It seems over the past couple of weeks I've seemed to of developed a muscle twitch. I've occasionally had a twitch once in a blue moon going to bed but it's developed to every night when I'm in bed and it's now starting to happen thro the day as well. It started off being one of my arms or one of my legs but now it also seems to happen in my sides. I have no warning when it will happen or which part of the body that will twitch.
Is this just a random thing? Or is there something more happening? It just seems one thing after another at the moment 😳
It's happened a lot today, I've been quite anxious today as I'm at my aunts for a couple of days, that in itself is fine but we took a couple of her grandkids and my Jo to a soft play area so it was hard being out in an area I don't know plus my aunt drove.....I'm not a back seat driver just a motion sick passenger!!! Even prochlorperazine didn't fully take the nausea. Even now sitting typing this out my legs and arms have been jurking, even my sides just below my ribs. I'm not sure why I'm getting these?
I'm not real sure why I get them. I feel like it's connected to my fibro, since that is muscular. AlwayZinpain actually mentioned the name when I described what was going on; she's had the same thing lots longer than me. My doc said she was right but it's not anything serious, just annoying.
I found "tremors" listed as side effects to both gabapentin (Neurontin) & pregabalin (lyrica). I am on both & have muscle jerks & tremors . Interesting. My doctor increased my dose of Atenolol to help reduce the tremors. Helps. I know this Atenolol is a heart/BP med but somehow has a connection with tremors. Any scientific input from Dr Marc or Daniel?
Gabapentin, Lyrica and elavil have all caused me to jerk. Bad enough they cause weight gain, suicidal thoughts but when you are hoping to go to sleep and bam your whole body jerks, not fun. Since I stopped those meds no problems. Good luck to you.
Tamtoad I'm not on either of those, they didn't work but gave me all the side effects! The jerking in my legs I've notice now and again over the last 6 months but my arms jerking and my sides jerking are in the last few weeks and have gone from occasionally to nearly every day....that is for all of them, legs arms and sides....it doesn't have to be at night, if I sit or lay down for a while it'll happen. The side twitches are strange, I'll be sitting then all of a sudden the top of my body will jerk to the side of the twitch, I only go about 45° but it's noticeable if there is anyone sitting beside me or talking to me! It's just really annoying!
I am using an oil spray at bedtime allowing magnesium to soak in skin like a Epsom salt bath. Haven't noticed any changes. Fixing my leaky gut before I start anymore oral supplements. For when I do magnesium will be at the top of my list. Do you find Optisana a reputable supplier? The fibro manual recommends 300 - 900mgs at bedtime. Can be a laxative so careful with higher dosages. She recommends 1-2 scoops at bedtime of Natural Calm, a powder that when combined with warm water turns into highly absorbable form of magnesium citrate.This is also treatment for Restless Leg Syndrome.
Dr Liptan explains that magnesium is the relaxation mineral. It has calming effects on the brain, nerves & muscles. Most fibro sufferers are deficient in magnesium . It's stored in the cells mostly so generic blood sampling will not be accurate unless the testing is checked at the cell. This is done through red blood cells eval & hair analysis. TMI? I find it all so fascinating-- finally proof that there is truly something wrong causing our symptoms & it's fixable. Can't wait till I get to the fascia chapters. Dr. Liptan believes it's the irritated & over exited thus over used fascia (lining around muscles) that causes our fibro pain. She recommends all physical therapy be focused there rather than on the muscles. This seems in conflict to what information Dr. Marc has. He said fibro is not a facial based pain syndrome. Will now there is research that says it is and people with fibro are getting amazing relief of pain and become more functional after therapy that focuses on fascias stretching & release.
Im with u Tam 😚 its my no 1 supplement... it also lessens withdrawal 😊jerks and spasms... but🐫 physical therapy is also a must for recovery and retraining those muscles to keep working efficiently as poss.. 🤗 Yes its a good brand... i research and this one works well. I notice a massive difference if i stop taking them 🌹🌹🌹
I'm not on any of the mentioned meds, but Dr says I have one of the neurodegenerative diseases. ...my jerk, spasm, whatever started after my stroke. I was left side leg, arm and head when I was relaxing. Now it's starting to be left arm randomly swatting at invisible sky raisins. All progressing since April 25th.
That's awful ElentraVtra, have your doctors given you anything to help reduce your jerking/spasms? Do you take magnesium supplements? Magnesium can help with nerve functioning, fatigue and relaxing your muscles. Since I've been taking it my muscle jerks and spasms have reduced in intensity and frequency.
For me the magnesium supplement didnt work straight away, I noticed after about 3 weeks of taking the magnesium that the jerks and spasms had reduced in both intensity and frequency. When I first came on here many of the people advised magnesium both the supplements and Epsom bath salts (they have magnesium mineral in the salts naturally) so I take the supplements daily and I have a bath with Epsom bath salts around twice a week (a hot bath with one to two cups of the salts and soak for 20 minutes, that's to give your body to chance to absorb the salts to relax your muscles)
It's worth a try and if you find it doesn't help then you just stop using them.
Sending you positive vibes and warm healing hugs XX
I haven't gotten to tell Dr about it yet, hoping to on the 14th. I take magnesium, D and calcium. Blood work said mag is ok but it's taken 2 years to get D up to almost normal. But then again, most Alaskans area D deficient. Lol huge lack of sun. I'm really wishing he'd just give me a name for what's wrong. People don't understand neurodegenerative. They want a label. So do I really, I'd like to have some idea of what is coming. For now, I guess I just randomly wave. Thanks for being here everyone.