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Meeting with my rheumatologist tomorrow

Nov 01, 2015 9:48 AM

Hello everyone Can u guy give me any tips and ideas on how to correctly communicate with this doctor. This will be my first appointment and I'm really wanting to get a full range of treatment from this appointment. How did u guys handle your first appointment with a rheumatologist. Thank you in advance.

Nov 01, 2015 11:47 AM

Hey there I had my rheumatologist appointment for the first time last week. I printed off my pain diary from this app and took it along. He diagnosed me then and there, I took alot of other paperwork from all my hospital investigations throughout the year too but he wasn't interested in that

Nov 01, 2015 12:24 PM

Most Drs want to know what you feel from day to day. This app, which I stumbled across by accident a few months ago has been a great tool for me to use also, to communicate with the Drs. If you can't print it out take your phone or laptop with you. Make a list of questions and take those with you too. Hoping it goes well. Will be keeping you in my thoughts till we hear back. Hugs

Nov 01, 2015 3:26 PM

My doctor wanted details of how activities affect me, symptoms, if I have any rashes or dryness. The app print out would be helpful. You may also want to make a short list of specific questions and/or problems you've noticed. And if there's a pattern to your symptoms let them know. Good luck! Praying for very good results. 🙏🌼

Nov 01, 2015 3:27 PM

Be sure to take any labs you have had in the last year too if you can or they will order for you

Nov 01, 2015 7:22 PM

Thanks guys working on my list now and making sure mmy thoughtsr organized. Today would be a day im haveing problems with holdingba pen. Thankful for my stylist.

Nov 01, 2015 7:30 PM

Technology does have it's benefits. I never write anything. I use the Coz I calendar app and I put it on my son's phone and my best friends phone. If I schedule an appointment, I put it on the calendar and they do too. This way, they know when I need a ride to the Dr or whatever. We take my SUV but one of them drives. If they have an appointment, it goes on the calendar. That way we don't double book. It syncs thru email. It's a great calendar app.

Nov 01, 2015 7:45 PM

Like some have said about havine a diary, that is good. But if you are to late on that. I would write a list of everything that is bothering you. On the top of that list, I would put what they call objective data. Things that they can prove. Like if you know that your blood pressure gets high at times, or you get a fever. things like that. Then the subjective, My stomach aches, my arm hurts, things they can't prove. Some things that are very important to Rheumatologist are rashes, fevers, fingers being stiff and painful, and a number of other symptoms.

One suggestion and if someone disagrees with me, please post it. Hurting this much can make you emotional and desperate for answers. I have been there and I have displayed tears. Doctors can attribute your pain to depression. So if you can show how important this to you without showing how it can make you feel emotionally sometimes, that might be good. Because you might not get one of those good doctors who is empathic and try to understand your plight for help.

Nov 01, 2015 7:46 PM

My best wishes and I hope you get the help you need.

Nov 01, 2015 7:54 PM

I really don't like autocorrect. I use an app called Cozi Calendar. Not Coz I. Sorry bout that.

Nov 01, 2015 9:31 PM

Profiler is soooo right on the tears. I don't know why but when docs see you cry they tend to go old school... "She's depressed so it's in her head" way of thinking. You can and should admit depression, but let them know the pain and symptoms, not knowing the cause, is what's causing the depression &/or anxiety.

Nov 01, 2015 9:49 PM

All great tips and I'll look Into cozo calemder

Nov 02, 2015 3:23 AM

Do NOT dress up to see the doctor. We are all guilty but I have found that I get better care when I go looking just however I look that day. Take your medication list also write down limitations be totally honest write down how life really is now fir you. Make sure you take your old labs all of them so there is something to compare and be ready for lots more! I recently learned that most fibro patients have a TSH of 3 or more. So yes sll of your lab work is important. Look at some of the arthritis websites for help gathering your questions. I always write my questions in a spiral and take that with me everytime. I add notes to it while we are speaking. Printing your Catch my pain drawings might help your doctor see the problems more clearly. I tend to cover my screen name because I do not feel that this is any of their business, example I believe in the help that edible marijuana gives me but Texas has not legalized marijuana yet (with edibles I can rdeuce my pan medicine by 70% that is huge). Just dump all your problems on the table see if the new doctor is really going to help find a solution or just give you something that masks the real problems. Good luck to you hope you found a good doctor.

Nov 02, 2015 4:35 AM

I have my 6 month check up. ...just tell the Dr all your symptoms. ..they will draw lots of blood. ...x-rays. .then he will tell you what is happening to you. ...my hubby tells me to tell all. ..he will be with me tomorrow. ..he will tell rheumy every thing. ...he is upset that he won't let me go on disability. ..we are going to fight this. ..good luck. ..

Nov 02, 2015 6:57 PM

Profiler ...flappys...lmb..cearea..everyone..
Hey guys.. I wanted to start a new topic but wanted to make sure I got everyone. Thank u so much for your advice
I met with the Dr and it went great I've got a diagnosis and the nurse and Dr loved that I had previously labs and records for them to look at before hand. The nurse was so excited and I ended up having a three hour appointment today. Yes I am exhausted but I feel im on the right road
He is starting me on lyrica so we will see how it goes .. Thank you guys so much

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