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Sep 25, 2016 5:33 PM

Hi all I'm new here
I was wondering how everyone deals with their medication? This is just my morning dose alone and I'm sick of it.
All the weaning and building doses, trying to find the right mix, all the injections.
How do you cope?

Sep 25, 2016 9:15 PM

One day at a time, one hour at a time, one minute at a time - depending on the day.

Its a long journey of trial and error before you find the right combination. Frustrating - I know. We are all.so different so what works for me won't necessarily work for you.

As for managing my meds - I set the meds up for two weeks using those pill dispensers. I also have alarms set to remind me when I need to take them. For me it makes it easier to also set up my times to coincide with meals and bedtime. :) While trying to find what works it helps to keep a journal or use the pain diary - keeping notes on what medication you are taking and how your pain is throughout the day. This will also help your doctor determine what doesn't work or what works but may need adjusting. For me - if I didn't keep a journal then I never knew how to describe any plus or minus of a new medication.

Welcome to the group. I hope you will find this a great place to talk, vent, share and even laugh.

Sep 26, 2016 4:02 AM

Couldn't have said it any better Mimikay!!! Welcome aboard MKnight.. I hope you get the support and info you are looking for with us..💕

Sep 26, 2016 4:19 AM

Thank you so much for the advice and welcome. I hope you both have little pain today

Sep 26, 2016 2:56 PM

I echo Mimikay too. But I track my meds with an app carpooled Dosecast. Otherwise I'd be messing up big time! Hugs love and prayers, one step at a time!

Sep 26, 2016 4:19 PM

Flappy - does Dosecast have a way to comment on how well a med is working or if it isn't?

Sep 26, 2016 5:56 PM

I dumped my days worth of pills into a measuring glass to find that I was taking 1 1/2 cups worth of pills.....and I told that it wasn't that bad and I somehow had to choke down every single one.

Sep 26, 2016 6:00 PM

Ugh. About 4 months ago I was going through some crazy symptoms. Including unable to get words out.. Saw my primary care doctor and he went over my medications. I went (gradually) from taking 12 to taking 4 plus alive +50 vitamin and minerals plus a low dose Bayer .. And I was feeling so much better. At least until the wreck.

Sep 26, 2016 8:31 PM

Mimikay, I don't think so, other than a note inside the med info for each med.

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