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ME/CFS. Is it real

Sep 22, 2014 12:10 PM

I asked my GP awhile ago about ME and said I felt that I may have it, delayed exhaustion etc. was told that there was a debate as to whether it was real or not. I've started keeping a diary to hopefully start to show a pattern in my body. anyone got any other advice or ideas that may help

Sep 23, 2014 8:05 AM

I think it's definitely real! How long has it been going in for you/ a big thing is duration, and ruling out other symptoms.

Sep 23, 2014 3:18 PM

sure is real. my fatigue has got worse over the last few years as has my Fibro.

Sep 23, 2014 3:28 PM

I live the UK and was diagnosed with ME about ten years ago by a specialist who said it's very real there's days when I can't even brush my hair or teeth yet alone get out of bed so yes it's very real.

Sep 24, 2014 10:41 PM

I'm in the UK too and was diagnosed with ME five years ago after a load of tests to rule out other things. It is hard to diagnose but it is real. I was sent to an ME clinic in the end for a proper diagnosis. Try googling ME or CFS and compare your symptoms if you're not sure and if need be take in print outs from medical experts to your doctor. If not may be it might be a good idea to get a second opinion. If you don't manage a condition like ME it becomes worse and more damaging to your body. Good luck and let us know how you get on! xx

Sep 25, 2014 2:04 PM

hi everyone...agree, it's very real! had a pretty good day today tho. I managed to stay awake & the pain & fatigue kept at bay...just about lol xx

Sep 26, 2014 1:07 PM

thanks everyone I've been keeping a diary to help. I have one to two good days then it feels like I have hit a wall and am totally drained and fatigued the next day or three. got a lot of stress at moment that isn't helping. we as a family are emigrating to Australia in the new. got so much to do but struggling to do it

Oct 31, 2014 7:55 PM

I think that me must be real as there is no other way to explain our symptoms however people I know just think its lazyness!!! I have only had it for six months but I feel really sorry for people who have had it for longer and hope they get better soon.How old are you all JTFI?

Nov 01, 2014 9:19 AM

It's real enough. I'm just going through the testing phase at mo with Doc for it. I also have neuropathy and migraines. Been so energy less and extremely painful muscles. With other stuff. Had glandular feaver for 6 months as well. So yeah Doc says it's real.

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