Welcome to the community MarfanGirl. We are a big family. We come from all over the world so everyone is on a different time zone. I don't have Marfan Syndrome but there might be someone in the community with it. We all have different diagnosis but all have chronic pain. I have fibromyalgia among other things. I am in Ohio USA. If you wouldn't mind could you tell us more about yourself? We would love to get to know you better.