Learn from patients with pain similar to yours

CatchMyPain Community and Pain Diary App to manage chronic illness

Mentruation pain and fibro

Sep 14, 2016 6:36 AM

Hi my name is Landi, I live in South Africa and I am 45. I'm also new to the group. Most of our stories are the same from what I read on this site. I have been sick and in extreme pain for the last 2 and 1/2 years. Was eventually diagnosed with fibromyalgia in January this year. I would like to know if any of you have had extremely painfully menstuation pains. My Mirena was removed end of last year and becomes of my age and hormones I can not use any protection with hormones. Since then my menstruation is back and the last couple of month the pain increases every time. It feels like contraction pains and it brings me to a complete standstill I can not do anything, and no medication seems to help only warm water bottle. Is there anyone with advice?

Sep 14, 2016 7:11 AM

Hi. I have fibro as well and it seems to make menstrual pains excruciating. I have korean ginseng tonic and this helps alot with nerve pain and warms the body. I d also recommend B6, B12, fish oils, green mussels or (glucosamine)Curcumin, vitamin D, Magnesium cremes and breathing exercises to calm the nerves. Then sit comfortably and distract yourslf with a good tv series of movies ;) dont take pin meds as I ve got asensitivd stomach.

Sep 14, 2016 7:18 AM

Thanx 'taraisis' so glad I am not the only one . I will try the ginseng I do take extre B6 and B12. πŸ’•

Sep 14, 2016 10:11 PM

I am on the birth control pill and never get off! So instead of getting my period I don't have not for over a year..I couldn't handle the pain and was over emotional almost depressed so that's what I do! It's not great advice as I am sure it's not healthy and probably harming something but my doctor said as long as we get regular ultrasounds done of my female region I should be okay! It's great no period no cramps no PMS!!

Sep 15, 2016 12:24 AM

fibroffighter, you are definitely not alone here. The ups and downs of pain for us is never consistent nor predictable. I am finding though diet, supplements, sleep, stress, excercise, driving could affect whether i have a bearable or an exhausting day/night. I m also testing out hypnosis videos on youtube to induce sleep. It s weird but hearing soothing voice is calming when i m struggling with the pain alone ;) oh and this app and amazing warriors here are so supportive ;)

Sep 15, 2016 12:45 AM

During that time of the month I always find a hot bath with some neroli and chamomile essential oils helps. Getting lots of rest and stretching is a must. Loose clothing and a bowl of hot custard (I know it sounds weird) also provides comfort...

Sep 15, 2016 9:56 AM

Extreme pain is not normal. I have endometriosis as well and that can cause pain in the abdominal region also. Things that hell me with what i have are hormones and surgery. Look it up. More women have it then know about it.

Sep 15, 2016 11:22 PM

Thanx everyone! It's so nice to finally have someone to talk to that know how you feel. I will try all your suggestions.

Sep 16, 2016 2:10 AM

I can relate to be taken off BC because of age and hormones - risk of blood clots. But for those who have problems which have been solved or even hid by BC, it can be a shock having a natural cycle. Not great on top of the Fibromyalgia.

Sep 16, 2016 5:09 AM

I've definitely found I have an increase in symptoms and pain during my period. I've always had heavy symptoms around this time but since being diagnosed and over the past few years it's been more obvious. Due to high blood pressure ive been on the mini pill for the past few years but what I'd give not to get my period!! Got it right now and definitely flares things up. If dealing with daily pain, fatigue, cognitive impairment and ~100 symptoms over the past few years isn't weren't enough! Haha. We must play the hand we're dealt. There is so much I'm grateful for and always people better off or worse off so we got to do the best we can. 😊 With any new pain of obvious severity I get it checked out medically... I wouldn't want something missed just by blaming it on 'Fibro' πŸ˜‰ Thanks for all the tips ladies.

Sep 16, 2016 7:16 AM

Now I'm in tears. Think everything is just to much for me now and you all are so hopeful and excepting. I don't want to feel this way for the rest of my life!!!???

Sep 16, 2016 7:59 AM

Just take a deep breath and know that you are not alone. Your emotions will be heightened when your pain level increases. The trick is to have a GOOD bad day. Take it moment by moment and just do the best you can each day.

Be patient with yourself and make sure you take care of your fundamentals - MOVE (light stretching and relaxing walk in fresh air) EAT (lots of lean protein with good fats and in regular intervals) SLEEP (do not compromise on your 8 hours!)

