Learn from patients with pain similar to yours

CatchMyPain Community and Pain Diary App to manage chronic illness

Modifying the pain scale for other uses

Nov 14, 2016 9:30 PM

With my sensitivities getting so bad in April, new ones popping up every day and holiday season hell fast approaching my boyfriend asked me to make a scale similar to the pain scale to rate my reactions to things. He wants something easily understandable and clearly defined like the attached pain scale.
It's a god idea and will help our communication since my brain shuts off and i can't find words besides bad and not ok to describe my reactions when they happen. However I'm drawing a complete blank as to how to modify the attached pain scale to be used with chemical sensitivities.
Any ideas?

Nov 15, 2016 12:01 AM

1 st draft. What do you think?
0 - reaction free
1 - reaction is very mild, barely noticeable. Most of the time is not recognized as an actual reaction.
2 - minor reaction. Annoying but ignorable.
3 - noticeable and distracting, takes great effort to push it to the background.
4 - distracting and cannot be ignored, hard to focus outside the reaction
5 - moderate reaction, with great effort a task can be competed.
6 - strong reaction, concentration is lost
7 - severe reaction dominates reality, however there is awareness of a reality beyond the reaction
8 - reaction takes over, communication suffers greatly
9 - communication might not be possible, the reaction becomes everything
10 - complete loss of function, possible loss of consciousness and or seizures

Nov 15, 2016 2:35 AM

That sounds like a good scale

Nov 15, 2016 3:44 AM

I think it is spot on!!! I mean really!!!!!!!!!!!! I hate the happy faces at the doctor's office I really want to throat punch someone whenever they ask me to use that scale because it is so far from accurate! Yours is much better...if that is your 1st draft I can't wait to see your final draft!!!💜💜💜

Nov 15, 2016 6:39 AM

From the feedback I've gotten from the chemical sensitivities group I'm in it might be final draft.
I hate that stupid happy face scale. What the hell does it even mean?
I came across this article and it's what I've been using. It's clear stages. The really blurry pic is the same thing just a picture of it i found on Facebook.


Nov 15, 2016 6:41 AM

Hi gotobef, I like the scale a lot!

Nov 15, 2016 7:03 AM

Gotobef that article is great, I love the explanation of the pain scale. When I was in hospital last year, when the nurses were doing the rounds some would ask for pain on a 0-10 scale where as others would ask 1-3 scale.....on the same ward as well! Can you imagine being unwell in a hospital bed and being asked 2 different scales from 2 different nurses on the same shift????
Whoever invented the happy face scale must not of had any pain! Iver never seen a more stupid scale!

Nov 15, 2016 7:17 AM

I saved the link and the pic on my phone so when asked I have a reference that isn't in my head and that I can show the person asking.
I can't imagine trying to figure out 2 different scales while being in the hospital

Nov 15, 2016 7:27 AM

I've saved the scale as well because a lot of the time I'm asked when I'm not totally there because of the pain I can show them that.....apparently I become super polite and extremely apologetic when I'm in a pain that is very severe! My sister see me in child birth and couldn't believe it and when she visited me in hospital last year when I was out of it she said the same!!!
I don't really remember so I think she's making it up lol

Nov 16, 2016 7:51 PM

This is really hope! Thanks for sharing it Gotobef!

Nov 18, 2016 11:39 PM

Gotobef ! Right, Spot ON!

Nov 19, 2016 5:34 AM

This is so great!! I've been talking about my frustrations with the pain scale this week! It's so awesome your boyfriend wanted this. I am sharing this with my husband and boss. Thank you!!!

Nov 19, 2016 7:03 PM

Wow, this is perfect! Thank you so much for sharing. I'm going to translate it into Spanish for some of my friends as well, because it seams even doctors don't get it.

Ready to start relieving your pain?

Join Community