Hi all, I've been a little absent lately. Life is being kinda hard. My walking seems to be degrading at a frightening rate. I use a wheelchair at supermarkets and shopping centres now but have nothing for personal use. I spoke to my OT yesterday about this and she informed me that the criteria for getting one on the NHS is now so tight that I wouldn't get one. Because I'm dependant on my crutches now to walk outside, and I have to use one inside, which the OT is changing to using a walker downstairs as I can't carry things and/or am compromising my safety with my current methods.
She was very sympathetic and understood the real need I now have, but it's out of her hands. I hate this system! Because I technically have working limbs, albeit crappy ones, I don't qualify. I have to get worse before I get considered.
She did suggest I buy one if I had some spare money (lol, no chance!) and look out for second hand ones online. *sigh*
I'd rather not need one at all! I hate that I can't see on higher shelves or reach much. Clothing stores are not designed for chair users. And it costs to borrow the chairs in our local centres. It's not enormous but it adds up.
Does anyone have any ideas or experience of this system? I'm not currently in receipt of pip (disability), my assessment is next week.😣
I just want to be able to go for a 'walk' with my kids. Rather than walk a short distance, very slowly and with constant stopping, before having to give up and go back home. To out that in context, the distance can be walked by an able bodied person in the space of maybe 2 minutes max. It takes me around 20 minutes. I find it painful and exhausting.
So please, if anyone can suggest possible avenues to search etc, I'd be very grateful.