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My doctor acts like I am faking the pain.

Nov 15, 2016 10:01 PM

I went to the doctor when the pain started almost three years ago at the age of 15. She did not believe me I was in so much pain in my rib cage. She just pushed really strong ibuprofen it just killed my stomach I got really sick from it so I had to stop. I have gone back to her because the pain has still not stoped I am three years into this. I have tried everything I can think of. I had to beg my doctor to take test (blood, X-ray, ultrasound) it showed nothing. I have every symptom of fibromyalgia that there is. And i have not brought that up to my doctor because every time that I go in she acts as if i am faking everything. I went in about 2 months ago because I had pneumonia and It was causing different chest pains than i have experienced with this other pain. She told me I finally had an excuse to have chest pains. What should I do? She told me she was going to refer me to a specialist I never did. I am an encredibly shy person so I hate bugging people. So what should I do I really can't take the pain anymore. 😭

Nov 15, 2016 11:05 PM

Ask to be referred to a Rheumatologist. You're symptoms sound like lupus symptoms or autoimmune disease of some sort. It's a long hard battle to get diagnosed but don't give up. It's something that needs to be treated asap if it is. Track all your symptoms even if they seem like nothing. Do you have joint pain, get infections easily, aka pneumonia, are you fatigued a lot, are you heat/sun sensitive, do you get rashes...

Nov 15, 2016 11:31 PM

I forgot to mention in this that I do have hoshimotos thyroid disease.

Nov 16, 2016 12:12 AM

Can you find a new doctor?

Nov 16, 2016 12:33 AM

Swith doctors and see a rheumatologist. I know the feeling of feeling like u faking it especially with fibro. Since 2008 i've been searching for a doctor and finally this year i found one who understamd as she 2 is diagnosed with fibro. Good luck!

Nov 16, 2016 1:13 AM

Hey, lemme tell you about myself first. I was born with all 11 disorders I currently have, my first memories are of extreme pain, at 3 years old I was already showing the signs of my disorders with an easily dislocated shoulder. I have a disntegrating spine, I used to be 5'10" but I have already lost as much off my spine as "normal" people will lose in their whole life. (3 inches)(and I'm only 26) I wasn't diagnosed with anything till I was 14, I went to 4 of the world specialist in fibromyalgia, they said I had the worst fibromyalgia they've seen for an 80 year old, let alone a 14 year old. And ever since, the #1 thing I hear from doctors/people, is that I am too young and pretty to be in so much pain all the time, I've been told my whole life by therapist, specialist, GMs, is that "I'm just lazy and need to excersize more", I have been told I need to "diet and I'll feel better"...it is a long hard process to find the right doctor, as soon as your doctor says you're faking something, drop that doctor. But there are good docs and when you find one hang on to them! You don't even have to tell the doc! Just call your insurance and get a referal to another one. (For GMs but if you have a good GM go thru them for specalists) And please forgive me for being super blunt and kind mean here but, this being shy crap, get over it, if you don't take control of your health now when you are this young you're going to ruin your own health, you have to be proactive and tough on these doctors, and you need to find one you click with now, get a handle on this now! You also need to be super honest about what you're feeling. Make notes, when you think of something, write it down so you can talk to your doctor later. I have told off and got many doctors fired, for telling me shit like that, most recently I've had a nurologist tell me I'm faking my siezures, even tho I have had over 10 seisures infront of other docs that say yes abosolutly she has epilesy, I had a grandmal seizure a couple months ago in his office and was taken by amublance to the hosptial and he still think my neruological problems aren't real! I've had him for 2 years, so it's not like I'm jumping doc to doc all the time when it doesn't work, if they're still helping you with the right medications or therapies that work. But after so long I'm done with him telling me they're fake, so I'm finding a new doctor. I've been thru it all, please head my advice, even if when you have to have a talk with your doc you sit in front of a mirror and reherse what you want to say over and over till you have the courage and then do it! Just make sure you do it! And do it now! Being shy with your doctors isn't going to get you the help you need, so get honest with them, strong polite wording gets thru to people better then any other way of telling them.

