Hi RubyAdams. Did your doc say why they were stopping the steroid injections? Ive had fibro since appx 2008-2009. I get ESIs for the chronic DDD/osteoarthritis/bulging discs. They put them on hold until Mayo diagnosis my unknown tremors. I'm concerned he won't do the injx because my bones are now osteopenic/pre-osteoporosis. 🙏🌼
I have been told I have fibromyalgia for two years and the meds they have me doesn't aim to be helping the pain any at all it's getting hard two walk or to even sit for long or lay and at nite it's like no sleep at all maybe 3 hrs it's driving me crazy
I was diagnosed with Graves' disease in 1997, IBS since I was a little kid, hypermobility, lupus finally diagnosed in 2009, osteoarthritis, and Sjogren's diagnosed last year. Wasn't doing the greatest and then 3 years ago my Mom (best friend ever) became ill and my sister and I were constant hand-on helping take care of her. She passed away last year in March. At that point, I found myself in a tailspin going down. All the stress and not taking care of myself took a toll. A gigantic toll. I think I am finally starting to feel better just a bit, in my level of pain and in my overall general outlook.... I think the intensity of this has all been one gigantic flare from since Mom died 16 months ago. Maybe it is really settling down? Or is that too much to hope. This may be my baseline at this point. I have only felt better for 1 day... Yea think I may be jumping the gun?? Lol. I will grab onto anything better these days. It's fun to dream of.... Well, I hope everyone gets some sleep and some relief from pain....💤💤💤. Tomorrow is a new day.. Let's hope for a good one.😎
JustBcuzz, like you, I spent 2-3 years taking care of others and ignoring my signs of pain. Then suddenly I crashed and was unable to help anyone but myself. It's taken about sixteen months for me to have better days, where I can help minimally if able. But now I put myself first, because I'm not going to be able to help others if I don't take care of myself. Since last year I've developed sjogrens, hypothyroidism, dementia & tremors. It took months to convince my docs something else was going on besides just fibromyalgia; hence the sixteen months.
I just want to encourage you. Be thankful & enjoy every good day that comes, but be careful not to overdo. And when there are bad days, take it easy & let us help you through. Hopefully & prayerfully, you will begin having more & more good days that outnumber the bad, you and everyone else! 🙏🌼