Everybody must be having their hard times in pain so I am in right now. I want to know all your experiences to share with how you find out meaning of your life in pain when its like giving up. I can’t make up to my study schedule, not able to do exercise as instructed by physio. Meds not working well enough to make me able to do the things I like to do. I don’t know what to do with myself. I can’t lie on a comfort position for entire day and just do nothing at all. I feel so wasted.
I don’t like the subject because I’m educated n capable but I have trauma, sports background, mood dis., etc., plus I had viral infection in 2009. I know why I have chronic pain. The meaning: maybe it’s from a past life, maybe it’s hormonal, maybe it’s cellular/gut, maybe it’s from repressed emotions n people pleasing or not showing anger, maybe it’s just worn out joints with overactive nerves....means I’m constantly searching (I’ve had dreams where I’m searching, hiding or fleeing),
I actually wanted to know about self rehabilitation. People suffer pain they educate themselves and the more you get educated the more you get to know about possibilities and it also takes you out of oblivious thinking about your pain. But at times it does scares you when you read about what worse can happen like a back pain can be horrible & cripple you on your daily activities, an endometriosis can be so painful that you just have to stay home in pain, even fibromyalgia sufferers quit from their job they find difficult sometimes and there must be many companion’s in here. Sometimes it doesn’t get relieved to a point you want it to be. I want to know how you can give your 100% even in pain.
My strength comes from my wonderful kids and amazing husband. I keep going for them. I'm honest with my eldest child about things which I think helps her to feel secure, she even does yoga with me now! Life is hard for everyone but the trick is to see all the beauty in the world - a kind word or gesture, people pulling together in times of crisis and the breathe taking awe of the world we inhabit.
Jolly, I found I had to be my own strength. I sat myself down and talked about accepting my new normal. My husband was great, but he could not get me through my worse days. I chose to blog. My hope is that the posts touch some medical person to try and research my rare disease called Tarlov Cysts. There are only 4 really knowledgable docs out there and what happens when we lose them? Also, my faith gives me what I or others can not.
Zetarlov you are crucial part of research when you help everyone to make them understand your situation. This helps in research and gives support to the ones having the same diagnosis. Your hope will go long way. I hope I could find someone here who is suffering as similar as me. Thanks and I appreciate your insight.
I hunker down on bad days and often feel helpless/useless. On those days I often feel like a waste.... BUT GOD manages to show me that although I can no longer teach Ballet, or run a mile...that I can reach out to others to give hopefully comfort and strength. Sometimes God will use our pain so we CAN offer others hope when things seem homeless. There is a Day coming that if you put your full trust in God, you will no longer feel the constraints of this life. He has SO MUCH planned for those who love him. As the Bible says, Eyes have not seen, nor Ears have heard, what is in store for those that love him. Be encouraged, you have friends here. We all understand those days....😓
I try to be as positive as I can! By trying to be positive I've learnt that it okay to just stay in bed some days (like today). It's really hard to accept your new normal and that the normal can change super fast. So I just try to be positive and thankful for what I have and what I'm able to do. Even though it's just getting out of bed to get some food some days 😊
I Try to stay positive but some days I just can’t I do say that I’m going to give up but I always say to myself what’s life without struggles And I’m the one helping my friend get through chronic pain and she said as soon as I give up she gives up,and I don’t want her to give up.
I am so pleased to see you Rachel, Julia, painat and everyone whom I have came accross in the community. Pain is beyond what I use to think; its a storm of suffering, spirituality, Struggle, Faith, emotions, humour and Many more things fighting to dominate on us. I imagine a bright sunny day when all pain companions hold their hands in a circle accross different countries with their head held high looking up to the blue sky, Screaming loud together, I AM WITH You.