Nov 16, 2016 1:21 AM

Go to a different doctors lovely. Any doctor who acts like your pain is invalid clearly can't do their job properly

Nov 16, 2016 1:59 AM

If you feel uncomfortable talking to your doctors about your problems you can sit down and write out a letter telling them your whole story and just have them read it and then discuss any questions you have for them or they have for you

Nov 16, 2016 4:05 AM

Abbycakes you need to get over your shyness with the doctors because you won't get the help you need and they will continue to say you're faking. Keep a diary of everything....the diary on this app is so far the best I've seen and tried and my GP and pain specialist nurse love the graph it gives. But I absolutely love the community on here as well, it feels more like a family than anything else.
If after doing the diary and showing it to your doctor and they still don't believe then you need to change doctors.
When you have the pain your in and you're not proactively going in to the doctor and telling them there's something wrong and you need to be referred and have tests done they won't do anything for you and because you leave it so long between visits it's going to reinforce the doctors opinion that your faking it.
I know it's hard and I've always been a quiet and reserved person boarding on shy but I learnt a long time ago that if you're not proactive then things pass you by and you get forgotten and walked all over. You need to stand up and tell people how you are, how much pain your in and if you need help (asking for help is still my downfall, I don't like bothering people but I'm slowly learning that I have to if I want to get things done).

I strongly recommend that you keep a diary and the good thing about this one is you can write it as many times thro the day and it shows on the chart.

Good luck with your journey for answer and I'm sending you positive vibes and strength to stand up for yourself to get diagnosed xx

Nov 16, 2016 9:51 AM

Just a note too the thyroid disease you have is an autoimmune disease. Usually when you have one there will be more over lapping autoimmune diseases. Ask about testing Rheumatoid Arthritis, sjogrens, lupus. You're going to definitely need to push beyond your shyness to get what you need. Remember docs are paid to work for you. You're not bothering them. Do your own research so you're go into your appointments with some knowledge behind you. Docs don't seem to know much about these illnesses. I had 2 rheumatologists tell me nothing autoimmune was going on. An Internist diagnosed me within 5 mins of the appointment. It took me 2.5 years of active pursing to finally get somewhere with the docs. I was pretty sick by the time I finally got answers. Don't give up if you know something more is wrong.

Nov 16, 2016 11:02 AM

I had to find a rheumatologist on my own that treats fibro. Not all of them do. But most require referal. I asked my gp to refer me to the rhuemy I found.

Nov 16, 2016 11:09 AM

Abbycakes, you call that doctor and have them refer you to a rheumatologist. You're not faking your pain. Who in their right mind would want to spend all that time sitting in a doctor's office asking for help for something that doesn't exist?? Perhaps you could also check into a pain management practice. They will also send you to different doctors to find out what your dealing with so they can treat you effectively. That was just rude and obnoxious for her to say that to you when you had pneumonia. You absolutely HAVE got to be your own advocate. Keep a diary of what the pain feels like and where it is. How it changes with activities and rest. What makes it worse or better? This app is a blessing with the pain chart so you can keep these type record and print them out to show the doctor. I wish you all the best and hope that you find some help soon. {{{Hugs}}}💕😊

Nov 16, 2016 11:18 AM

Abbycakes, you should see a rheumatologist, and I hope you are under an endocrinologist for the thyroid. Too many primary care docs don't take thyroid issues seriously. Im sending you gentle hugs, love & prayers you find a doctor who will find the answers and ways to help you! 🙂💕🙏🌸

Nov 16, 2016 2:00 PM

BTW your doctor not giving you a referal that you requested is illegal, when you call your insurance for a new doc you need to tell them everything she has said or done, including but not limited to, her telling you your issues are fake, and refusing to send you to a specalist.

Nov 16, 2016 2:05 PM

Also patientslikeme.com is the best journal for any disorder not just pain, if you just read thought it it is easy to put all your records in. Including medications, and why they work or dont work, all your conditions, etc. When you are there click the menu and go to my profile, and do everything going down the list on my profile, they also have a huge and very friendly community, however I would also keep strickly a pain diary here, keeping track of just your pain will help any pain managment doctors you see.

