Wondering if anyone else suffers from Really Bad memory issues. This has become very embarrassing in my life now. I still work full time. My boss has very high expectations and I give it my all everyday but am wondering how much longer I am going to be able to do this. I can not remember things for more than a couple of seconds. Not a good attribute for an Executive Assistant/Project Manager/HRManager, etc. I wonder if it would be better for me to leave now while my reputation in the field is excellent rather than waiting so people can say I am not a good worker? Problem is I cannot be without a paycheck for more than about 6 months. Has anyone on here applied and received disability benefits? If so, how long did it take to get approved? Btw. I am also a tye I diabetic and have hypothyroidism. I AM TOTALLY EXHAUSTED
I dont get disability pay so i cant say for sure. It took my sister 4 years and hers was due to a bad broken ankle that wont heal or hold her up.
I began noticing my first memory lapses in 2009, while at work. It was like sudden walls coming up, on things I knew and did every day. But I'd struggle through and in 2010 had major surgery for an abdominal mass. I've not returned to work and my mental function has continued to decrease. I was diagnosed with fibromyalgia in 2011 (or 2012...can't remember... Lol). Recently a neuropsychologist said I have cognitive & motor skills loss, and is leaning towards dementia of unknown cause. My rheumatologist said the mental "sometimes" was "fibro-fog." I suspect I have thyroid issues because of symptoms I've suffered for years. An ultrasound shows damage to my thyroid, but all blood tests are ok (low side of ok). Thyroid & fibromyalgia cause mental fog. And fibromyalgia, its exhausting at times as well as painful.
Yes, I'm having memory issues as well as cognitive issues. I'm switching jobs because of it. I know it would have been only a matter of time until I was no longer able to meet/exceed my bosses expectations. If you work for a larger company, there may be options for transfers, promotions and/or training programs.
Hi, I also have terrible memory issues, it just seems to be getting worse. I seem to sound either stupid or drunk, of which I am neither!! Luckily I'm MD of my own company, so only I can sack me haha!! Which sometimes I really feel like doing. People look at like I completely stupid, as I forget mid sentence what I was saying or simple words just don't seem to come to mind. I find it very frustrating!! I have to be shown something loads of times before it sinks in.........and don't get me started IT, I'm terrible. Fibro has a lot to answer for! I'm not sure if it fibro or the meds to be honest. I just write everything down and highlight the urgent things. Good Luck. Have you tried talking to your boss and explaining about fibro? Most bosses are understanding and if you are a good worker, I'm sure they would want to try and help find a solution rather than loose you. Take care and try not to be so hard on yourself.
I too, am having terrible memory issues. I have fibromyalgia, arthritis & terrible abdominal pain. It's like the pain takes up so much brain power that there's nothing left for things like simple concentration.
I have no real answers for the memory problems. Have Benn trying to play games to help my brain (Luminosity.com if you want to get picky but I've found almost any game for your phone). When I'm around people who know what's going on I openly blame the pain.
As far as disability, I've been working for 4 years now, have a lawyer & everything & still have nothing. Before you quit your job, make an appointment with a local disability attorney & talk to him/her. They will be able to tell you what you can expect & how long. The first appointment is usually free.
You can try luminosity bit in my opinion the best one is elevate. If you want to remember things memrise is amazing, you make a list of words, phrases etc. And their definition and it gets you to learn them then revise them until they ate in your long term memory
Some things that help me with otherwise abysmal memory and concentration, in order of effectiveness: - flax (I buy milled flax seeds and sprinkle a tablespoon over cereal / into smoothies). Sometimes I freeze smoothies into ice lollies then eat them for breakfast - the cold wakes me up! - Folic acid - B vitamins - Staring at TV static for a few minutes in the morning (I know it's weird but it helps!) - sit with hands on thighs. Lift right hand and left foot simultaneously. Alternate. Using opposite sides of the body apparently does something to make both sides of your brain work together better.
