Back's hurting and right side of face goes numb off and on, but oh well, I don't have to smile and pretend I'm feeling well, so that makes it a great day. 😃😃😃
I know exactly how you feel. I'm 47, disabled, sero negative RA, degenerative disc ds, osteo, etc. I was an RN. I got sick almost 10 years ago. I used to be a very social person, lots of friends. Since I got sick, my "friends" have dropped off one by one till I don't have a single person to talk to. My son just came home from the military and is living here until school starts. It is so wonderful to have him to talk to. My husband is an alcoholic and most conversations are difficult to say the least. I'm alone so much, I've actually lost social skills. When I do see a "friend" I have a hard time carrying on a conversation. I don't go anywhere but the store and my mother's (that's a whole other conversation) the only people I have to talk to are anonymous folks online. I don't know why my friends don't talk to me. I don't whine, or complain, or talk about my illness. I am able to get out and about, but where would I go? Never saw my life like this when I pictured my future. I don't know the answer, but I would be more than happy to talk to you, might be good for both of us. :) my email is firstname.lastname@example.org. contact me if you'd like, I've got lots of time on my hands lol.