Nov 16, 2016 5:54 PM

Abby, I had a similar experience. I needed to go to a few doctors till one found out I have Fibromyalgia. It feels good to know I am not getting crazy and that the pains are real.
Really, look for another doctor, one who takes you seriously.

Nov 17, 2016 2:08 PM

This pretty much explains how I feel about the naysayers. SMH. Sadly there are still way too many who.don't believe.

Dec 08, 2016 7:10 PM

Here's what I did to shut that nonsense down... the day before my doctor's appointment I took red, black, and blue Sharpie markers for each type of pain that I had and for one entire day I colored my body on my skin with those markers with lightning bolts and road rash, spiderwebs, concentric circles, arrows and constellations of referred pain. When my doctor entered the office I was stripped completely naked so he could see and comprehend the horror. It changed everything, when he realize that was just a single day and that every day was just like that. He called three others in the room and they took pictures to share with their colleagues and it transformed three departments in the hospital.

Dec 08, 2016 9:39 PM

Whatever you do - no matter how much he may deserve it - do not throat punch him. Just visualize it.

Dec 08, 2016 10:56 PM

Wow Sapphira what courage you have. That's Incredible. Way to go.

Dec 08, 2016 11:45 PM

Thx Gibber! That was in 2007 when when we knew a lot less than we know now and I had already been suffering for 3 years, and unable to work even part-time for one. You gotta know I was at the frazzled frayed end of my rope! The appointment before that one I actually grabbed him as he tried to walk out the door, blocked his exit, and physically shook him by his shoulders, yelling, "You are not taking my pain seriously!" so everyone could hear. He took some notes and scheduled me to come back the next week which is when he got my colorful birthday suit! It's funny now, but then, not so much.

Dec 09, 2016 9:34 AM

It's sad that we are driven to extremes like that to be taken seriously and get help. I understand the exasperation. I was at 2.5 years before I finally got them to take me seriously and it's only because my fingers turned blue Infront of my GP.

Dec 09, 2016 10:19 AM

You are all soooo inspiring! I lost all feeling in my arms and hands. I couldn't drive or write. This was still happening at my wedding. I could barely hold my bouquet. Who would fake that. My rheumatologist thought I was. I asked her "How am I supposed to get a job like this?" Her response was "Can you reproduce these symptoms on your own? " I left and haven't gone back. She obviously didn't read my reports from the Mayo Clinic which she sent me to twice! Next try is the Cleveland Clinic. The strength I get from you all motivates me more and more. Right now I am trying to heal my ankle that broke very badly in 3 places. My pain doc helped me after my surgery and then cut down all of my meds, even my RSD meds.

Dec 09, 2016 12:07 PM

Oh no that sounds awful. No one deserves to be treated like that. I'm sorry you went through that. Obviously something is very wrong. Don't give up finding answers. Ask to be referred to a Rheumatologist.

Dec 10, 2016 12:06 AM

I finally asked to be referred to a rheumatologist. I have been waiting for two weeks and nothing I will be calling again Monday. Thank you all for such incorriging words. I don't feel like I'm going crazy anymore.

Dec 10, 2016 12:34 AM

With the doctors you have to keep pushing them otherwise they think we're faking it. It's soo hard to find good compassionate doctors and even then those need to be pushed.
Stay strong and know you have the whole community here to back you up and hold you up when you need it xx

Dec 10, 2016 12:36 AM

I understand your shyness, keeping track of everything on this app and just showing the doc. is an easy way to combat it. on another note keep on top of the referrals and call them if they don't call you for an appointment. I had a referral and waited a couple weeks then called only to find out that my paperwork for the referral got missed placed, so I was not able to get an appointment until January, and that all happened the first part of November. Hang in there.

Dec 10, 2016 1:28 AM

You sound like me. Try Lyrica. It's saving my life and there is no dea bs

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