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Mysterious Hip Pain

Apr 21, 2016 10:59 PM

I am 20 years old and when I was 17 I was diagnosed with Benign Hypermobility Joint Syndrome (HMS) after having indescribable Hip/knee pain growing up that doctors dismissed for growing pains. My pain is much worse now than when I was younger, but I don't feel that HMS is the answer for me. I still believe something else is causing my pain, and if any of you could help me, that would be amazing. My hip pain is unlike any other pain I've had, and the best way I think I can describe it would be a tearing sensation, as I feel the constant need to crack the joint when in pain (which usually provides no release when I can). I experience excruciating pain everyday mostly in my left hip, but sometimes in my right hip and rarely in the back of my knees. I have had an MRI of my knees, of my hips, an MRA of my hips (which were apparently too fuzzy to read) as well as hundreds of x-rays. Chiropractic does not relieve my pain, I have also tried Bowen therapy and have even seen an osteopath in France. This pain severely impacts my day to day life and would love to be able to put a name to it even if there is no treatment.

Apr 22, 2016 8:35 AM

I have had hip pain in my left hip for a while, my doctor did an X-ray and showed me and I have osteoarthritis in my hip. The pain is so bad that it hurt's to walk and I am having to have the aide of a Cain to help me walk. Good luck in finding what is making you hurt so badly, I'll be praying for you!

Apr 22, 2016 8:56 AM

I've been having hip pain for the last few months now. I'm.not sure what is going on I've not had any scsms yet right now I'm just working to excerise it as much as possible. Hope you get some answers soon.

Apr 22, 2016 9:20 AM

hmsawareness, I'm just barely turning 20 tomorrow and I've also recently started to see are marked increase in hip pain. Likewise I have not gotten a diagnosis that explains my symptoms.

Hang in there! And I hope that you're able to figure out what's going on with your pain soon.

Apr 22, 2016 2:11 PM

Hmsawareness, I'm sorry you are still hurting and feel like something else is wrong. Follow your gut instinct and push for second opinions, or even thirds. After my fibro dx my docs, especially my PCP & rheumy doc didn't want to search any further. I finally got a referral to an endocrinologist who dx hypothyroidism. Not long after that I (developed a rash that wouldn't go away for 5 mos) was dx by an ent doc through an oral biopsy with Sjogrens. After being placed on Plaquenil for the sjogrens and meds for the thyroid I began to feel better. My pain dropped from a 7-8 to 3-4 daily average. I still get flares or have bad days, but not like before. Trust your instincts because you know your body best. I wish I could give you a suggestion but I don't know. I have OA & DJD/DDD with my joints, but no soft tissue issues that I know of.

I'm just finishing up my eighth week of physical therapy on my left hip & knee. I've been hurting since October. When I'd put weight on my leg the hip socket was causing shooting pain to my knee and down the back of the leg. About a week ago I started noticing it wasn't happening as often. The therapist had been working on strengthening all the thigh and low back muscles, with stretches and lifting type exercises (laying flat & raising foot up, laying on side and doing same, standing and doing same, gentle squats, etc). He said these muscles, tendons & ligaments, all help hold the ball joint in the hip socket, and if they're weak it allows abnormal movements which causes grating bone on bone; shooting pains.

Moparmom, has your doc suggested PT for your OA hip? With arthritis, movement keeps me more flexible. When I sit or stand or last too long in place, I get very stiff. Warm-up is as important as heating pads after; 5-10 min each.

Hugs & prayers you'll get answers soon_& a treatment possibility.🙂💕🙏🌼

Apr 22, 2016 6:31 PM

I get pain in my hips and lower back. Certain stretches help a lot, if I can actually focus on them, and not the pain. Between my yoga instructor, physical therapist, dad and roommate I have a bunch of suggested stretches.

Apr 22, 2016 8:22 PM

I have had really low back pain and hip pains since my teens, I am now 47. Anyway I have always had 1 hip higher which I noticed when wearing skirts. When I was mid 20s I was rear-ended which they said was low impact as she claimed she was going 25. I had to go through physical therapy and kept telling them i would get so much pressure in my lower back I would need to pop it (they only way I could was to lay down in a hot bath, pull my stomach in is hard as I could then release quickly). The pop would help for a little while then the pressure would start building again. By mid 30s my hip pain was so bad at work (secretaial) I got a special chair which helped take the pressure off. I have other spinal issues but found out my L5 is partially sacralized which is basically a birth defect. There is mixed information on this causing pain. As I had no injuries or accidents as a teen I am wondering if that is the cause. Just a thought.

Apr 24, 2016 12:56 AM

I have extreme pain in my right hip, both buttocks. The pain also radiates up my right side and is pretty intense. Makes my whole body hurt almost every day. My left leg is slightly longer than my right. The Rheumatologist said I have AS, an extra vertebrae (between L5 and S1), sacriliac joint dysfunction, and arthritis in both hips, among other things. I have to "pop" my hip sometimes to relieve the pressure. I don't feel I'm any closer to getting any pain relief, but hopefully this helps u with a place to start.

Apr 24, 2016 6:29 PM

I have EDS and hip pain daily too. I noticed since I got good orthotics it has helped a lot. Exercising every day on the elliptical or bike can be helpful but trying to get a good stretch when you are hypermobile is tough. The ligaments give away before you can stretch the muscle well so maybe massage will be helpful or accupuncture. Improving my posture through physical therapy was useful and reduced my pain a lot. Heat helps my pain on rough days wirh CBD based balms and tinctures. Hope you find relief soon.

Jun 17, 2016 9:52 PM

O had that for a while n it hurts. Complained to my rheumy so he had go for an mri n xrays. Then the results showed dat my joints in the hips area had dislocated caused by the high dose of steroids. Later had a hip compression which is a surgery where they actually tighten the bones of that area to stick them together. The surgery dnt take long n it wasnt painful as they paralysed my legs. Its been almst a year since n i was fine until recently the pain came bck again! Told my rheumy n h said i might get the surgery done again. He said h dnt want m to have a hip replacement coz am too young to get it done. It will have a big impact on me. Still waiting for the surgery...

Jun 17, 2016 10:10 PM

Today I saw the 8th orthopedist within a year. He said that he doesn't know why I have foot pain and referred me to rheumatology because I also have SI joint pain. But my rheum labs are negative. It's a good thing to have normal findings but it means that no one knows how to get me better. Sigh. It's a long process.

Jun 17, 2016 10:40 PM

I have bad hip pain too. Been using crutches lately. I have osteo in both hips and lower back complicated by lupus as well. Sorry you're in pain. Don't give up looking for answers.

Apr 02, 2018 7:34 PM

I have pretty bad hip pain too. I walk with a slight limp (depending on which side it's on) and they always hurt but not always so bad. My physical therapist says it has to do with muscle but it feels like the joint. And the pain is so random. It'll go away after I exercise or appear after.

Apr 03, 2018 5:46 PM

My mum has the same

Personally I think urs might be Eds

Apr 03, 2018 6:03 PM

Well, my joints are actually not flexible at all and my skin isn't overly elastic and it actually takes a lot to make me bruise, but thank you for helping

Apr 06, 2018 6:31 PM

It’s been scientifically proven that growing pains don’t exist

Apr 06, 2018 6:36 PM

Doingmybest my mum is not flexible at all she doesn’t have stretchy skin and it takes a lot for her to bruise,but she still has EDS. I’m probably wrong anyway so it don’t matter.

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