I appreciate all of your thoughts. I am so willing to try anything that will hep. I get frustrated because I have tried so many things with little to no relief. It used to be a minor issue but as of late it is really noticeable not just to me but others are commenting on it as well. I am 45 years old and not ready to throw in he towel But.....
I understand your frustrations. I am 52, have had memory issues and trouble with getting the correct words out for greater than 5 years and diagnosed with fibro 2 years ago but I suspect I had it prior to that. I actually went to a neurologist that specializes in Alzheimer's for a work up a couple of years ago before being diagnosed with fibro as my father has it and I was getting worried and scared. After the work up, he diagnosed Amnesic MCI ( mild cognitive impairment). I continue with it and have gotten worse but I do think the meds I'm on have something do to with it. It is extremely frustrating when the words that come out of my mouth are completely random and have nothing to do with what I want to say. I am lucky my husband is super supportive and has become quite a good 'interpreter' for me. We get some good laughs sometimes but it can be very embarrassing when I am talking to anyone other than my husband. I write a lot of things down on paper or note them on my phone now especially if I need to talk to someone about something specifically so that I don't get tongue tied and appear like the idiot that I feel. I can't believe it's come to this but I am trying to accept things and to move on with my life as much as possible.
Omg, I have been doing that a lot lately also for myself and for other people ( my parents) when I make appointments. I don't know how I do this really as I put the appointment times directly on my phones calendar but I somehow mess it up. Arrrggghhh! Very frustrating but I have to say, it feels less bad knowing others go thru the same thing.
Clonazepam caused me massive memory block. I had a major burn (Profesional Burnout) out as a workaholic and cannot impress how much stress will impact you. Take a hard look at your life and the demands on it. Take a road trip and do not worry today about things of tomorrow. Now that I have recovered I observe others and am astonished how high stress everyone seems to be. And most people are so accustomed to high stress and always on the go that they get anxiety when they try to relax.
Sandibeach, you sound like my medical twin...lol. My neurologist is sending me to a neuropsychologist who specializes in Alzheimer's and other memory defects. They've termed mine pseudodementia for now. But like everyone else above, its frustrating to know what I'm trying to say and words come out that aren't correct, so I feel like a blabbering idiot! I don't just make mistakes writing appts down. I've actually driven to the wrong doctors offices twice, and called my husband to ask where Dr so&so is located (but I've seen them for 15-20 years). Talk about a freak out moment, when you know your lost but can't figure out where you're supposed to be!
I suffer from memory loss caused and brain fog by my medications and my brain has not been the same since the operation I had on my back in 2009. I don't know if something happened during the operation that may have caused some brain damage or what but I just have not had the same memory recall or absorption ever since.
I don't think the narcotics I take cause poor performing brain function but the nerve pain blockers I take do, like Lyrica and Gabapentin. They cause brain fog and poor memory recall and absorption to the point that some days I am not confident to drive and will only drive locally and only if necessary. I use to love driving.
In addition, if you all of a sudden go from a working environment to a home based environment where you are laying around a lot and not working anymore, like me, then your brain is not getting the exercise it use to and you should then do some regular brain exercises. There are games that help exercise your brain, there are games for devices like Game Boy etc that are designed to exercise your brain. Lumosity is an online software that is designed to exercise your brain. I am not sure of the costs but I am sure you can design your own programs and get things for free that are on line if you get the idea of what games can be played to achieve the same results. An old card came, Concentration, is another brain exercise that you can do for free. Reading is another thing you can do to exercise your brain, read for an hour a day and you should start to see some improvements. TV watching is probably the worse thing you can do for your brain. Laying around and watching endless amounts of tv will cause a lazy brain and poor performing brain.
CACampbell, My 83 year old dad had shoulder joint replacement last year. We noticed immediately mental changes in him; attitude, decision making ability and other changes. We found out there's something called cognitive disruption that occurs primarily in ages 65 and up, and the older you are the more likely it occurs. Age also affects recovering cognitive abilities. And they said it can occur in younger patients as well, especially any predisposed to other mental diseases like Alzheimer's. I don't know your age, but it'd be worth checking out. Its something to do with the anesthesia if I remember correctly.
