I just started using this app about 20 minutes ago.
I started reading through the forums and I noticed some topics I may be able to help with, mainly fibro "all over my muscles ache like I have the flu", chronic lower back pain, nerve damage and inflammation, the last of which is the key to everything, I've found.
I was diagnosed with fibro in August 2012. My main symptoms are the achy muscles I mentioned above, fatigue with the inability to stay asleep, troubles concentrating, memory problems, increased sensitivity to pain & thus injuries hurt much more than I expect, ibs, depression & anxiety and maybe others that I can't think of right now.
In January of 2013 my lower back began to hurt. It was minor pain at first. Within a few months it went from a constant 3-4 on the pain scale to a constant 6. I've had so many diagnostic tests done to determine the cause of my lower back pain that I cannot remember how many there has been. Three years later and still no true reason. I have slight arthritis and a mild bulging of the L4-L5 disc. That's it. Last August I had a nerve ablation (burning of the pain receptors) in my L3 to L5 area to try and relieve some pain. The process took a total of 6 weeks and did not work at all. During one of the 4 procedures for the ablation the doctor hit my sciatic nerve and it is now damaged and causes me so much pain that I can hardly move around 45-50% of the time. I am getting more testing done soon to continue my seemingly endless quest to figure out why the heck my back hurts. I also have muscle spasms in my lower back that increased tenfold with the damaged sciatic nerve.
So that is what I have. This is what I do to help the pain and concentration issues.
For the pain I have been taking ibuprofen 800mg 3x daily, MS Contin (extended release morphine) 3x daily(most people it lasts 12 hrs but with me only 7-8 hours), Percocet, 4-5x daily depending on how bad the pain is. Mexelitine (a heart arithmetic medication that somehow also works the same as a lidocaine infusion) 3x daily. I have been taking the first three since my pain began with a foot surgery gone awry in October 2011 (the foot is the least of my problems now). MS Contin is for long term pain control & Percocet is for "breakthrough" pain control. The reason I take both is because by always taking action to keep pain from getting out of control is the best way to manage chronic pain. This means that you should never wait until you can't stand the pain and then take a pain medication. When you do that you will need a lot more of whatever you use for pain control to get the flare up, out of control pain under control and tolerable. Unfortunately, I can't really do that anymore since even at extremely high doses of MS Contin, it hardly helps anymore due to increased tolerance. (I'm trying to get into a new pain clinic to have it switched to something else) I also take some vitamins and supplements which I will get to soon.
In January & February, my nerve pain was never truly under control. I couldn't figure out why. There was also several hard knotted muscles in the area that hurt worse. So now the vitamin and supplements part. I have been taking ginger root & bromelain (an enzyme found in the center of pineapples) every night for the past 2-3 years. Both are natural anti inflammatories with no side effects. When the nerve pain wouldn't get better for so long I did some minor research on nerve pain and natural remedies. Inflammation is the main reason nerve pain hurts so much. Therefore I increased my ginger and bromelain. I went from 1 of each at night to 2-3 twice a day. I also added turmeric pills, another natural anti inflammatory, vitamin D3 and a vitamin B complex (sublingual, a liquid put under your tongue). Then, since my insurance doesn't cover them, I used a lidocaine ointment & gauze & made a "patch" and put it on the worst spot. Within 2 days the nerve pain was completely under control and even felt better than it had since it happened.
During my research I also found several reputable sources about studies stating that the amino acid, L-Carnitine along with alpha lipoic acid actually regenerates damaged nerves. It takes a while to notice a real difference, I believe it said 6+ months. I ordered some and am on week 3 of that.
I also take cheated magnesium supplements which help with that all over muscle pain. And a muscle relaxer that doesn't work very well, in my opinion. But the other 2 I tried either make me super sleepy or I'm allergic. I also take cymbalta, which is helping with the nerve pain and the all over pain. 60mg daily is the optimal dose for that. Studies show that any more just doesn't make much of a difference.
I think that is everything for the pain part. For concentration I take adderal. It works well for me. There are several other ADD medications that may work if adderal doesn't. These medications are kind of like anti depressants in the way that some work for some people and not for others and you may have to try a couple before you find what works.
If anyone took the time to read my novella and has any questions, don't hesitate. Also, I can give whomever my email address as well if you'd like any more info or links.