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Looking normal

Dec 09, 2017 5:14 AM

One thing I find is that people tend to think my pain isn't real because I don't wear it on my face. I used to, sometimes is be screaming in agony. After 14 years I've learned to hide it. N because I don't want sympathy and because I try to stay positive. Anyone else do this? Almost like you're numb or frozen and just suck it up?

Dec 09, 2017 6:33 AM

I don't wear it on my sleeve. It depends on who it is if I tell them the truth.

Dec 09, 2017 12:31 PM

Yes. I've hid it for years. I feel a lot of shape. I am trying to talk about it more without shocking people.
I just started seeing a Dr after 20 years. I felt to ashamed and embarrassed of my pain to follow up.

Dec 09, 2017 8:18 PM

Yes only my immediate family and close friends really know how bad it really is, and I actually just recently started sharing it with them. I’ve always been a strong self reliant person so it was really hard to admit that I’m not able to do hardly anything anymore.

Dec 09, 2017 9:22 PM

I think we are all very good at hidding pain. I for one hardly realize how much pain I am in sometimes. The last time I went to my pulse and blood persure were so elevated the nurse checked it three times.

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