Hope you feel better...sending love and light πŸ’

Sep 16, 2016 4:49 PM

Bravesnow has definitely said all the good points. I agree! Self care and lifestyle is important for those with any pain condition. We may think it's aways going to be this way but we need to hold on to hope that it will change, that we will manage better in the future, that our pain could lessen / go away. I'm ready to accept if I need to be in pain for the rest of my life but I'm also going to fight for the lifestyle and life that I deserve, to make the most of the situation. Gentle hugs. We are not alone in this, even thou we may be socially isolated from the pain / low energy

Sep 16, 2016 5:37 PM

I'm so sorry to read how you are feeling, I'm in the same boat with you today.... Had to go back to bed today. I had considered posting about just this situation and you beat me too it ... Hang in there and thanks to everyone posting suggestions ... Fibrofighter gentle (((hugs)))

Sep 21, 2016 9:24 AM

A small amount of blackberry wine with moist heat (pass or bottle). You my dear are entering perimenopause from what it sounds. Hugs love & prayers for patience and strength to get through it! πŸ™‚πŸ’•πŸ™πŸŒΈ

Sep 21, 2016 10:28 PM

I am new here and am.loving that I found such a supportive group of people! It's nice to feel validation for my pain from reading the posts.

I have just recently gotten fibromialgia and was lucky enough to be diagnosed quickly.

My pain is the worst so far during my periods. I will try some of the suggestions here!

Sep 21, 2016 11:09 PM

Hi Landi and for everyone's thoughts.

I am 48, have fibro. I am on my second mirena. I don't think this one has helped. The pelvic pain has increased tremendously. Right now my body is in a bad flair post Lupron treatments for endometriosis and laparoscopic surgery removing one bad cyst and right ovary. It was confirmed that it appears to look ok in my pelvic area. Ends up I don't have endometriosis.The pain is still there after 4 months, even the right side. Plus currently dealing with pelvic, back, eye pain and migraine pain. I have read a few times that people think the fibro gets worse around their periods I really never thought about. Pain medication is not helping and wonder if it is making depression and anxiety worse for me.
I am waiting to see a pain clinic.
I have problems with constipation and it gets really bad around my periods. That can cause me a lot of pain.
I to am happy to have my electric heating pad for these tough times.
Flappys, do you drink the wine or rub it on your pelvis πŸ€”πŸ·

Sep 21, 2016 11:10 PM

Should of been. Thank you for everyone's thoughts.
πŸ™ƒ

Sep 22, 2016 3:23 PM

Landi, I am 51 and in menopause. I would probably be done if I had not had my thyroid out 16 years ago and my periods stopped for 10 years.. It's back now, although it's so irregular I can't keep track. I haven't had it in 4 months and it came this month and the cramps could knock over a buffalo... LOL!!! I can't wait to be done with this crap... Hope you get some relief. Flappsylady gave you good advise. When I was younger my Mom would give me a shot of blackberry brandy and a heating pad. I think the alcohol just made me not care that I was hurting but it really does make it barable.. Hang in there, Hon, you don't have far to go!! {{{hugs}}}

Sep 22, 2016 10:12 PM

Oh drink the Wine. Tomorrow is my 13th year anniversary for not drinking. I think it's better for me this way, but tempting 😬

Sep 22, 2016 10:17 PM

Happy 13th anniversary for not drinking!!! Congratulations! πŸŽ‚

Sep 22, 2016 10:58 PM

Beets, you are a strong fearless warrior!!! Congrats on your anniversary. I just had my 25th annoy off alcohol! We ROCK😎😎

Sep 22, 2016 11:15 PM

Annoy=alcohol

Sep 23, 2016 3:26 AM

You BOTH rock!!! It's hard to kick habits like that. I used to smoke cigarettes for years. I never smoked in my house though. When I became disable to the point where I wasn't going out at night to hang out, I quit smoking and I also wasn't paying $8 a pack!!! They're a lot more now but I still don't smoke and actually can't stand the smell. Although, if I'm at a BBQ and drinking and someone is smoking then I'll take a drag here and there. (Shame on me... LOL!!!) but once the party is done, I don't think about it any more and also only smoke the equivalent of one cigarette the entire day so it's not so bad: Happy Anniversary not drinking ladies.. Kudos to you both!!πŸ’•πŸ™πŸ»πŸŒ»πŸ˜Š

Sep 24, 2016 10:58 AM

Thanx again everyone for the support and advice. I will definitely try the suggestions. So glad I found this group, brings me so much comfort that I am not alone. Lots of hugs! L

Sep 26, 2016 7:39 AM

I have the same problem. And anything that messes with my hormones makes me feel worse on every level. The pain causes me to pass out whenever I'm on my period. I can't work because I'm technically disabled from the pain. In the 4 years I've been in pain ,the only thing that's helped me is essential oils for pain.

Ready to start relieving your pain?

Join Community