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My womb hates me

Aug 12, 2015 4:59 PM

Hello. I am new on here, and I am in pain 70% of the time. On off bleeding since I was 15 (I am now 22) at one point I was bleeding for 4 months straight!
Trying to get my doctor to take me seriously - all I'm getting is pain killers and contraceptives offered to me.
My last scan was clear and I have been bleed free after my last bout of medication - until 2 days ago.
Now laying in bed with a heat pack trying not to cry and wondering if I'll make it to work tomorrow.
How do you deal with your pain?

Aug 12, 2015 5:03 PM

Ouch! I'm dismayed that your GP is being so offhand about a clearly serious problem. Have you had any referrals? Do you have specialists involved?
Can you change GP? That's the most obvious first course of action. If that's tricky, try a letter of complaint. Be 'irritating'. Sometimes it's the only way to get the results you need.
Gentle hugs,
P.

Aug 12, 2015 5:07 PM

Hello! Thank you for the hugs!
The last doctor I saw (who sent me for the scan) was a locum doctor who has since left 😢 he was awesome!
Lots of words have been bandied around like fibroids, scrape, endometriosis, back tilting womb.
And I have just started to be annoying! I am at the doctors twice a month now irritating them into referring me to a gynaecologist and for a laparoscopy. I have wrote a letter of complaint about a month ago and haven't heard anything back, might be time to get the local newspaper involved... Thanks again!

Aug 12, 2015 5:48 PM

TMI ⚠ attached to this post -
Are you in the UK snowbird? I feel your pain! I've been 4years and no answers! Other than its probably weight related. The pain I get (sometimes in my front sometimes back) in what I'd imagine are my ovaries some days is awful.
I've put on 5 stone as a result of fibromyalgia limiting what I can do. In my head I'd love to go walks with the dog, swimming, fitness classes with the girls but if I do that I might feel okay at the time but can suffer for at least a week.
I went for two ultrasounds but nothing shows.
My bits ended raw with the constant use of tampons then using pads well that caused more problems even with the use of bepanthem, I ended up into the world of menstrual cups and it's been sooo much easier, learned a lot from a very young girl on YouTube "precious stars pads"
Hope you get some answers soon xx

Aug 12, 2015 7:08 PM

Hi I'm 34 and have been dealing with bad periods and constant pain since I was a kid. I don't have the constant bleeding. Just pain.. and I get sick like have the flu. I have found that heating pads help alot and so do the medicated patches that they make. Have you had am MRI done or a pelvic ultrasound?.

Aug 12, 2015 8:35 PM

Snowbird, if you've complained already, maybe you should get a second or even a third opinion from a different obgyn. I'm 53 now. They took my uterus for dysmenorrhea at 35 & my ovaries at 40. I've had more problems from endometreosis to pelvic floor dysfunction and pelvic congestion syndrome. My advice if anyone starts talking surgery to remove your organs is to get a second and third opinion. Things have come a long way since mine was done. They should be able to tell a lot more without such drastic measures. You're in my prayers, that you'll get some answers and treatment soon! 🙏🌼

Aug 12, 2015 10:29 PM

Snowbird I am so sorry that you are having to go thru something like this. When I was in my 30's I started having problems with bleeding heavy, large clots. I had endometriosis, but my Dr refused to do anything because I was so young. I was in my mid 40's when over the coarse of 3 yrs I got my complete Historectomy,but first I had to have a DC, a yr later I had a Thermal Oblasion and DC, the following yr he did the Historectomy I had cyst on both overes each differ kind of cyst, chronic inflammation in my cervix. This was why I was in so much pain. I will keep you in my prayers that they will find out what is going on with you. Hugs

Aug 13, 2015 2:23 PM

Hello RJ! Yes I am in the UK. It's horrid isn't it?! All I want is some answers! I'm so sorry to hear that :( keep fighting!
I did read somewhere that being diagnosed for things like this can only be done by laparoscopy as scans are not accurate at all. I'm pushing for that next and maybe you should too? I'll have a look at the cup, thank you. I struggle with that as well when I'm constant bleeding, it's horrid. Thanks for your comment
X

Aug 13, 2015 2:25 PM

Hi Firemustang! I'm so sorry you're going through this. I do use heat pads as they do ease it, in conjunction with strong anti inflammatorys and opioids. I have only had a pelvic ultrasound and transvaginal scan done, pushing for a lap next! Thanks for your comment take care x

Aug 13, 2015 2:27 PM

Hello Flappyslady! Thanks for commenting!
I am planning to push for a lap and referral to a gynacologist. That doesn't sound good for me if they said that you were too young :( but I will keep trying. I'm sorry you went through that you must be really strong. Thank you for keeping me in your prayers x

Aug 13, 2015 2:28 PM

Flappyslady - sorry I got your comment mixed up with someone else's. I will definitely inquire for a second or third opinion if they get as far as talking about hysterectomy. Thanks again for commenting x

Aug 13, 2015 2:31 PM

Hi Weezie! That doesn't sound good for me if they told you you were too young but I will keep trying. You're amazing for getting through that! Thanks for commenting I appreciate it x

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