FlappysLady81-- I can relate to that also. It's very unsettling. I have gotten lost while on a walk in a different neighborhood and had to call my husband to find me on my phone gps and tell me whether how to get to my car. I was to frustrated and confused to find myself on my phone map and figure it out by myself. Crazy crap. I have a sense of security knowing my hubby can find me if I get lost and/or confused. But of course it's an awful feeling if I get to that point.
CACambell, I agree with you. I went from working for 35 years and many of those years multitasking with family and kid life to not.... Huge changes. It's taken me 2 1/2 yrs plus to come to some level of "okeyness" - can't think of the word lol. Just did my lumosity 'daily workout'. They have a short free trial and then a limited free 'workout' which I do. I am trying out crossword puzzles now to keep the brain juices /neurons synapsing going.
As far as a time frame for getting approved for disability the key to a judgement in your favor seems to be medical records. Without extensive medical records about your disabling condition the judge will have nothing to go on. So make sure you are talking to your doctor specifically about the condition that has disabled you and get every test out there that is available for your condition. Also it may be helpful to have a witness available for your conference if you have to file an appeal. Having someone, your employer would be great but a reliable family member would do, to give testimony about how your condition has affected your ability to function in work and home environments helps the judge gain a better understanding of the effect of your illness. Also, you can apply for disability while still working so you can go ahead and start the process before you reach the point that you have to resign. Good luck!
Hi Everyone, The Fibro Fog gets me worse when I am tired. I make sure I call it that so that I am less hard on my self. The worst is when I loose the word I am trying to say. People's names float off into the fog on a regular basis. I have tried all sorts of electronic reminders and tools but those only work if you remember to set /check them. Even a simple list you need to remember to take it with you. That is how I found this app. I was looking for a medication reminder. Wishing you all a clear day.
Fibro north, I am so so,upset with myself for a ?fibrofog? moment this morning. After taking gatrillion blood pressures in my 30 years of 'nursing' I got the reading wrong this morning when taking my hubby's blood pressure. I inverted the numbers and then some and this along with multiple memories issues throughout each day and problem with getting the correct words to come out of my mouth really shook me up. I feel devastated. I feel like such an idiot and not in control that I just don't know what to do with it.
Sandibeach, I do not know what to tell you. Fibro fog is tough especially when it messes with your self confidence. You need to hold on to the fact that you are still a bright intelligent woman. Through the fog you are able to see the mistakes you make and correct them. I was told by a freind once that those of us who are good at what we do find it harder when we need help or have a problem. I think we have to work at not being embarrassed. I am still working on this. The energy it takes should be used to find a solution that works.
I read a study that these services like Luminosity and others were not effective in improving memory. It was as recent as last year. I don't understand myself how they cannot help.. I subscribed to Luminosity a few months. and i thought it made my mind quicker. I was becoming quite disappointed when I discovered on a real test that I scored below someone my age. That had never happened to me before. The doctor felt that a lot had to do with being sick and the medications that I was on. I became very interested in this subject and had them explain in detail what everything meant. I had a few months before started staring off into space or walls just thinking. Not really looking at anything. But I would sit there not really being aware of anyone or anything around me. I was just deep into my own thoughts. I was not able to recall things that were simple. Could not remember the word I was trying to say. Those type of things that would happen to me a couple times a year was happening every day. I was scared I was losing my mind. I worked at a nursing home and I was surrounded by people who couldnt speak, didn;t know who they were. That happening to me scares me to death. But in the end thinking I have any control of the outcome is crazy.
