Magnesium, calcium, vitamin D, vitamin B's especially B-12 and potassium could all be a factor. Have they ran a complete metabolic panel on you? For a little while I took Lyrica then gabapentin and even elavil seemed to help. After some time all of those drugs actually made leg twitching worse. Seems like the only things that help me now are: Epsom salt baths, massage therapy and stretching. It is a feeling like none other. I know that when it happens it consumes you even more than pain. I try to make sure that I am always well hydrated. Being dehydrated causes a host of issues from headaches, muscle spasms to urinary infections. I do not think that there is one answer. I just start down a long list of things that may help. I always head for a long hot Epsom salt bath to start with. Hopefully one of the things I mentioned will give you relief.
Do the twitches hurt or sting? It's not usual for ALS twitches to do that. Also with ALS you would probably notice muscle weakness as well. I went through the same worry and had these things pointed out. Migraine, diabetes, fibromyalgia (me) all can cause these fascillations. But so could a bad few weeks of stress! Best of luck!
I have those everyday. I blame them on my fibro. They happen a couple times a minute actually. More when I'm sleeping. If I excersise or walk a good distance my legs or whatever muscle was worked will rapidly twitch the instant I sit down and rela . The twitches are usually small and unnoticeable to anybody who doesn't happen to be looking at the part of my body. Though some are big and cause me to jerk a body part very obviously. I was diagnosed at 16 with fibro. I'm now 23 and don't know much about it since all I got was a diagnoses and nothing more... I blame my twitching on fibro
Firemustang, Mayo did an EMG on my legs and hands. They said they were some delayed reactive responses on my right side, but they think my twitches & tremors are the result of a medicine, or combination of. Waiting to see another doc next week.🙏🌼
Flappsy, I am praying that when you go back to Mayo that they are able to find the cause and give you relief from the tremors and give you peace of mind without causing you to have more pain. You're in my thoughts.💕🙏🏻🌻
My cav muscles hurt so much I got tons of knots in my legs, I'm still able to with= due to my Med, I stand a lot when I sit than get up my ankles won't bend= lastnite I got up to use restroom, I hurt so bad n sat on toilet n rubbed my cavs for like 10 min= cymbaltia 30 mg took all pain away than it got up to 60 an in few days pain was back= I knew it was to good to last! Just awful
Or physical anxiety? Sometimes, I feel as if I am literally trying to jump out of my skin - I can't get comfortable, I can't stay in any one position for too long because it feels like something is building up painfully like a cramp is coming. My breathing become fast and erratic. I often burst into tears. I actually for a long time had no idea it was anxiety until my doctor told me. Lorazepam is the only thing that helps me.
Wow. Our symptoms match. My legs are like stone except when they are twitching and that turns to cramps. The little muscles I my feet and ankles do it too. I'm on cymbalta 60. It stopped working for me too. But I get violently ill if I miss a dose. Did you twitch before Cymbalta? I'm at my ropes end the pain is excruciating
Cymbalta is hell to withdrawal from. I took it for years. It didn't work for me. I hope you all get some relief! I don't have twitches, my shins and calves ache as well as my feet. They feel hot and my ankles swell. My doctor told me I need to lose a few pounds lol like I didn't already know that. I've gained weight over the past several years as my pain has gotten worse and my mobility has lessened. I was still in pain when I was thinner, can't remember if it was as bad as it is now. Of course I can't remember what I ate yesterday so that's not saying much.
I get full body twitches that were worse when I was totally exhausted at night which was most nights. The twitching or spasms were so bad it would svare me. My Dr told me I had restless leg syndrome. I couldn't believe what she was saying and in the end I told her I think she is a great dr so I would trust her. After starting the restless leg syndrome medication to my surprise and disbelief it has stopped.
Cymbalta is a heck of a drug. I've been on it for years, and yes, withdrawal is horrible. It's worse then withdrawal for narcotics, and it lasts a lot longer. I was put on it years ago for depression and anxiety, and they hoped it might help my burning pain. Nope. Definitely didn't help my pain, made me numb and angry in addition to depressed and anxious, and made me gain a significant amount of weight - 40 lbs. I've been trying to get help to get off it for years, but no one has done helped me. Finally, I saw a new psychiatrist on Thursday who gave me a new diagnosis (BiPolar2) and put me on a new medication (Lamictal), and hopefully I will be weaning off Cymbalta soon.
You guys are really making me think about this RLS. I think I might have it. For years I've been writing this off as anxiety induced, and had at least one doctor verify it, but I'll have these awful episodes where I will literally feel as if I am jumping out of my skin. It's always when I am trying to sleep. Sometimes it's my legs and arms, and sometimes it's just my legs. It feels like something is building up in my legs, making them tighten, then when I can't stand it anymore -a few seconds- I have to move to a different position and it all starts up again. I usually take double my anxiety meds to make it stop because they will knock me out. It's really awful, and now I am not sure what it is.