I woke up with a lot of fatigue and pain today. Managed to take a shower and my CRPS foot felt a sharp burning pain, sensitive to the hot water and just taken off Capsaisin patch. Does anyone find that the Capsaisin patch helps them? I don't know if it's adding or calming the pain. I already used most of my spoons for today and it's 9am. Sigh.
Invisiblepain28, one of the first pain management tools my doc suggested I try was capsaicin cream. I have nerve pain. I found the cream to be Seriously annoying. Putting a hot rub on burning, hot pain was kind of moronic. Did not work for me, just made the pain worse. Not the same as a patch, I don't know how those work.
I made it through a tough day. The shower pain subsided with a few hours of rest and a lot of tape. I chose to walk instead of use my knee scooter at the market because I didn't want to aggravate my sacroiliitis and I thought I could do the walk. But my CRPS foot got pretty painful at the market and I found myself mad again about how so many other people take their health for granted. I organize my market list by route because each step is significant and if I can't find something or miss it on my route, I can't go back for it. It's really not a sadness, it's more that I occasionally realize how much my pain dictates every part of my life when I try not to let that happen. I felt defeated as I pushed myself but did not "succeed". So did I fail? Or is it for no reason except that chronic pain is difficult and often unpredictable. I am not a reflection of my pain. Who I am, inside, is not defined by my pain level. I will try this new mantra this week!
This won't help, but it might make you laugh. Some time ago, I decided to try capsaicin ointment for some severe leg cramps. I had heard so many stories with positive results that I excitedly, and liberally, applied the ointment to both of my calves. My optimism soared, for about twelve seconds. At the thirteen second mark a slight burning sensation began. By the twenty second mark I was pretty sure my legs were on fire. By thirty, I was howling, crying, flapping my arms, and frantically calling out to my husband for help. My husband read the box while I repeatedly checked just to be sure that my calf muscles weren't actually melting off of the bone. As it turns out, there is a "slight chance" of allergic reaction. As I sat on the side of my bath tub massaging dish soap into my burning, angry flesh I solemnly swore that I would never again discount the advice to "try on a small area of skin".