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Lyrica is no longer enough!

Apr 15, 2015 7:28 PM

I got shot in the back and have a very intense neuropathic pain in the left leg. Lyrica help to not have to scream, but I'm already at 3 x 150mg. Drinking Lyrica for two years and the maximum dose is 600mg. It hurts all day, but the pain intensify, especially after a meal when I have a strong urge to urinate and toilet. Also after I wake up. Lyrica helped when I had just begun to use, but now I need a higher dosage. Soon I will get to 3 x 200mg and what next?

Apr 15, 2015 8:16 PM

Hey DutchAK47, I'm sorry for your injury and pain. Its sounds like you've suffered severe nerve damage from the injury and repair. I can't say I understand getting shot, but I've had several surgeries that cut through so many nerves, in 1992&95-2003-2007-2010, and I still have neuropathy pains. I also have fibromyalgia and many other pain causing issues. Have they tried you on gabapentin? I have unusual reactions to a long list of meds and can't use any major narcotics. I use gabapentin & Tramadol. And they recently added Tizandine for tremors & spasms in my hands. I do use heat, and ice when I have to. But ice makes my bones hurt. I use a Voltaren gel for massaging into muscles. I wish I had more to suggest. Maybe others will respond soon. Oh, by your name, does that mean you're a Veteran? If so, thank you for serving. Thanks really isn't enough though, not for what it's cost too many. I'll be praying for you, to find more help for your pain. 🙏🌼

Apr 16, 2015 12:35 AM

I'm praying for you also 😇👼

Apr 16, 2015 12:44 AM

Dear DutchAK47

I am sorry to presume tha you have not tried everything but just in case you missed this prodedure, I wanted to let you know about it. It helped me about 40%. I think it is called a flouroscopy. It is something like that. Unfortunately, They have to do a test first. What they do, is they bring you in to usually a pain clinic and they inject the top of the skin where they are going to put the needs with some type of anesthetic. Then they use an xray guided needle to go to the nerves and put anesthetic on them. Then the bring you back out and wait about 10 minutes then start walking. If it helps you, it means the procedure they want to do will help you. So then they schedule you a next visit and bring you back and do the same things except when the guide the needles inside, it use to be to put anesthetic, now it is to go to the nerve and to burn it so it is not hurting you anymore or less. You determine whether it is worth it to you. The nerve usually grows back in 5 or 6 months and they you would need to repeat the procedure. It is just an idea if you have not heard of it.

Apr 16, 2015 1:32 AM

Thanks guys!
I'm a veteran, ex professional soldier but from Croatia (Europe). I was shot in the war 1991.-1995. in Croatia against Serbs. After 3.5 years in the hospital, still every year they have to operate me, they must clean the abdomen. I can walk 50 yards, but I am still most of the time in a wheelchair ♿. I'm hit explosive bullets 🔫 from AK47 and fragments are we still in the abdomen. The pain was intolerant 20 years until I heard for Lyrica 💊. Now drink it for 2 years. I will soon come to their maximum dose of 600mg per day and do not know what to do next. Thank you for your advice and I will try everything.

P.S. Sorry for my bad English. It's been a long time since I spoke English and had trouble with grammar. I hope you will get well and get rid of the pain and other health issues.
With respect Dutch! ✌

Apr 16, 2015 1:40 AM

Thanks for you for your service

Apr 16, 2015 7:59 AM

Dutch, I guess I was tired when I posted. Profiler mentioned the nerve procedure. I didn't have my nerves burnt but I got steroid injections to block the pain, in my cervical, thoracic & lumbosacral areas. I'm at 16 months since my last injx and I am about to start another round for the cervical radiculopathy & lumbar areas. I wish you the best finding something that works for you, even if its only 6-18 months, then start again. My pain specialist also uses the fluoroscope to see the needle positions. They did one block at the facet joint. Prayers for a good day...many better days to come. 🙏🌼

Apr 16, 2015 10:34 PM

I didn't try fluoroscopy. I'll talk with my doctors and arrange to try fluoroscopy. The bullet hit me between 4 and 5 lumbar vertebrae and the cut 75% of the spinal cord. Maybe I shouldn't do fluoroscopy. I'll ask doctor. Thank you for your advice! Salute and respect you guys

Apr 17, 2015 8:01 AM

Fluoroscope is the xray machine with a monitor so the doctor sees exactly where they are injecting. I wouldn't want one any other way. I have an appointment with my pain specialist next week, to restart more treatment for the headaches & cervical radiculopathy. My doc will sedate you (lightly) and I get sedated. I'm a big chicken about needles in my back! Praying for good help & results for you. 🙏🌼

Apr 17, 2015 11:12 AM

I, too am going to my pain management to have treatment for my migraines and cervical spondalytic Myelpathy. My doc knocks me out completely and then when he's done, I wake up, am a bit groggy and then someone brings me home. It's certainly not general anesthesia, but he gives me enough to put me down so I don't freak because I'm a big chicken too... LOL!!!! I hope it all goes well for you. Also, Dutch, FlappsyLady is right, you wouldn't want an injection any other way than with a fluorscopy because it gives the doctor a much clearer target to give you the injection. All the best...

