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Losing faith in human empathy

Jan 09, 2015 2:23 AM

I am in constant pain and just want to be done. Chronic pain since childhood, pcos, bladder ulcers, now diagnosed with Fibro. The doctors have no idea what to do with me. I feel like everyone is giving up trying to understand, so why bother trying to fight through each day. I've tried to use my pain to make a difference somehow, but it all falls upon deaf ears. I don't want to live on this planet anymore.

Jan 09, 2015 5:21 AM

You need to stay positive. Do what ever you can to get the help you need. Don't let the drs tell you they can't help you. Demand more tests, demand different drs.

You need to know you are not alone in this

Jan 09, 2015 5:40 AM

@GypsyNomad

What I hate the most is coworkers and family giving me a hard time about it. I am often described as anitsocial/recluse by coworkers because I am simply too sore and exhausted to go out after work. Family gets annoyed with me because I don't visit enough (yet they don't come visit me) they take it personally and when I try to explain the pain I am feeling I get told start jogging, become vegan, or simply I must just be seeking attention. Even my spouse implies that I must be exaggerating. I understand your frustration and perhaps feelings of despair. On top of all my pain I have lived with chronic depression ALL my life. The best ADVICE I can suggest is become your own best friend and when it feels like its all too much go to SLEEP. That really helps me shut off the destructive negative thinking and most of the time I wake up in a much better frame of mind. I sincerely empathize with your plight and truly wish you all the best.

Jan 09, 2015 6:01 AM

I feel the same way and have lived with anxiety disorders, panic disorder (panic attack disorder), Clinical Depression, Autism and more all of my life. I'm an Ex Self-Harmer who had unfortunately restarted 2 weeks ago. It's difficult but you'll pull through, there are people out there who care for you and people right here in this community. Everyone, every single person in the community cares for you

Jan 09, 2015 8:15 AM

Gypsynomad, You're not in this alone. I've had various health issues since the mid 90's, but everything snowballed in 2010. I've fought hard to get doctors to listen, and its taken me 4 years to get most of my diagnoses recognized & treated. I have fibromyalgia as a result of major surgery (5 in 1) in 2010. If you read others posts you'll see all of them, unless I've forgotten something... You know, the fibro fog issue. I felt totally alone, being doubted even by my husband. Until I asked him to attend several appointments with me. He is now my biggest advocate, making sure not even the doctors say, "its in your head.". He witnesses everything I struggle with. But during this time, while my belief in human compassion was depleting, my faith in God, to help me get through it has grown. I have seen 2 & 3 doctors for opinions, because iny heart & soul I knew I needed to.

Whatever you do, do NOT give up. YOU are your best advocate because you know your body best. If you can find one person, family or friend, to be your supporter/advocate that helps as well. I have a neurologist, orthopedist, rheumatologist, GYN-surgery specialist, colo-rectal surgeon, gastrologist, primary care doc, oral surgeon, urology-surgeon specialist, ENT, pulmonologist, cardiologist and psychologist/psychiatrist working together & with me. I'm to see a neuropsychologist this month, due to recently diagnosed dementia & motor skill deficits. I wish you the best finding the help you need. I will pray for you. God bless you!

Jan 09, 2015 3:12 PM

I know what you mean luckily I've had a good family and my mom was a nurse so she knew what to do she wouldn't let the doctors give up she's gone now but she left a piece of herself with me and my sister I isolate myself a lot especially on the bad days this March will also be 21 years with my illness what I'm saying is I've been to hell and back and if loser like me can go over 2 decades in pain then I know everyone on here can do it here's something my therapist told me to do write a pain biography its cathartic to write about bad experiences so you may try that

Jan 09, 2015 4:00 PM

Tardiss2238, In my book only quitters are losers. You apparently are not a quitter, so stop calling yourself a loser. The fact you have the determination and strength to "go through hell & back" says a lot. You are a winner because you keep trying, and therefore an inspiration to others. 🙌

Jan 09, 2015 8:32 PM

Keep your chin up. Sorry I can't add more right now other than I def feel you.

Jan 10, 2015 12:20 AM

Gypsynomad, along with the above good advice, get yourself a good pain specialists. I resisted taking pain meds for a few years and instead had 10 or so epidurals, surgeries etc... I finally relented in 2013 and slowly with some trial and error I have been able to improve my quality of life significantly and I would have to say that it is mainly due to my pain specialist.

Jan 10, 2015 12:22 AM

And use this 'community' to get your feelings out. I've recently just started and it really feels great.

Jan 10, 2015 3:50 AM

Stay strong we all are here for you with good ears we've all had thouse bad times

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