Nick Cannon also has it. At one point he went into kidney failure and had blood clots in his lungs. He has lupus nephritis. His doctors have told him to slow down and get more rest. I'm not sure he has.
Okay, because I have both and my sister said that the reason I had both is because Sjogrens syndrome is a form of Lupus and I don't believe everything she say's I do research stuff but haven't had much time lately, being a bad girl lol.
Me too. We almost have too since docs seem to tell us very little. My doc's have diagnosed me but told me absolutely nothing at all. I'm so glad I researched before my diagnosis. Sorry by the way that you have lupus and sjogrens too.😥
It's okay I just live every day and every moment with my kid's and family and thank God for every minute that I'm on this earth to see my babies grow into young adults and hopefully to the day that they get married and have kids of their own.
I have lived out my most horrible nightmares when my ex left and I became a single mother without a job and then becoming sick and my daughter became ill, so as flappys said earlier this is a way of growing and learning , God has me going through these things for a reason and I won't question him why. I have grown and learned to stand up for myself better than I have in the past, and I have been doing just that. Praying you have a blessed and low pain night! Hugs love and Prayer's! 🙏😘🌞💐
I'm just getting back on today, taking my time reading all the posts due to my arm & shoulder flares after a few minutes use. Im glad Gibber answered about the sjogrens & lupus not being the same, but both being autoimmune. I think I heard either Serena or Venus Williams have sjogrens. You'd think these well known stars would become active spokespersons for these diseases and research. My doc's haven't told me much either. And I was shocked that my PCP (not my rheumy doc or orthopedist) told me sjogrens would attack the joints, and that's why my finger, knee, and hip joints were flaring up. But I'm still unsure of what autoimmune skin disease I have, that's causing itching, callous or wart looking growths, and splits in my creases of the fingers & thumbs. They split open too. The dermatologist said it's autoimmune but didn't say what it was. Grrr! This is pic of the hole/split that opened from nowhere on my thumb. It will scare over like the ones on my fingers. I'll post one of the fingers below.
The split on the thumb got a little bigger. The one on the end joint of my index finger has opened up & resealed over at least 6 times since it first appeared earlier this year. And there's a spot in the center of the creases of both hands that's done the same thing. I'm not sure if it's even visible on the photo. But I'm thinking it's something connected to either the sjogrens or an arthritis.
Geez, Flappys, I about fell out of my armchair when I read your post! That is exactly what my fingers & thumbs do, and the big creases in my palm. For years this has been going on. When I worked I had to wrap my fingers with special tape everyday or they would literally be shredded. They still do, but I always wear gloves when I clean or work outside. I put gobs of goo on each night, I have tried so many creams, oils & lotions, nothing seems to help. In the winter they crack & bleed, so I put super glue on the seams.
@ Silvrrry, mine have split and blurred for several years, especially the fingertips. I hope we can both get answers soon.
@ Gibber, thank you for this info. I will definitely be looking into them and discussing it with my rheumy doc & PCP. Thanks!
@ Moparmom, I'm so sorry your having a flare. You take it easy and rest as much as you need to. I had to be off my plaquenil 4 weeks due to the ACDF surgery, and the whole time I feared a flare of the sjogrens. It didn't flare, but these issues with my skin have worsened.
Thanks to the app attachments we can now really share things that might help others. Thank you PC staff!!! Hugs love & prayers for a good night/day for all! 🙂💕🙏🌸