Learn from patients with pain similar to yours

CatchMyPain Community and Pain Diary App to manage chronic illness

Miscissy

Feb 11, 2016 10:36 PM

I had a car accident coming up on 19 years ago. I have had thirty surgeries and a long list of complications. My current diagnosis includes severe renal failure, partially blocked kidney, neuropathic pain in my xylphoid area of my chest, chronic pain in my lower back left leg and hip, fibre myalgia, and depression. I also have had my bladder removed and have an illeo conduit. Out of this list, the neuropathic pain is the worst. I am currently taking lidocaine infusions and injections of lidocaine and steroids directly into the xlphiod area where the pain is. I have a port a cath in and go for weekly morphine and zophran treatments along with a list of medication. It is a full time job being sick. You are constantly going from appointment to appointment and I find I am physically, mentally and emotionally drained. I see my family doctor weekly, along with a Urologist, Nephologist, Phycologist and have regular Reflexology Therapy. Every time the phone rings, I think, What next!

Feb 14, 2016 7:56 PM

Wow! Girl I am glad you are alive! You have been through the ringer. You are amazing, I know you get tired and frustrated and fed up with the pain, but you are a PAIN WARRIOR! CARRY ON! Hope you continue to share with us and we get to know you. Love and Blessings, Terri

Feb 15, 2016 12:39 PM

Gentle hugs Miscissy! I'm so sorry you've had to go through such trauma. I can't begin to imagine what you've gone through. The fact that you have and are still fighting says you are one strong woman!!! I can relate to constantly having appts, as I've avg 8-15 a month for the past 16 months. I have multiple chronic issues that predominately started in 2007-2008, and snowballed downhill since 2010. It's like when they fix one thing it causes another complication. I have to fight really hard to not give in and give up some days. I try to find ways to stay occupied mentally and physically, to improve what health I can and stay positive as much as possible. We are here for you, anytime. You'll be in my thoughts & prayers! Hugs!!! 🙂💕🙏🌼

Ready to start relieving your pain?

Join Community