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Looking for Mr jj

Mar 01, 2016 11:26 PM

I can't receive your message, please try again

Mar 03, 2016 5:33 AM

They have been messaging me, but haven't been posting on the forum. If you have the catch my pain app you can't reply back you have to have the paimn companion app.

Mar 03, 2016 6:04 AM

Thank you Jenna, I did figure that out and I did find that apparently they just want to chat which is okay but I really am interested in the forum and what we can learn from each other. I appreciate you taking the time to let me know. Looks like you've been in some serious pain , how are you doing?

Mar 03, 2016 6:10 AM

This forum is an amazing place. And cam I say I love your username lol.
I've been doing okay. Touching it out I guess lol. It had a decent night last night so I'm happy about that. How have you been doing though?

Mar 03, 2016 6:28 AM

I had a really really bad weekend because I have a new doctor who thinks he needs to change things that were broken so you mess with my medications and it really made me sick and that just made me have seriously increased pain. Yesterday I finally started feeling like myself again but I also decreased one of the medications that he had changed I went back to what I was taking before. And I found a new doctor I hope this one listens to her patients because he did not listen at all. So the night before I had a really good night woke up with some serious pain running down my legs and my arms but it it got better through the day. I slept well last night but now I have woken up with a headache again. I'm kind of in a spot right now because I need new lead wires for my TENS unit and I need new peppermint for my headaches and I'm waiting for a financial disbursement so I can purchase the things I need. But I am very glad to say that I am managing enough to function and go to college right now which is a task as an older students especially with pain issues. But it's important to keep functioning, I forget who said it," a body in motion stays in motion" I have learned first hand that this is very true.

Mar 03, 2016 6:30 AM

I meant things that were not broken. I had great doctors in Maryland but I always heard people talk about getting a new doctor and right away they want to change your medications as if they have the miracle combinations. If they could just remember " if it's not broke don't fix it" or change one little thing at a time and give a body some time to adjust to it especially with chronic pain. I have learned that upsetting the apple cart for a chronic pain person is just cruel and unusual punishment lol

Mar 03, 2016 6:34 AM

What do you do for your leg pain? I have had a lot of leg pain lately more than I used to especially my left leg. And while it was very annoying and miserable it wasn't intolerable like yours has been from the knees down. What do you do to make it tolerable? Because that must be really awful!

Mar 03, 2016 6:58 AM

Well what are you diagnosed with? I have crps. And well..nothing is really helping at the moment my crps is just spreading. I don't have an actually "tolerable" pain. Because my pain in my legs is a constant 10 and my sto!Mach fluctuates from 7-10. I guess the only thing that I do is use marijuana but that's just what I do. It hasn't helped my pain as much as it has like I'm the past. But it still helps me sleep and relax. Especially mentally. I akwyas have so much running true my mind all the time and it really helps. Crps is a strmagr illness that doesn't have a lot of research going into it. So after so many years of taking tons of pain killers and then as of recently being on fentanyl, morphine, and just a bunch of other meds for a few months and them just completely. Stopped working. Like I didn't even get loopy from them Anymore. So I asked to be taken off them completely.

Mar 03, 2016 6:59 AM

Sorry I just went off into a tangent right there lol. Sorry if I didn't make sense

Mar 03, 2016 7:00 AM

What is CRPS stand for. Chronic... Pain syndrome?

Mar 03, 2016 7:01 AM

I understood it , no problem. :)

Mar 03, 2016 7:06 AM

Complex regional pain syndrome it also is called rsd which stands for reflex sympathetic dystrophy.
If you look up McGill pain scale or
Feel this pain: crps those both give a good explanation of what it is.

Mar 03, 2016 7:43 AM

Oh yeah I know young lady that had RSD in her left arm hand and poor thing it was terrible I sympathize with you Jenna. A lot of mine comes from my low back and my sacroiliac joint in my hip bones it radiates down my legs known as lumbar radiculopathy. But the kind of pain syndromes I've been having lately are either a reaction to neurontin or I'm wondering if I have fibromyalgia on top of everything else.

Mar 03, 2016 7:44 AM

I know I did a lot of massage and electric stim or tens for that young lady and it helped but she had to have it all the time regularly.

Mar 03, 2016 12:54 PM

I hated neurontin. It made me feel so strange and didn't help my pain so I was just like nope! Lol. What are you diagnosed with? The last time I had a massage they started on my back and it was wonderful and then they got to my thigh and I nearly punched the lady. I didn't mean to it was just a reaction lol.

Mar 03, 2016 8:49 PM

He's private msg me several times tonight. I suggested he post publicly to let everyone to get to know him and provide a wider support group. I'm thinking he's shy.

Mar 03, 2016 9:29 PM

He and I chatted earlier. He has fibro too. Nice guy.

Mar 03, 2016 9:29 PM

I told him the same thing. But he jsit hasn't posted.

Mar 03, 2016 9:31 PM

I wasn't sure where he came from...we chatted for about 30 min.

Mar 03, 2016 9:35 PM

I told him my back was worse than my fibro, most of the time. He suggested a back brace... what a good idea, I had not thought about that.

Mar 04, 2016 6:54 AM

He's from Sweden. I wish I could visit all the places everyone is from overseas. That use to be one of my dreams, before I got so sick. Oh well, at least the internet provides virtual trips! Lol

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