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My rheumy just told me I was weird

Oct 21, 2015 11:53 AM

I told him that my legs and arms feel weak and I have to hold on to the walls to keep from falling first 30 min to hr after waking. My hubby has to help me back into the bed. He looked at me and said that none of that has a thing to do with RA or fibro. He acted like I was crazy and said, "You're weird!"
I asked for an order for a walker because the cane was impossible with hand and wrist pain. He told me that people with RA or fibro don't need a walker and that because I'm asking for one concerns him.

Oct 21, 2015 11:55 AM

I felt like he thought I was making things up.

Oct 21, 2015 1:11 PM

Maybe it's related to your know condition, maybe not. The important thing is that if you need a different walking aid then get one.

I would also suggest speaking to a medical professional as your symptoms may be related to medications or an undiagnosed ailment, which from what you have said maybe causing your hubby to be concerned.

I hope that you can get this situation sorted and that it turns out to be a minor complication.

Oct 21, 2015 9:13 PM

Sleepingbeauty, I was just dx with vestibular Neuronitis at Mayo last month, as the cause of my dizziness and imbalance. I started using a cane in January, but the longer I was on my feet the worse is get. My hubby bought me a wonderful rollator with an adjustable seat and handles off Amazon for $99 ($30-40 cheaper than anywhere else). I don't need it daily but I'm glad I have it for when I do. Hugs & a prayer! 🙏🌼

Oct 21, 2015 9:49 PM

What's vestibular neuronitis FlappysLady?
I have so much medicine that I take that I get concerned maybe it could be the cause. But I also realize that I'm hurting so bad when I have these issues that I wonder if its just part of that. When I woke this morning, I literally hurt from head to toe. It seemed that every muscle, bone and joint was on pain overdrive!.

Oct 22, 2015 6:08 AM

Sleepingbeauty, it sounds like you're in a flare with the atop over pain. I have noticed over the last 2-3 years that most of my vertigo spells are accompanied by sinus pressure, draining, and ear pressure &/or pain. I've only had a few vertigo spells but solo, and they're generally the worst. What's sad is my PCP referred me to an ENT to check for ear issues. He told me he didn't do those tests and would have to refer me to Atlanta, but he saw no reason to refer me because he saw nothing wrong with my ears!

I have to be careful with Tylenol because if I take too much it sets of my tinnitus. The Mayo docs are trying to say my meds are the cause of my tremors. But my hubby and I have researched all my meds and there are only a few with tremor side effects, and I've already come off those 2 mos ago. My tremor is only in my right arm most of the time, and mild... Until I grasp something in my hand. Someone in public mentioned "essential tremors" and we googled it; it fits the symptoms I'm displaying.

I hope you start feeling better soon! (((Hugs))) & a prayer for you! 🙏🌼

Oct 22, 2015 6:20 AM

Good morning Flappys, yes I can understand what you are dealing with now, that you have mentioned the words essential tremors. I deal with that in both hands, but the right is worse as well as my head, but that is only visible with stress. Have your PCP ever mentioned a beta blocker? I'm on regular inderal for both tremors and high bp, but it is a god send. For me, it basically stops the tremors for about 6 hours,

Oct 22, 2015 2:10 PM

Amanda, no one's dx me as essential tremors, but my hubby and I believe that's what it is. Just yesterday, I was waiting for him to get home and I turned my head to my left to see something, and suddenly it felt like my head was bobbing! I did it for him and asked if I was just imagining it and he said no it was occurring. As for a beta blocker I don't think they'll put me on one. I have borderline bp and passed out from orthostatic hypertension. The tremors don't bother me anymore, but they freak my family out, and bystanders. I can't tell you how many people walk up and ask if I needed an ambulance! Lol At least they're concerned. 🙏🌼

Oct 22, 2015 3:17 PM

Flappys, just from your description, definetly sounds like essential tremors. And yep, at least people are concerned.

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