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Lupus and periods

Apr 06, 2015 4:45 PM

Sorry this may be a touchy subject for some people, but does anyone with lupus suffer from extremely painful periods? Also, having a flare up through periods..

Apr 06, 2015 6:44 PM

Bjw1995, I'm sorry you're going through both at the same time. I had a hysterectomy due to excessive cycles 2x/month, at 34. I don't have lupus that I know of. They're trying to diagnose symptoms now. Anyway the only advice I can give is heat source across the abdomen (I used hot water bottles but don't know if they sell anymore). Also about 2-3 oz of dark red or purple wine helps to ease the cramping. Check with your doc first in case you can't mix wine with your meds. Praying for you. 🙏🌼

Apr 07, 2015 2:29 AM

I anyways have a hot water bottle in my belly and back this time of month, but it just feels as though somebody is stabbing me.. As for the wine, I just have this thing about not drinking in the house!

Apr 07, 2015 8:12 AM

Do you have endometerosis or cysts maybe? I had endometerosis and it caused pain where I'd be in a fetal position. Praying you have a better day today. 🙏🌼

Apr 07, 2015 2:52 PM

I've just had an ultrasound and a camera to check a week ago, they gave me the all clear.. but I know they can't pick up everything on them!
Thankyou so much xx

Apr 07, 2015 3:14 PM

Was the ultrasound external (abdomen) or internal? My mass was missed for 3+ years until a doctor did an internal US.

Apr 08, 2015 1:45 AM

They were both! But my sister had the same, they only picked up on hers when she had an exploratory operation x

Apr 08, 2015 5:54 AM

Make sure your doctor knows about your sister's situation. I really wish I knew more to help bring some relief. 🙏🌼

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