Everybody must be having their hard times in pain so I am in right now. I want to know all your experiences to share with how you find out meaning of your life in pain when its like giving up. I can’t make up to my study schedule, not able to do exercise as instructed by physio. Meds not working well enough to make me able to do the things I like to do. I don’t know what to do with myself. I can’t lie on a comfort position for entire day and just do nothing at all. I feel so wasted.
I don’t like the subject because I’m educated n capable but I have trauma, sports background, mood dis., etc., plus I had viral infection in 2009. I know why I have chronic pain. The meaning: maybe it’s from a past life, maybe it’s hormonal, maybe it’s cellular/gut, maybe it’s from repressed emotions n people pleasing or not showing anger, maybe it’s just worn out joints with overactive nerves....means I’m constantly searching (I’ve had dreams where I’m searching, hiding or fleeing),
I actually wanted to know about self rehabilitation. People suffer pain they educate themselves and the more you get educated the more you get to know about possibilities and it also takes you out of oblivious thinking about your pain. But at times it does scares you when you read about what worse can happen like a back pain can be horrible & cripple you on your daily activities, an endometriosis can be so painful that you just have to stay home in pain, even fibromyalgia sufferers quit from their job they find difficult sometimes and there must be many companion’s in here. Sometimes it doesn’t get relieved to a point you want it to be. I want to know how you can give your 100% even in pain.
My strength comes from my wonderful kids and amazing husband. I keep going for them. I'm honest with my eldest child about things which I think helps her to feel secure, she even does yoga with me now! Life is hard for everyone but the trick is to see all the beauty in the world - a kind word or gesture, people pulling together in times of crisis and the breathe taking awe of the world we inhabit.
Jolly, I found I had to be my own strength. I sat myself down and talked about accepting my new normal. My husband was great, but he could not get me through my worse days. I chose to blog. My hope is that the posts touch some medical person to try and research my rare disease called Tarlov Cysts. There are only 4 really knowledgable docs out there and what happens when we lose them? Also, my faith gives me what I or others can not.
Zetarlov you are crucial part of research when you help everyone to make them understand your situation. This helps in research and gives support to the ones having the same diagnosis. Your hope will go long way. I hope I could find someone here who is suffering as similar as me. Thanks and I appreciate your insight.