I have horrible memory issues. My cognitive states has been in a steady decline over the last few years, along with my general well being. I'm not employed and I haven't been for almost two years however I can relate with how embarrassing it is to have your cognitive state turn to mush. I honestly can't remember now what my memory problems started out as but I struggle with remembering to everything from remembering if I hate breakfast/lunch/dinner, to if I took medicine or not, to where I'm going and what I'm supposed to be doing that moment, day, or week. I drive by my destinations (and that's if I don't drive 30 minutes in the other direction... yes its happened). I write appointments down or copy them over incorrectly if there's even the slightest distraction. When I'm mid conversation it's like my brain clicked delete, and I'm at a complete loss for words. Sometimes I jumble everything I'm trying to say into one word and I sound like mush mouth from "HEY HEY HEY It's Fat Albert!". Don't quit your job unless you absolutely have too though. It will only make you feel more confident about the fact that this illness is winning. It's embarrassing and it is frustrating, but I've found humor to be a good way to cope with it. Try to make light of situations by making a joke or simply smiling and laughing and continuing on with what you were saying. Your frustration and initial embarrassment only makes your brain go into overdrive and gives it another thing to get off track with. Your brain is capable of some really amazing things and rewiring it is one of them. I'm sure you already to something of the sorts, but I've turned into a notes and reminders everywhere type of person! Disability can take anywhere from 6 months to year(s). I applied last April/May and I was denied for everything, appealed, and waiting for a judge to come across my case. It's different for everyone. Depends on your diagnoses, and what your doctor actually accounts for in your medical record. Good luck, and stay strong!
June, I agree with a lot of what you are saying. Well all but too mention a few. I think you should work as long as you can. I am disabled and at home. Work was the most fulfilling thing in my life except family and number one being God. But when you lose work, you lose a parl of yourself that you like. You lose the part of yourself that gets away from your everything else. I know that sounds funny. But for a while, my marrage really suffered. We didn't talk to one another. Why not? Because we saw the same things, talked to the same people for the most part. Getting away from one another allows you to have something to say to each other. Plus work makes you feel so good about yourself especially if you like your job. Their are so many days I wake up and wish I was going to work. That has to be my number one dream. So work as long as you can. I encourage it. I thought about it and thought it was best to stay home. Once you stay home, I think your health declines more. But that is my opinion.
You are right about disabilty. I can take a long time. I got it right away because mine was due to an accident. But I was about to lose it, and I had to go throught the same process to try to keep it. I lost the first time, and I had to appeal it. Then I went before a judge and I won. I think having a lawyer really helps if getting disabilty is more important to you then getting all the back pay. But when it comes to the judge, what I found was, he did not want to go down the facts of the case like I had this xray and it showed this. He told me he already had that before him. He wanted to know how this impacted my life. So there is the oppurtunity for this man or women to show empathy. So if you can really put that before them, I think that is good to keep in mind. At least that is what I found. I don't know why I am talking about this. I don't know if anyone here is looking for disability. Well, I hope everyone here has as good a day as possible. Best wishes
My doctor just gave me a sample of Nuvigil for my sleepiness during the day. Its used to treat Narcolepsy. It has helped with my brain fog immensely. The cotton has been removed from my brain. Its amazing! I noticed a huge difference within an hour of taking it. I highly recommend talking to your doctor about this med.
My newest memory usage is misspelling words I'm writing or typing. I've used the keyboard since high school, by touch & not looking. Now I find myself stopping midstream of back tracking to correct. And if I'm not doing that the wrong words are coming out my mouth! Lol when I imagine what I'll be like in 10-15 years, my kids can just say I reverted to baby talk! 🙏🌼
I just started going back to school for a second baccalaureate degree.... It's way harder. I never had problems in school except with chem and philosophy. I am in chem again because I didn't take it witht last undergrad but still. My brain is functioning so differently. It's tough. It's tough for me and tough to explain it to those close. Whether that's my boyfriend, best friend, family or co workers.
I also am having memory issues, I forget things,and when I am talking I just can't remember words. It is very frustrating, to say the least. It seems like it has really gotten worse in the last 6 months. I never thought about it having something to do with my Fibro. Sometimes I wonder if it's all the pain meds that I have to take. That's causing it, I used to be a really good speller but not anymore. Lol It gets embarrassing when your with people and you just go blank can't remember what you were going to say or a word,number. I am going to have to talk to my Neuro about it.