Apr 17, 2015 7:13 PM

I went to my back doct this am and had that done in office when I asked he replayed so I can pin point the injection were its needed the most instead of guess work and it kick my butt knocked me out for about a hour but for the time beening I'm feeling really good pain that was 8-10 is now a 5-6 so I'm a happy camper just taking it slow

Apr 17, 2015 7:18 PM

Eddieray, take it easy for 3-5 days, resting as much as possible. Don't lift anything heavy. Have a good weekend. Wishing really good results for you, long term! Prayers too 🙏🌼

Apr 17, 2015 8:32 PM

Thanks flappySLady. My wife said I've got the a week without doing any thing or else I don't want to know what or else is so I'm just moveing at every so often as I don't feel the pain so I want to be sure I'm not dreaming lol

Apr 17, 2015 8:48 PM

Lol. Do exactly what your wife says!😀

Apr 17, 2015 8:54 PM

Yep I like to follow orders from her she's stronger than me for the last few years ( lol I'm wiped but know who takes cared of me ) lol

Apr 17, 2015 9:17 PM

Dutch AK47 I am so sorry that you have to go thru that. I assume that you have a feeding tube since you said that you are taking liquid Lyrica. I took Lyrica for three months but it was like taking Tylenol for me. I take Gabapentin 800 mg 4 x day, and Savella 50 mg 2 x day. For nerve pain, and Hydrocodn/ APAP 325/7.5 every 6 hrs as needed for pain and 50 mg Fentonyl Patches change every 3 days. I still have a 8-9 pain level with my rt shoulder,my back and neck is a 6-7

Apr 17, 2015 9:59 PM

Oops accidentally hit the wrong button. I hope they are Abel to get the rest of the shrapnel out of your abdomen. I use Tigers Balm or Walmart brand roll on pain rub. You can also use rice packs, take 2 wash cots sew 3 sides then fill with plain white rice half way put Lavender essential oil on a cotton ball put in finish filling with rice sew up place n in microwave for 3 min place on a painful place cover up. Will hold heat for a while. God Bless you, and if you have surgery I pray that the Dr's get all the rest of the shrapnel out of your abdomen. Keep your faith strong. I will keep you in my prayers.

Apr 18, 2015 10:06 AM

I suffer with chronic back pain after scoliosis surgery. I've tried so many different things, I'm on lyrica also! But with endep and nurofen throughout the day too.. I still don't find it's enough! Everyone just has to keep trying to find what helps them best.. Guess I still haven't found mine.
Good luck, and stay strong.

Apr 18, 2015 11:50 AM

Sorry I just reread my last post and I ment to type cloths not cots lol. Something struck me Dutch you said that you lived in the hospital for 3 yrs. Did you continuously live there or did you mean it felt like you lived there for those 3 yrs. In the State's I don't know where unless it is a Military Hospital that they would allow anyone to live for a complete 1 yr much less 3 yrs.I don't know then if they would allow it. Any Vets on here chime in please.

Apr 18, 2015 3:16 PM

@weezIe12 I'm not sure I think in the rehab part of the va but in dutchak47 Case he's in a dif country so there va could be better than ours I just don't know for sure

Apr 18, 2015 4:14 PM

Eddieraye it sounds like it may be a better system than our guys and gals are subjected too. I love our country but it has a lot off improvement when it comes to taking care of our vererns.

Apr 20, 2015 11:08 PM

Yes guys I live in the hospital all 3.5 years. Two years during the war and 1.5 after war. In Croatia's hospital care and stay mostly free for all. Just pay a small part of the cost to the patient, other helth insurance covers. For emergency operations and procedures is required approval of health insurance.
• We have free medical services, but in America are better, more complete and more modern. Health insurance mainly pay all kinds of medical services and even operations in other countries. But it's a long procedure. 20 years ago I sent the papers in Houston, but they told me they can't help me.
Thank you for your concern and advice!

Until recently, the veterans had the advantage, but no longer. 3 years ago the communists came to power again, so they all stopped for veterans and civilians. Now we fight in a democratic way, until new elections for six months. Veterans are already six months on the streets and protest against corruption in the government. We have not made Lustration and now are suffering. They robbed our country and imposed a major crisis. When can I join the protest and sleeping in a tent in front of the Ministry of Croatian veterans. The most severely disabled veterans, we launched a protest, because we too have died in the last three years. Now turn the people against us, after we won the war, 91-, 95th when we were attacked by Serbs. Recently we won again and got the president of the state, and this is the first president in 15 years, which was not a communist. Fight continues! :) ✌

Apr 20, 2015 11:19 PM

Wezzie12
No more feed through a tube. Drinking capsules Lyrica 150mg three times a day. Lyrica helped before, but now weaker.

Apr 20, 2015 11:28 PM

Wezzie12
I was shoot 04/1993. and war was end 1995. I leave hospital 09/1996.
Yes, a lived in hospital continuously 3.5 years, and every 1 to 2 years again 2-4 mounts. They operate me every 1-2 years. :(

Apr 21, 2015 12:16 AM

That's for sure I get better care from privet care then the va care the last time I had gone to va ergent care I was there for 36 hours before I walked out its a shame to they used to take good care of us

Jul 29, 2016 4:19 PM

Hello, how's your day been? Mine was a little bit painful but I zoned out and ignored the pain and it went away! I'll always keep you in my prayers, hope to hear from you soon

Feb 12, 2017 8:06 AM

I'm sorry to read about everyone's pain - makes me feel ashamed to indulge in self-pity about myself. However, there was a time when I was in a wheelchair because it was too difficult to walk.

I'm able to do more now through trying all sorts of stuff. My issues are a result of injury followed by multiple surgeries, so the things I did may not be suitable for everyone. One of the things I tried was SCENAR using an InterX device. SCENAR is Russian technology from the space programme that became available elsewhere in the world from around 2000. Devices are registered for pain management use but there is evidence that they may help promote recovery from some physical conditions. It is important to read up on the different devices and use as instructed. The device I have is not to be used above shoulder level.

It may be useful to find a licensed practitioner in the first instance to see if the treatment helps. Good luck!

Feb 12, 2017 8:11 AM

This is from 2 years ago. They won't see it now.

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