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medication questions

Sep 18, 2016 11:12 AM

what medication helps fibro/ Chairi malformation? what helps? how did the adjustment periods go? side effects? I appreciate the helps, I am praying for relief and want to be as prepared as possible when I see the doctor next! Thank you πŸ™πŸΌπŸ™πŸΌπŸ™πŸΌπŸ™πŸΌ

Sep 18, 2016 11:31 AM

Main medications I found help with fibro are methocarbamol (muscle relaxant) & tramadol. They don't do it all, but they help. When it's really bad, I take an extra muscle relaxant, & that usually puts me out so I can get away from it for a while. Gabapentin helps if you have nerve pain. Your doctor will probably prescribe an anti-depressant, & may prescribe something to help you sleep as poor sleep both aggravates it & usually is part of the syndrome. You may find "brain fog" (inability to think clearly, difficulty concentrating, & memory issues) are a part of fibro for you. I haven't found anything that helps with that. Exhaustion is another thing that can go with it. The only thing I've found that helps that is giving in & resting/sleeping. Hope this helps.

Sep 21, 2016 9:07 AM

I use gabapentin for neuropathies, Parafon forte for muscle spasms (RSL & hypnogogic jerks too), tramadol for >7 level pain (Tylenol arthritis otherwise), magnesium, D3, and I eat less sugar & carbs now.

Sep 22, 2016 5:03 PM

The thing I have found is that we are all different and what helps one may not help others. Doctors usually go through what I refer to as trial and error in hopes of finding a to treatment plan that's tailored to you.

I take a muscle relaxer (Tizanidine) a pain medication and something for the fatigue. Every few years I have to change what I was using because it's like I build up a tolerance to them. But everyone's different and what I take may not even touch the pain you live with.

Oct 03, 2016 3:23 PM

Hi hales, there a lots and lots of different medications that you can try and it really depends on symptoms and personal trial and error.
Medications that can be tried include: Opioids(medications like codeine, tramadol, morphine and fentanyl), Anti-Epileptics (e.g. Gabapentin, Pregabalin), Antidepressants (e.g. fluoxetine, amytriptaline, duloxetine).

There are other meds that you can try depending on your symptoms e.g. anti-inflammatories, calcium channel blockers, in rare instances GABA reuptake inhibitors or GABA receptor inhibitors.
Are you under a pain clinic yet? Also, if you describe your symptoms we might be able to be more specific

Mar 13, 2017 9:59 AM

When my pain is really bad the doc told me to take two aleve, a flexeril muscle relaxant and a morphine tablet. Even though it doesn't take all the pain it helps quite a bit. I only have to do that about once every three weeks or so cuz the morphine scares me a little cuz it's so addictive. I first just take two Aleve and a muscle relaxer first. If that doesn't work then I add the morphine. Now the doc is very reluctant to give me the morphine but is he would look at how often I refill it (once every 4 months or longer) he would realize I'm not pill popping for fun.

Mar 13, 2017 11:04 AM

I take gabapentin for nerve issues. Tizanidine for my muscle relaxer. Oxycodone for pain. Amytripiline to help with sleep. Everyone is different and it takes some trial and error to find what is right for each individual.

Mar 13, 2017 4:51 PM

Honestly, my doctor gave me Neurotin for daily use as well a bunch of other stuff to take as needed. I have a pharmacy in my cabinet. πŸ˜‚ However, I will not use hardcore controlled pain meds.

Mar 14, 2017 6:30 AM

Pain medication is not addictive unless you make it that way. Unless you take more then your prescribed.
Most ppl who suffer from all types of chronic debilitating pain are dependent on their meds. There is a huge difference from being dependent and being addicted. Just google it. If you take what your prescribed, most of the time, you will have a few left over by the time you see your doctor again.
I say that because my pain dr sees me every 4 weeks on a Tuesday. Most of the time there is a 2 or 3 day change. Meaning...if I saw him March 21 & got my meds filled & then 4 weeks later, it will be April 18 & got my prescriptions filled, there are 3 days of left over meds. I use those left over meds when my pain levels are extremely high and I need to get to a doctors appointment. Mind you, I always let my dr know if I took an extra med and why (from previous month, as I put those extra meds in separate containers & hide them away for "just in case days."
I've been on meds since 2008, detox at home every 4 years just to restart my system & go back on lowered doses. I also get a lumbar rhizotomy every year to help with lower back pain. At first they were helping at least 85%, but now not so much :( Think it's time to have back surgery. But mind you that's just to help for my back. I also have a number of other diagnoses. I have widespread chronic pain, migraines & mental illnesses that just continue to increase when the pain started and continues to get worse.
I've tried pretty much everything. Tho looking for an acupuncturist & reiki to help. I'm willing to try basically anything. If I can get rid of my pain, come off of meds and go back to work, I'd be extremely happy, but unfortunately I don't think that will ever happen.
I do eat healthier now then I did in the past and mind you, that's only on days that I feel good enough to eat. When my pain first started and for a few years thereafter, I was taking OTC meds, which caused me to be now diagnosed with chronic gastritis & my GI Dr said absolutely no OTC meds! You wanna talk about how OTC meds can screw up our organs, well there is a ton of info to back that up! Also whenever you are about to get a new med, google the name of the med and then type black box warning. For example: levaquin black box warning. You will see that it can not only cause tendinitis, but debilitating peripheral neuropathy (which I now have thanks to that meditation.) As far as addiction goes...anybody can become addicted to just about anything! My ex was addicted to excedrin & that's an OTC med! Tons of ppl are addicted to coffee! I'm addicted to protein shakes that have espresso in them because it's the only thing that gives me energy, without it, I have a lot of fatigue.
Basically as long as you take your meds as prescribed & you take anything in moderation, it's not addiction, it's dependence.

Mar 14, 2017 9:34 AM

What she said!!! ‴️‴️

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