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Migraine

Nov 24, 2014 3:50 PM

I'm so tired of the migraines and pain. It is starting to make me depressed. I can't imagine living like this for the rest of my life. Any one else have migraines? I'm starting to feel alone

Nov 24, 2014 4:18 PM

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Nov 24, 2014 6:00 PM

Ashley, I'm not sure if what I have are migraines since the headaches seem to be connected to damaged nerves and other neck issues. But the pain nonetheless has similar symptoms. So, please don't feel alone because you're in good company here :-).

Nov 24, 2014 7:39 PM

Ashley, my migraines are paralyzing. I woke up with one about 1 a.m. last night and it killed me all day. Absolutely awful pain. Mine sometimes last for 3/days. I am praying this one does not last that long...I can't function!! So you are not alone I feel your pain and pray you get some relief.

Nov 24, 2014 7:39 PM

Yes, Ash- pain sucks! I get migraines at times with my fibro too. All is too much often, but the days that are "better" I thank the universe and enjoy! I hope you have some relief soon.

Nov 24, 2014 8:30 PM

Thank you all, makes me feel so much better! Also, jesswoo76 I think I gave fibro too. My doctor and I talked about it quite a bit but he hasn't given me a true diagnosis. How did your doctor go about diagnosing you? Since there isn't really a blood test to confirm a lot of doctor don't even want to believe in it!

Nov 24, 2014 8:34 PM

Blessed - I am the exact same! I get them for 3 days and of course comanpied with vomiting! :( sometimes I even have to go to the doctor to get a shot of demoral about once a month which has been the ONLY sign of relief that I have ever received from medicine! Has yours gone away?

Nov 24, 2014 9:06 PM

Still thumping....I cant imagine vomiting with a migraine....I feel for you on that for sure! I have had a respiratory infection so I was up coughing all night. Thought my head was going to explode...it's an awful pain but thankfully I don't have one everyday... is your pain any better?

Nov 24, 2014 9:22 PM

Ash-I went to several docs, specialists, and blood tests. They also trigger point test and look at the whole picture.Took awhile to figure out what was up. I definitely do think that some docs diagnose Fibro before really testing and ruling out other things. migraines are often a part of fibro. I would be curious to see your pain charts. Do you have pain anywhere else? Any other physical symptoms?

Nov 24, 2014 10:23 PM

Blessed - Not doing much better. I've been in bed for the entire day!!!!! Hopefully we will both get to feeling better!!!!

Nov 24, 2014 10:34 PM

Jess - most of my pain is in my neck, shoulders, and back. On worse days I will get very achy in other places too like my legs and arms mainly in my knees and elbows. I've gone too many differnt neurologist and specialists they never figured out the cause of my migraines just gave me new medicines and said see you in 6 months so I never got down to the bottom of it! I've have had a lot of blood work but nothing too out of the normal.

Nov 24, 2014 10:39 PM

Yes Ashley, I can sympathize with your pain. I have had debilitating migraines since 13, with nausea, vomiting, lights in my eyes, noise, sound sensitivity (especially the ultra high buzz of florescent lights). I had a stroke at age 22 due to them in combination with birth control which led to therapy just to be able to speak correctly, or use my right side again, then two mini strokes (TIA's in my later 20's). In my late 30's I had a hysterectomy due to them as they were horrid the week before my menstrual cycle and during - I cannot have HRT though, because of the stroke!

Now in my 40's to keep from getting 7 day long headaches that have kept me in the dark, lying on ice packs unable to even do dishes or landed me in the hospital, I get 10 occipital nerve block shots in the back of my head once a month at my neurologists, and I receive dry needling (acupuncture without leaving the needles in) once a week or every two weeks at my physical therapists I go to each week just to try to keep them at bay.

I have a tens unit here at home that I use frequently for the neck and shoulder pain, the fibromyalgia that seems to go hand in hand with the headaches, along with the neuropathy that is residual from the stroke. I have just found this app and now it's a matter of remembering to do it daily- I have zero short term memory LOL...my life is run by calendars, notes I take (if I don't put them in a safe place ) and the kind nagging reminders of friends and family who love me :)


Don't feel alone hun - migraines are out there - I have been disabled because of them for 20+ years. Whatever you do, you can't let the depression win out...it's also something that many of us have had to battle with but there are far too many blessings to cave <3

Nov 24, 2014 11:13 PM

Ash, you are, as you can see, definitely not alone... I have migraines usually 2-3 times a week. They come up from my neck, behind my left ear and then BAM.... Migraine!! Nothing at all (medication or otherwise) helps me get rid of them or ease them. I, too, have had them last for 3 days and you just can't function. No light can come in, the noise level needs to be zero and the nausea is a nightmare. You are in good company here and we are all here to help each other through... Hang tough, we can do this.