Weezie, I know that my anxiety medicine adivan makes my memory issues worse. I take it only when my anxiety is awful, which is quite often. So I would talk to neuro about possibility of your meds making memory worse. It's all a gamble you know. You take pain meds for pain but then makes memory suffer. Guess it's all a balancing game.
Blessed & Weezie, my Ambien was making my brain more sluggish, and so does melatonin. I rarely use either anymore. But I'm also sleeping lousy, waking every 1 1/2 - 2 hours. Just this morning my hubby asked me something and when I went to respond the word in my brain wasn't coming off my tongue... It was broken marble word that took three tries before the word came out right. It was similar to stuttering, which I've never had a problem with. And omg... when I'm interrupted mid sentence my thoughts fly of in space, and sometimes I never remember them, like juneapple. 🙏🌼
I have been getting worse. I am 57 and so try to blame me on my age. My daughter suffers from fibro. She was diagnosed about 4years before me. I was diagnosed in 2006 but did not get approve for disabilitie until 2009. My daughter receives disability also. My fibro hits my legs and neck the worse. I refuse to take a lot of narcotics due the fear on of become Addicted to them. My advise to you is don't give up. Having.a friend to talk to is wonderful. You will need post it notes and help from family and your husband. Be brave.
I guess it's something that we all are going to have to except, and hope and pray it doesn't get any worse. Julianna529 I am so sorry that this happened to you. Have your parents taken you to a Dr yet? I hope that you are recovering and back to normal. Will be praying for you.
Julianna, I'm sorry you had this happen. I'm sure it was scary not remembering 2 days of events. Like Weezie suggested, I hope your parents take you to see a neurologist, one who specializes in migraines. I've never heard of amnesia symptoms with migraines. But it could be more common than I know. I'll be praying for you. 🙏🌼
I have issues with memory as well. It's awful, I went from running daily operations and legal billing in a law firm to having a nervous breakdown at work because of anxiety and stress. I've been out of work for 9 mos now. It feels weird because sometimes I cannot articulate what I feel or want to say and it just comes out as nonsense. I get so worked up about it then the anxiety/panic attacks start up. It's like a never-ending cycle of bad things that happen all at once.
Dalyay I am sorry that you are having all of this hitting you at one time. My daughter has anxiety and if she let's it get out of control it just has to run it's coarse. Thank God she realizes she needs medication to help keep her under control. I will be keeping you in my prayers.
Colleen & Dalyaya, I've experienced what you have both described, just not as severely as you Dalyaya. And it is frustrating to say the least. Lately, for over a month now I've noticed I do or say the opposite of what I intend to. At first I refused to believe it was happening but then my husband started noticing things. It's actually caused arguments of him accusing me of deliberately doing so, and me trying to get him to understand it's totally unintentional. He used to tease me about getting my right and left mixed up... Now it's reality, and no laughing matter at all. This week at Mayo the doctor confirmed it. I was doing the opposite to his instructions. I'm very apprehensive of finding out what's causing this in September, when i return to Mayo. 🙏🌼
I suffer from fibro fog. Will be in the middle of a sentence and then boom! It's gone. Totally forget what I was saying or avout to say. Also noticing more short term memory loss. If I don't write it down, it's gone forever.
I have noticed that I can be talking to someone and completely can't remember the word that I'm trying to say, last month in my Dr's office I was trying to say the word shunt and couldn't remember for the life of me, he just blew it off he was only interested in getting my pain meds wrote out.
Lanfair, I received my disability using an attorney within 6 mos. It was hard, I had to call my mortgage company and try to work with them. Eventually I filed for BK Chapter 13 to keep my house. I have a long history of depression so that helped my case. Eventually they added Fibromyalgia to my list of illnesses along with anxiety disorder and panic attacks. I wish you luck with your job.