Hi everyone, I'm new to the forum, but have been looking at peoples advice and stories since I got the app a year or so ago.
In my early fifties, I have had to finish my career early due to an onset of transverse myelitis. It makes moving around difficult, and the pain, as for many here, has been difficult to manage. I have an excellent pain consultant who I see every few months, who introduced me to butrans patches which have been a life changer. Managing the cocktail of other drugs is not always easy, and as lots of people here understand, the pain is not easy to predict. Relapses happen at the most unexpected times, and then when I have been particularly taxed by some activity, I may have no extra symptoms at all. Saying all of this, though, the changes that my wife and I have had to make are becoming part of our new lives, and distractions like rediscovering my artistic side have been so good for the soul.
I haven't noticed a great deal of discussion around TM, but would like to hear from anyone managing the condition, and the physical and mental impacts that it provokes. I really respect the warmth and support that I can see in the forum, and hope that I can also offer insights from my own experience. I'm in the UK and have had the condition for 3 or 4 years now. Look forward to hearing from other members.