Learn from patients with pain similar to yours

CatchMyPain Community and Pain Diary App to manage chronic illness


Nov 24, 2018 6:16 PM

I was diagnosed 2 months ago but have had pain since the early1980s one dr said i have fibro now all of a sudden i have MS to what the goddess !!!!!! So now with in the last 2 months i have a neurologist that my dr. Referred says i can only take Avonix which put me in the hospital 2 weeks in a row cause after each injection my sister had to call ems to pick me up cause both times i was having mental breaks i lost an do not remember 4 days the first week 3days the next and the freakin dr. Wants me to keep taking it oh no i will not and he says that is all he can guive me cause of all the paperwork it takes to get that drug

Nov 25, 2018 2:49 PM

I'm sorry to hear this. That does not sound right about the medicine. Is there another doctor you can go to?

Nov 27, 2018 9:31 AM

I made an apt. With a new dr younger an female but nuroligst apt. Are 3 months out so im back to no help or drugs till end of January

Nov 29, 2018 12:46 AM

Please look into the Wahls Protocol book. The doctor that wrote it has MS and she put herself in complete remission with diet changes. There is also a facebook group. Prior to her diet changes she was in a wheelchair and on typical MS medications. I use the diet for my chronic pain, leukemia and autoimmune issues it has done wonders for me I have been able to get off almost all of my pain meds. Also welcome to the group and I am sorry you are dealing with everything.

Dec 01, 2018 9:28 AM

Gail, I'm sorry to hear what you're going through. I agree that the reaction to the meds doesn't sound normal, nor does the uncooperative attitude of that doctor to try something else. I'm glad you have a second opinion scheduled. I have many medications I am super sensitive or allergic to, meaning I choose to take as little as possible and only on severe pain days for pain meds.

You can go to my profile and see many things I'm dealing with in chronic illnesses, but not MS. I have found dietary changes, recommended by others in this group, and relaxation, gentle stretches, and warm showers helps me get through my days. I'm never pain free but I've learned to tolerate my pain better over the last 5 years. Hugs love and prayers your new doc will find a beneficial treatment, as well as you finding different ways to cope! Just remember, take everything one day, one hour, one step at a time. We are all different so no one thing works for everyone; just be willing to try new things to find what works for you. 🙂❤🙏🌼

Dec 07, 2018 9:43 AM

I also use the Wahls Protocol book and blend the 3 levels since I have other food intolerance. It was a life saver. Don't call it a diet, it is a life style change.

Ready to start relieving your pain?

Join Community