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Lupus Fibromyalgia hell

Mar 15, 2016 9:32 PM

Well I was diagnosed in April of 2013 thinking I've had it at least 10 years before the diagnosis! Have OA and it in my back the most! Lupus,Fibromyalgia, and Scleroderma! I'm having a knee replacement in May. Had a verdeopasty in Jan. and spinal block for the pain in my back! I have a team of Doctors that help me stay together! Hoping you all have a pain free day many blessings to all!

Mar 15, 2016 9:40 PM

Welcome! I hope you have a pain free day as well. :) I don't share any of your dxs but I deal with chronic migraines, small fiber neuropathy and am in the process of testing to determine if there is an underlying cause for both.

Mar 16, 2016 7:54 AM

Sounds like you're going through a great deal ATM. I don't have all those conditions but have a truck full of my own. Fibromyalgia can be extremely difficult to live with, especially when your other conditions have a knock on effect.
I hope the knee surgery goes well in May.
Feel free to ask, rant or anything else you need to get out.
P.

Mar 16, 2016 8:07 AM

Y
ou have made electromyography and evoked potentials to rule out other problems with similar symptoms

Mar 17, 2016 12:10 AM

Hello. I also have osteoarthritis of the spine and fibromyalgia and I'm starting the process to see if it's actually lupus or not. I'm in pain every day but during flares its unbearable. I'm glad to meet people who get it. I still work full time and take care of my family but it takes every bit out of me most days and during flares I'm pretty much worthless and I just whimper and cry. Because I'm only 33 and I look normal and work full time people don't think I hurt as bad as I do. I feel like they think I'm faking or something. I'm not faking. It is hell, you're right.

Mar 17, 2016 9:41 AM

I too am just being diagnosed with lupus, sjogrens, and they strongly believe Scleroderma. It's so scary. Good to finally be believed and get answers but I don't want this stuff and I wish no one else suffered with it either. I'm in constant wicked pain. Most of my joints hurt, and my ribs always feel like they're broken now on one side. I know it sounds crazy but I started a business recently. So I work a lot. Having my own business has always been a dream of mine. I figured I need to do it now because I don't know how I'm going to be doing in the future now. So this business is my legacy. It's somewhat my sanity too.

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