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Mobility crisis - wheelchairs/scooters

Sep 12, 2015 5:40 AM

Hi all, I've been a little absent lately. Life is being kinda hard. My walking seems to be degrading at a frightening rate. I use a wheelchair at supermarkets and shopping centres now but have nothing for personal use. I spoke to my OT yesterday about this and she informed me that the criteria for getting one on the NHS is now so tight that I wouldn't get one. Because I'm dependant on my crutches now to walk outside, and I have to use one inside, which the OT is changing to using a walker downstairs as I can't carry things and/or am compromising my safety with my current methods.
She was very sympathetic and understood the real need I now have, but it's out of her hands. I hate this system! Because I technically have working limbs, albeit crappy ones, I don't qualify. I have to get worse before I get considered.
She did suggest I buy one if I had some spare money (lol, no chance!) and look out for second hand ones online. *sigh*
I'd rather not need one at all! I hate that I can't see on higher shelves or reach much. Clothing stores are not designed for chair users. And it costs to borrow the chairs in our local centres. It's not enormous but it adds up.
Does anyone have any ideas or experience of this system? I'm not currently in receipt of pip (disability), my assessment is next week.😣
I just want to be able to go for a 'walk' with my kids. Rather than walk a short distance, very slowly and with constant stopping, before having to give up and go back home. To out that in context, the distance can be walked by an able bodied person in the space of maybe 2 minutes max. It takes me around 20 minutes. I find it painful and exhausting.
So please, if anyone can suggest possible avenues to search etc, I'd be very grateful.
P.

Sep 12, 2015 7:19 AM

PJB, I've heard other people suggest checking with a local church. We have one near us that takes donations then opens their doors once or twice a month so people in need can come and get what they need for free. Some even have programs that can help you in buying one.

Good luck :-)

ScayAnn

Sep 12, 2015 11:06 AM

I know at one point I speed being able to walk, but didn't yet qualify for a wheelchair. I ended up borrowing a walker with a seat from a family member, and using it like a wheelchair. It's not as good, because you can't move yourself. I always needed someone pushing me, but my hands were useless anyway.
I hope you can get a wheelchair asap!

Sep 12, 2015 2:00 PM

PBJ if you qualify for a walker ask your therispt if she can get one with a seat. At least if you need to rest while you are walking you can sit down for a while.

Sep 12, 2015 4:09 PM

Not sure where abouts you are from but I also need a wheelchair whenever I leave the house and I just bought my own from shop on ebay! Was only £60 and was here within couple of days!
I had a fight on my hands just for an appointment for crutches x

Sep 12, 2015 5:45 PM

Thank you all for your replies.
The walker with a seat is a pretty good idea, although my OT was reluctant simply because of the many hills and valleys around here. I live in Cornwall, UK. She didn't want me to lose control and end up having an accident down one of our local, rather steep (in places), country roads!
Mrs Flossy, that's good to know. I will keep my eyes open. Think I just need to get through this next week and then I can relax a tiny bit and have a look. Long week coming up;
Tuesday includes a long drive to find a care centre in the middle of Plymouth in an area I don't know even slightly, get to my pain clinic appointment which I only found out about last week from a weird phone message in a machine voice. Hmmmm....
Thursday is my PIP assessment, which is being recorded at home. Need to ring them Monday to offer directions.
Friday my special needs son has a GP appointment to get another medical certificate for three months whilst his ESA is ignored some more. *sigh*
And at some point I need to print out my pain diary, inform DWP about extra diagnosis' I had confirmed last week and find out why we haven't had so much as a confirmation of my sons claim.
One day, I'll have a stress free, non exhausting week ahead. One day!
You must live in a different area to me MrsFlossy, we self refer to the physio here. He saw me twice in all. At the first appointment he practically threw them at me. As soon as he realised I had fibro, he gave me exercises to follow but stated that there was 'nothing he could do to ease the pain of fibromyalgia'. Second appointment was just to see if I was doing the exercises.
P.

Sep 12, 2015 5:49 PM

I'm from Newcastle hunny and don't kniw anything about self redure tbh hunny! Hard enough having an appointment with anyone lol x

Sep 12, 2015 7:15 PM

That's be ...go to your Doctor for a motorized scooter prescription then after you have that prescription call your health insurance and tell them you have a Dr prescription for one... do let and keep us informed

Sep 12, 2015 7:20 PM

Meant to say that's BS

Sep 12, 2015 10:15 PM

PJB, I completely understand, having gone to a cane, walker, & scooter in stores, since February. We went to a DME supply store to look at walkers and scooters. Omg, scooters are expensive! I found a walker with the seat. Not only were the handles adjustable in height, the seat height could be adjusted as well. I told my hubby I wanted to think about it so we went home. That night I found the same walker on Amazon for $40 less ($99.00). It's very hard walking for me, and my place is so slow my hubby loses me. I told him I need to put a leash on him. Lol I'll be praying for your upcoming week. 🙏🌼

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