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MNEW TO AP- This Is My Story

Aug 17, 2017 1:25 PM

Hi, my name is Tina. I don't really know where to start so I guess I will give a little history maybe. I am 46 years old, have 4 adult children (the youngest being 25 years) and I deal with pain that doctors cannot seem to explain every day. I have had a total hysterectomy about six years ago and I thought that would take care of the pain that was in my back but it did not, it got worse. The doctors have said that I have IBS but for the most part that is the only true diagnosis that I have. I have had x-rays and MRI's done on my back neck and hips but for the most part they have all turned out normal. I do have a minor herniated disc and a bone spur in my neck. From what I understand of the MRI reports on my back I have some arthritis and degenerative properties. I have been told that I could possibly be a hypochondriac because I cannot find any reason for the widespread pain that I have. I even had one doctor that said "you are a little bit crazy, we need to start with the psychiatrist." Needless to say I do not go to those doctors anymore. I hurt in my neck, shoulders, left side under the ribs, hips and lower back, hands legs and feet. Now they are possibly thinking that it could be fibromyalgia. My mother had fibromyalgia for many years. One thing that I am sure of is that I am sick of doctors not believing what I tell them. Before I had my hysterectomy I had suffered for about seven years and gone through five or more doctors until one day a friend of mine gave me the name of her gynecologist and I went to him. He did an ultrasound and told me that he could not understand why any other doctor did not find that I had severe endometriosis. The following week, six days later, I had a complete hysterectomy. That is how my journey has been with my widespread pain. It seems that no doctor can explain why I live in constant pain every day. I cannot do my housework like I used to, I cannot play with my grandbabies like I want to and pain consumes my day. Sometimes it is bad pain and sometimes it's not so bad but it is always present. I would really like to know why I hurt. They are putting me through a roller coaster of trying different medications and that is driving me crazy. There is much more that I could say but this is quite a bit to read so I will close for now and I will be seeing all of you guys in the community. I am so glad that I found a place that I can discuss what is going on with me with people that may understand.

Aug 17, 2017 1:31 PM

Hi 👋🏼 Welcome to the group I'm sure you will find lots of support here💕 I really think you might have fibromyalgia, I have Fibromyalgia and your symptoms sound a lot like mine. If you ever want to chat Personal Message me 😘

Aug 17, 2017 1:37 PM

I tried sending you a PM but your using the old version of the app, to pm you need to download the PainCompainion app 😊

Aug 17, 2017 1:39 PM

Thank you so much Lola, I am not sure how to personal message on this app yet, I would love to talk with you.

Aug 17, 2017 1:41 PM

I cannot seem to find it in my App Store. I use the Apple system, I have an iPad

Aug 17, 2017 1:47 PM

I use a I pad too, Search for PainCompanion then click on the left hand corner where it says IPad only and change it to I phone and it should come up.

Aug 17, 2017 1:57 PM

Were you able to find it?

Aug 17, 2017 1:59 PM

You found it! I have sent you a PM 💕

Aug 17, 2017 2:17 PM

Hey Tina!

I am Jane😀 So glad you joined us!

I can relate to the not being able to do stuff you used to be able to do😤 I am 21 and can't drink, party or be wreckless like my peers (not that I specifically want to do it anyway😂). It sucks but we are here for each other.

Screw the doctors! I hope you will find someone who believes you and can help you.

Best of luck❤️❤️

Aug 17, 2017 3:01 PM

Thank you so much. Partying is overrated anyway...lol seriously though, that must be hard for you.

Aug 17, 2017 3:54 PM

Welcome to the community. We are very supportive. I have fibro and osteoartritis.

Aug 17, 2017 5:29 PM

Welcome to our Awesome group. I hope everyone made you feel welcome ☺ I'm sorry to hear how much pain you are in. I just had a hysterectomy done 7 weeks ago but still have my ovaries. So I can relate to that part. I hope your pain ease up for you. ☺☺ if you need to talk pm anytime 😊😊

Aug 17, 2017 5:31 PM

Thank you all so much. Yes, everyone has made me feel welcome. Today is a bad day.

Aug 17, 2017 5:39 PM

sweetpea1970 sorry today is a bad day! I hope tomorrow's better 💖

Aug 17, 2017 6:11 PM

I was looking at my paint chart that has the graph on it and I don't quite understand why the timeline looks like it is not matching up with my entries

Aug 17, 2017 6:19 PM

Hmmm I'm not sure 🤔

Aug 17, 2017 10:23 PM

Hi Sweetpea1970,
Welcome to our group! I suffer with fibromyalgia and osteoarthritis as well as numerous other things. I also suffer with ibs. I am sorry you are in so much pain! PM me if I can help! Gentle hugs🤗

Aug 18, 2017 5:44 AM

@sweetpea1970. I'm so happy everyone made you feel welcome ☺ I hope today is a good one for you. That pain chart is kinda a pain lol. I don't use it much. ☺☺☺☺

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