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Moving towards "better"...

Oct 29, 2015 1:07 AM

Met the first doctor to EVER give such a thorough examination and talk and ACTUALLY listen. I left his office in bad pain due to the pressing on muscles and measuring tenseness and palpating trigger pints but I left smiling because I feel like I have a voice again. He is putting the broken puzzle pieces together. He modified my meds and I'm laying in bed tonight with 40 percent less pain than normal. I'm still insomnia ridden but I'm trying to get to a pattern. I think of my muscles would stop moving it would be easier but at least it's not as painful. For the first time in over a year I'm optimistic. Thank The Lord I found this amazing doctor.

Oct 29, 2015 1:28 AM

What a great feeling to have a Dr that wants to own your case.

I constantly want to escape this uncontrollable feeling of the plague of insomnia. What kind of pattern are you trying?

Oct 29, 2015 6:55 AM

I'm trying to remember to take my meds at 9 so by 10 I'm ready to sleep and to get up every morning at 6:30. I'm afraid I may have to have a sleep aid though. Even tired and in bed on time I only slept about 2 hours because of jumping aching and cramping. But I'm still on such a high over finding a doc that CARES. it's been a long search and my insurance company wanted to send a nurse to my house - they suspected doctor shopping. They were shocked when I said "I am!!" I am trying to find someone that cares and will explore what is going on instead of writing me off as Fibro and depression. They didn't know what to say....

Oct 29, 2015 6:55 AM

LBloomfield, I am so very happy for you that you found a doctor that is both thorough AND listens to you!! I have no doubt you will be getting more answers and more relief. A 40% decrease in pain is amazing. I hope that it continues for you. Sending you {{{Hugs}}} and prayers for continued relief. 🌻🙏🏻

Oct 29, 2015 10:14 AM

LBroomfield, that's really a blessing! I get severe cramps in my calves at night. Before laying down I massage voltaren gel into them. If my whole legs is involved my doctor gave me a muscle relaxer; Parafon Forte. Maybe you could ask your doc about a muscle relaxer. Hugs & a prayer you'll continue to get improved pain levels! 🙏🌼

Oct 29, 2015 10:37 AM

LBroomfield I am so happy for you! What a blessing to find a doctor like that. Cheers to you for never giving up. I'm praying for answers to all your questions and health concerns. Blessings ✌️💜

Oct 30, 2015 5:56 PM

He gave me Klonopin for the muscle spasms. Mine always start with spasms then cramp. He believes it all has a lot to do with PTSD from my GYN letting me bleed to death after my hysterectomy - I was literally begging people in the ER to help me. I knew I was dying. Blood was gushing off the gurney and onto the floor. It was so bad instead of trying to clean with me in there they swapped me to a different room - three times. I know how it feels to die and it's not bad but the thoughts...leaving your kids, husband, parents, grandparents...I've always taken care of everyone and I know they can all manage without me but I was so afraid to hurt them by leaving. An anesthesiologist saved my life. I will never forget hearing them say "we got no heartbeat" I couldn't see anymore but I could still hear and my vision came back for a moment and he was in my face telling me "you have to fight! Don't you just slip away, fight for your kids!" And I managed a "please don't let me die" remember seeing two nurses on each side and each had a bag of blood squeezing it into me. My brain has damage and the doc said my muscles had started to die to and they are just showing the damage from that. he also thinks my magnesium may be depleted and my HGH is suspected to be low. He said if the HGH is low, getting it regulates will make a big difference in the fatigue and ability to heal. Keeping all of y'all in my prayers - OH ALMOST FORGOT, I am Native American - your ethnicity MATTERS in how you respond to meds. BUT the FDA only requires a certain number of people for a drug to be tested on - the doc said he would imagine the number of Native Americans in those trials were minute if any. Something to keep in mind. Did I mention I love this doctor? He checked me from head to heel and LISTENED he even asked my husband questions!

Oct 30, 2015 7:05 PM

Omg! Well I'm so glad they saved you too! What a horrifying experience! I'm very glad you have such a good doctor. And I pray you never have to go through that type experience ever again. 🙏🌼

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