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Long car rides with fibromyalgia and pain

Jul 30, 2016 2:43 AM

How do you get relief when you are on a cross county drive.

Jul 30, 2016 8:46 AM

Hi Teepainter,

I am glad I am not the only who has a hard time with long car rides. I feel like after long car rides I pay a huge price for many days/weeks later. I would also love to hear what other people have to say/ if they have any suggestions.

Jul 30, 2016 8:51 AM

Not sure if this is helpful, I deal with some other dx too so some things may not apply. Just think about your Rogers and coping, and try to build on them. Here's what has helped me...
I've had to learn to break our long trips up into 3-4 hour segments, with long breaks before next drive time. Breaks are like 1-2 hours, a meal with a walk around a shopping area, or some type of activity included with rest time too. Also, if I'm driving I keep regular sleep patterns, (meaning we stop and get a hotel, no marathon driving) if possible, even more time to rest than normal.
This has made us find new things to do on our trips, and honestly we now enjoy things more. We "stop & smell the roses" you could say.
If I'm on someone else's schedule, I do my best to stay hydrated, eat healthily, walk often and bring lots of medicine! I'll plan on at least one "recovery" day before any activity also.
If I'm having a flare up, I remember that most people don't get it & give myself lots of grace & just stay in bed if I need to. I focus on the fact that I can do some of the things and that I actually made the trip, which is an answer to prayer in the first place!
Hope this helps in some way.

Jul 30, 2016 8:54 AM

Sorry, I meant pain "triggers" not Rogers.

Jul 30, 2016 9:03 AM

What bobblehead said, except I'm lucky to make 2 or 3 hours before being out of the car. I get motion sick too.
Lots of stretching and walking. Muscle relaxants and my favorite music
My max in a vehicle seems to be around 6 hours in a day. I have done 10 but that almost killed me. Never again. I'd rather pay for a night somewhere and take longer to get there than to do that to myself again.

Jul 30, 2016 11:30 AM

When i came to florida in june my daughter did 5 of the 7 hr drive. I found its difficult to drive more than a few miles. She was exhausted. From doing a round trip to pick me up. I was in very serious pain but i had to let her sleep

Jul 30, 2016 11:32 AM

Tomorrow my mom and I are leaving to go back. With our combined issues and her dogs it will take twice as long

Jul 30, 2016 11:51 AM

If i drive it's max 2 hours before stopping.
Take it slow and do lots of breaks and walks with the dogs. Can you break the trip up over 2 or 3 days?

Jul 31, 2016 1:05 PM

The longest I can drive is normally not over 4 hours. I went to look at horses with a friend of mine and I drove both ways and it was a 12 hour day, most of it in the car!! It took me out for weeks. But, if I go visit my BFF it takes about 3-1/4 hours without traffic. I don't stop because then I'll lose my momentum and not be able to continue so I drive straight through no matter what. Usually she stays on the phone with me and we chat while I drive up. Wish there was more advise I could give but everyone has to figure out what works best for them. 💕🙏🏻🌻😊

Aug 02, 2016 3:02 PM

As a driver, there's not much that I've found that helps. As a passenger, I bring a couple of pillows and my electric throw blanket. My face has to be cold or I get very motion sick, but my legs need to be warm or they cramp. I use the pillows to shift my weight so I don't have the same pressure points for the entire trip. I usually use a bag to put my feet on for part of the time. Even so, I take preventative pain meds and stay on a regular med schedule because I tend to wait too long before controlling my travel pain.

Aug 02, 2016 8:04 PM

For me anything more than 2 hours is extremely painful. I need to be the passenger not the driver and have room to stretch, reposition often and get out and walk. I usually take a muscle relaxer at the 2 hour mark when we stop to walk around. The longest I will go in a car us 5 to 6 hours that is my absolute max. Stay very hydrated! Bonus I'd you drink tons if water you will need to stop more often to pee I say bonus it used to make me crazy to have to stop for someone to pee every hour or so. Funny how it all worked out now, maybe a bit of Karma for my previous behavior.

Aug 02, 2016 8:15 PM

Im new to the fibro community but its very interesting to read of others with the exact same problems as me. We took an 9 hour trip prior to me know i had FM. It was so painful and so exhausting. My family didnt understand. My friend actuallt laughed when I told her I felt like I had a clot in my leg. My husband rolled his eyes. At this point i had been getting used to being branded as a hypochondriac...but i guess lack of family support is another forum! Long story short, thanks to all for your tips! No more 9 hour car rides without breaks for me!!

Aug 02, 2016 8:20 PM

Question... Ive also devoloped car sickness withib thr past few years. This was NEVER a problem for me. I used to relish the fact that I could read a whole novel without an ounce of nausea. Could this new devolpment of motion sickness be related to my FM?

Aug 04, 2016 8:23 PM

I'm much like bobblehead, except 2 hours is my max time. I have to take breaks often and walk to stretch my legs, out get somewhere I can get my feet higher than my hips. I bought one of those U-shaped travel neck pillows too, mostly because our headrests sit at the wrong height for me and it causes an awkward angle which causes pain. Once my trip is over I need hours to days to recover.

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