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Migraine buddies

Jul 23, 2017 8:35 AM

The only thing that helps my migraines is a tripan. Botox, topamax, cetafly, advils don't work. I always say they might just take the edge off. I suffer from chronic migraines for 35 yrs but the last 5 are really bad. Does anyone feel the same as me? I started seeing a migraine specialist but I'm not that happy with her. Going to switch soon. Any thought

Jul 23, 2017 9:28 AM

I have migraines about one a week so I know how you feel no medice helps mine I just have to rest until they go. I would definitely switch docs if your not happy, I'm here if you need to talk you can pm me anytime!

Jul 23, 2017 3:04 PM

I've dealt with daily headaches and chronic migraines for twenty years and change, and like you, never really found anything to work well. I would pound handfuls of naproxen to take the edge off, clear my vision, and stay functional. The neurologist that was trying various meds gave up after a series of failures and a few mishaps and sent me to a headache center, where we tried tailoring a bit more.

Still have the daily headaches which I expect to never be rid of (a couple head injuries with concussions when you're a kid will do that to you), but the episodic migraines are down from several a week to a few a month with a combination of topiramate and amitriptyline for preventives, and almotriptan and zolmitriptan for reactives. Not a 100% success, but good enough for me with everything else going on. I still keep my eye patch handy for the days where everything I see hurts, because I can't afford to slow down more than I already have.

The specialist made it a point to say that amitriptyline and topiramate work moderately by themselves, but there's a marked improvement when using them in tandem. I'm inclined to agree based off my experience, but everyone responds differently.

Here's hoping you can finally find some respite, or at least get another specialist who's willing to listen to your attempts thus far and come up with another approach.

Jul 23, 2017 4:10 PM

I use kratom for my migraines and it works wonders for me!

Jul 28, 2017 11:22 AM

I am so sorry that you have been going through this. I was diagnosed with my first migraine at age 10. I am 23 now and the past 3-4 years have been quite hellish. I usually end up in the ER 4-5 a year. One thing that helped is my neurologist prescribing me torodol injections for at home. They really really help to break up the migraine pain and allow your body to rest and work on feeling better. I've tried several different triptan medications. I am currently on imitrex. I have the tablet form for a mild to moderate migraine. Then an injection for severe atracks. I am also on reglan to help with the migraine and the nausea.

I am having my third round of Botox injections today. My first round worked wonders, second round did nothing. So I am interested in doing a couple more before I make a decision to keep getting poked or not.

Have you seen a neurologist? I would highly recommend doing a lot of research on them. I used the website "healthgrades" to look up reviews for neurologist in my area and I found a wonderful one.
Best of luck!

Jul 28, 2017 11:25 AM

One other thing that helped me was 400mg of magnesium everyday. I buy it at Walgreens for pretty cheap. I didn't think it would work but I did notice a slight difference.

Jul 28, 2017 3:05 PM

I have frequent headaches. Before medication they were a good part of just about every day. And I say headaches because I have about half of the tension headache symptoms and half of the migraine symptoms. So no one wants to label them one way or another.

I went to my primary care for them and she told me that it was all in my head... Like I know it's a headache. She told me to suck it up and everyone gets headaches. They kept getting worse, and at this point I was about to change PCP and so I sent a message asking for a referral to a neurologist. She sent over a made up diagnosis... Never having treated or believed my headaches were not just regular headaches.

My neurologist put me on Lyrica and it actually helped decrease the pain and length of headache.

I also take naratriptan and aspirin with caffeine. Due to medication interactions, aspirin is the only OTC pain killer I can take, also great because my doctors seem to all just ignore the widespred chronic pain.

If you're not happy with your doctor, I would definitely switch. She might not have the knowledge bank you need to decrease the pain. I hope that helps!

Jul 30, 2017 8:34 PM

U need to ask a neurologist to rum a routine MRI scan. I had one and found it wasnt migranes it was in fact a build up of fluid behind my ear puttin* pressure on my brain. This was about 7 years ago and boom I'm now actually suffering major migraines and the only things that's slightly helping is topriamate and sumatripan bit still spend many of days in bed with them unable to do anything.

Aug 03, 2017 10:01 AM

I haven't ever been treated for mine. I have had them since I was 9 and I am currently 21. Every doctor I go to kinda shrugs it off. :/ I have had them everyday since I was a kid

Aug 03, 2017 11:33 AM

@supernaturalspoonie I know what that's like. I finally got treated for the headaches because I demanded to see a specialist. But even now I'm not being treated for the rest of my pain. Feel free to pm me if you want to talk.

Aug 04, 2017 6:51 AM

I had my brain mri and got sent to a neurologist who specializes in the brain. Looking at the mri, he whistled, looked at me and said,"you've had one hard life and massive headaches haven't you! "
I think my jaw dropped. I'd never had anyone look at a test and just confirm how I feel. Apparently my headaches are forming lesions in my brain, plus I have leftovers from 6 different concussions. Sadly he hasn't done anything to fix it yet, he wants a full body EMG on the 10th (cringe) Hopefully after that maybe I'll get some help with my headaches.

Aug 04, 2017 7:03 AM

Wow. At least the doctor told you the truth. Hopefully you can get some solid answers from your EMG. Prayers for you. 🙏

Aug 08, 2017 10:25 PM

Hey I'm with migraine buddies too we share similar thoughts there too as for you ana I have similaritiesthat freak me out let's say were sisters in the same boat in Jesus name AMEN! And join the club! Are you in ? I'm in!😇😇😇😎😎😎😎💞

Aug 09, 2017 1:35 AM

Got a call from my dr. Insurance approved botox injections, so in about 12 hrs I'll be at her office getting 30 shots in the head and neck. Glad insurance came through before my trip. Sure would be a lot less fun visiting my son and his family if I couldn't see from pain.

Aug 09, 2017 7:14 PM

Suffering cluster headches and migraine for over 20 years tried everything doc could throw at me and last year my husband grabbed migraleve whilst in pharmacy and it actually helps. I need to take yellow to start then pink 4 hrs later for it to work but surprisingly it does with a lie down in a quiet dark room.Hope find something to help ease them

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