Nov 24, 2014 11:27 PM

Wow thanks you all! It's hard because I don't know any one else who has them so as you could understand I don't have anyone who really gets me when it comes to this because with a invisible illness people tend to forget about how we really feel. Glad that I can talk with some people who can relate :) and also I was about to start birth control but now it sounds like I shouldn't!!! I've heard some people say it makes the head aches worse, I guess I should stay away from it!

Nov 24, 2014 11:35 PM

Check with your doctor. Explain all of your symptoms, advise of the migraines and see what they say. I would feel that birth control could add to your problems.. Like I said, I'm here, keep in touch

Nov 25, 2014 12:58 AM

Thanks! I have a doctors appointment on dec 2nd. It's always so hard to get in around the holidays! But I'll try to post what he suggest for me! Hopefully I don't have any bad ones before then!

Nov 25, 2014 9:18 AM

I'll be thinking of you on 12/2. I have a doctor's appointment that day too. Botox shots to try and manage my headaches. My cranial nerves 5, 7 and 11 are constantly misfiring and causing daily headaches. At this point it's just the pain intensity that changes from "I can handle this" to "I want to rip my head off". I'm hopeful that the Botox will help. The diagnostic nerve block lasted exactly 24 hours 😞.

Nov 25, 2014 12:06 PM

I find sitting alone in pain in a silent dark place all the time depressing, and the stress of depression leads to more migraines.
But there are a lot of us hanging out in the dark.

I've experienced migraines for longer than I can remember. A few years back I had a 22 month stretch during which the pain never left, just intensified and weakened. Now I'm in another cycle where the headache will be manageable for days and even go away for a beautiful bit, but it comes back in less than 24 hours.

When the pain is extremely intense to the point I'm pressing in my eyes to try to make it darker than black and I can barely squeeze a thought through the agony, I try to remind myself it isn't always this bad and won't always be this bad. Or I just say something like "ok ok ok ok ok" to myself over and over until I fall asleep or get used to the new level if that's the most I can manage.

I think I hate it even more when the pain is bad enough that I can't handle the light, sound, and smells of outside and feel exhausted, but it's not so bad as to distract me from boredom, frustration, and loneliness. Therapy with a GOOD therapist has been a lifesaver, and I’ve seen every type of doctor imaginable. I've done several types of meditation, acupuncture, herbs, kept diaries, read books and articles, participated in online chats and forums, and written some of my own stuff, too. Some things helped in the past, some things help now, some things feel good but don’t get rid of the pain, and some things were completely useless. I have to say, finding the right therapist and the right doctors can be like dating, but it’s unbelievably important. I didn't learn to “doctor shop” until recently, but seeing people who listen, care, and don’t give up makes a huge difference.

Over the years I've found a number of resources on migraines and pain. These will get you started:

https://www.facebook.com/NationalHeadacheFoundation
http://www.thedailyheadache.com/
http://migraine.com/blog/
http://migraine.blogs.nytimes.com/

Nov 25, 2014 3:17 PM

Thanks, let me know how the Botox goes! I've been considering it myself. These headaches are taking over my life. I'm sure you all understand!

Nov 25, 2014 3:19 PM

I'll have to look into a therapist. What type of things do they do when you go there? And thanks I'll check out those websites!

Nov 28, 2014 2:36 PM

Hi there been reading about coping with your pain and suffering i know it is difficult when doctors can't seem to help you and you feel lost. I have suffered similar for 8 years botox has assisted and muscle therapy neck pain and facial pain i had teeth removed starting back 15 years ago in believe that was problem. Gone to multiple special doctors very limited help. Stay strong maybe massage therapy hydro therapy pain management group could help. I know how you feel that's why I am here just like the others. In pain or share their wisdom to help others.

Nov 28, 2014 5:55 PM

Yes exactly! I'm so glad I found this app. It makes me feel so much better :) I posted something about acupuncture earlier, heard any good results from that?

Nov 30, 2014 8:31 PM

I feel your pain i have debilitating migraines and cant get out of bed for weeks

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