Learn from patients with pain similar to yours

CatchMyPain Community and Pain Diary App to manage chronic illness

ME/CFS Craziness

Oct 03, 2014 9:03 AM

i have ME/CFS and I live in a community that hires doctors from different countries who need a place to finish their probationary period..the community is not very large with little to offer....as a result they are not very educated in certain areas (hope I said that nicely)...my family doctor has disregarded my rhumotologists diagnosis and treatment and has instead decided I have hep c even though my bloodwork says I do not. he is also convinced that my tongue piercing is causing my pain. this became such an issue that I brought another health professional to my next apt with him and she asked what the diagnosis was based on..he said just a feeling..she reminded him that we don't treat based on feelings and that denying my treatment was both cruel and illegal and that there were no studies that indicated tongue piercings caused my type of symptoms...thinking issue was dealt with I went to my dermatologist for a biopsy..when he opened my paperwork faxed by my doc he asked me how long I had hep c...my jaw hit the floor..I explained the situation and asked him to look at my bloodwork..he did and confirmed that I did not have hep c and that I needed to be on the treatment plan initially suggested by my rhumatologist

Oct 03, 2014 4:32 PM

SMH. Will it be impossible to go outside of your area for treatment? Good Luck!! Kudos to the person you took with you!

Oct 03, 2014 9:26 PM

I returned to doctor today to confront him only to find he was on vacation...so I had a chat with his replacement who confirmed what I have said...as for travelling outside my community..my rheum is 4hrs away...derm is 6 hrs away and pain clinic is 7 hrs away...as for moving..had I known I was gonna get sick I would have moved while still employed...now I have lost everything and am going nowhere fast

Oct 12, 2014 10:05 PM

i went bac to my doctor who ended up kicking me out of his office after my repeated attempts to tell him that he has proof that i dont have hep c and he needs to change my file and listen to the specialists...he refused to provide explanation only refused to change anything and then told me i was too confrontational and he wouldnt c me anymore..knowing hes the only doc n twn seeing patients..his secretary felt sorry for me and set me up with another apt with a diff doc..who happens to be the doc who refused to treat me n the er after contacting my doc when i went in before for pain management...vicious dam circle

Oct 12, 2014 11:50 PM

Contact the AMA! what he's doing is ignorant and dangerous, as well as illegal!

Oct 12, 2014 11:59 PM

im not n the states..

Oct 13, 2014 12:04 AM

oh, sorry. don't most countries have the equavilent? I wish you all the best!

Oct 13, 2014 10:36 AM

u r so right we do...college of doctors an surgeons..unfortuntely they do not speak to u..u have to submit n writing ur complaint...i actually wonder if someone even look at them..i have tried every avenue i can think of to make this doc take responsibility for his stupidness and n the end...it boils down to a letter...all this technology n information era and they want hand written letter...easier to speak to the gov...least they answer the phone haha

Ready to start relieving your pain?

Join Community