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Dec 01, 2015 6:38 PM

Hello all in the cyber world of pain and frustration.
Its been a while since i have been here. With moving house, combining two households life has been painful and hectic. With me over doing it (as usual!) and paying badly the next day.
I've just been prescribed Naltrexone for the pain associated with my fibromyalgia. The lyrica and Cymbalta didn't help at all. Been weened off my tamadol 150mg sr tablets. Which were the only thing that marginally worked.
Has anyone else taken this drug. From the info I've been given, it is generally given to people who are getting off heroin. This is certainly not the case with me. Lol! I'm getting the shakes after only two tablets at 3mg.
Any info any of you wonderful people on here have would be fantastic.πŸ˜•πŸŒΌ

Dec 01, 2015 7:37 PM

I take low dose Naltrexone on a regular basis. From what I've read (mostly stuff about CRPS) It helps your body make its own painkillers, but that often makes painkillers ineffective, but also in some cases unnecessary. What dose are you taking?

Dec 01, 2015 7:52 PM

I researched it and asked my Dr for it but my insurance doesn't cover it. I really wish I could afford to take it. According to the research I did you have to take it a few months for the full effect

Dec 01, 2015 8:00 PM

That is to reverse the effects of an opioid overdose. Why the hell would a Dr give you that? It doesn't help your body make its own painkillers and if they tell you that they are lying straight to your face. It is an opioid agonist. It is what they give to overdose patients. This is not methadone. You need to talk to your Dr and make sure that they didn't make a mistake.

Dec 01, 2015 8:00 PM

I had to get off kratom personally, and got a migraine because I switched meds faster than some people, and didn't wait weeks after dropping it. Migraines and insomnia, but was better after a few days. The effect is definitely gradual, but it's worth a shot, along with DMSO.

Dec 01, 2015 8:06 PM

This is not a normal med for pain. Maybe with the problems you and Jenna have because you are sensitized to the pain, I'm not sure how that works, but I do know that this is not a drug for fibro. And taking someone off pain medication and giving them this drug, is to me, being cruel. I can see why you are having shakes. They are throwing u into massive withdrawals instead of letting your body slowly readjust. This I know for a fact.

Dec 01, 2015 9:07 PM

Ouchithurts, we've missed you. I've never used it, but I'll pray it works well for you. I hope your moving is complete and you can rest now. πŸ™πŸŒΌ

Dec 01, 2015 9:58 PM

Thank you all for your advice I'm not really sure what to thnk now I'm a little confused. I'm on 3mg a day but can't take any other painkillers and wont know if it's working for around 5days the pharmacist tells me. This has been prescribed to me by a specialist in fibro. He's also at a loss as to why the others I've tried haven't worked. So it's a week of pain for me.!!! I'll have to ask my boyfriend for a few gentle massages I think 😊🌼

Dec 02, 2015 10:40 AM

You have fibro? Sorry I didn't know your dx, and also Cearea I've seen some studies, and they have been successful. A high dose is drug reversal. I am also speaking from experience, not just what I've been told. I think fibro does have increased sensitivity to pain.

If the other meds made you feel all better, stick to them. I'm just thinking trying something new could be helpful.

The reason they don't want other meds is because it can rush withdrawal symptoms, like when I started taking it. Here's my bias: it worked for me, and I don't take many prescription meds, having not had overall good experiences.

Yeah, side effects can suck, especially at first. It is usually recommended to stop opioids weeks before starting it to avoid fast withdrawal.

Dec 02, 2015 10:56 AM

Hey ouch, there are several online articles about the treatment of chronic pain and fibro with low dose naltrexone. I found a few specifically about the use of LDN while on Tramadol. Try plugging both terms in the search engine if you're interested. If you stay on the regime it sounds like you may want to take the two meds as far apart as possible from each other while you're weaning off the Tramadol. Good luck, hang in there.

Dec 02, 2015 2:48 PM

My rheumatologist prescribed low dose naltrexone for me awhile back. It helped a little bit, but the side effects were unbearable so I stopped taking. This us a drug that Dr's do use as treatment for fibromyalgia, rather it works or not depends on the person.

Dec 02, 2015 3:05 PM

Thank you all,
Marsemouse i am no longer taking tramadol and have woken this morning in the worst imaginable pain ever. I can hardly walk most mornings but today the pai is excruciating.
I can only attribute it to the chane in drug. 3more days apparently till I see any benefits if at all.

Dec 02, 2015 7:10 PM

Ouch I'm so sorry to hear you're in worse pain. How long has it been since you've taken the Tramadol? Do you think you're feeling some withdrawal symptoms along with the fibro pain? Hopefully you'll feel a little better day by day. If not maybe your doc can tweak the dose, or the two of you can decide on an alternate approach if this isn't the right treatment for you. Hoping tomorrow is smoother for you and you wake up less ouch.

Dec 02, 2015 7:15 PM

I've been weaning off the Tramadol for about a week now and have only had 3 tablets of the Naltrexone. They don't seem to have kicked in yet. I wish they would because I have to drive and collect kids from school etc and all is very ouch to say the least 🌼🌼

Dec 02, 2015 7:55 PM

They are doing CRPS infusion studies for it now. I am on the list and praying I get it not the placebo after giving up all drugs.

Dec 03, 2015 4:43 AM

Forgive me for asking, but I reckon they do things differently overseas! What is CRPS?

On a good note I've been told that I can take a half a tramadol tablet.
And a couple of Sailor Gerrys have eased the pain for tonight.!!

Dec 03, 2015 9:13 AM

CRPS stands for Complex Regional Pain Syndrome, which goes by many different names including RSD, RND, causalgia, etc. It's basically nerve sensitivity following some injury. Just someone walking past me too fast (not even touching) can cause pain, and one big symptom is allodynia...

Where are you? Even just a country, I'm in the US.

Dec 03, 2015 5:10 PM

Morning over here ferret. I'm in South Australia, Adelaide to be precise.
That doesn't sound very pleasant at all. I know with the fms that just having someone touch me too firmly on a bad day hurts like a knife. Which would be today!! Had a very rough night pain wise. Not doing a lot today.

Dec 03, 2015 11:18 PM

I'm not sure about over there but (Virginia U.S.) my doctor gave his patients the option to participate in genetic testing. The company was Proove. They couldn't figure out why my meds haven't worked either until this. They are able to determine which meds you will or will not metabolize; also low dose, normal dose, or high dose. Thankfully they accepted what my insurance paid and I didn't have to pay additional. This helped tremendously in my treatment. May be worth asking about.

Dec 03, 2015 11:36 PM

I've never heard of genetic testing regarding drug tolerance before. Thank you JSHAFF I will definitely be asking my dr next week.

Dec 03, 2015 11:38 PM

I pray it is available there and helps.

Dec 03, 2015 11:39 PM

Yep me too. I'm tired of feeling like a guinea pig for all these different drugs that don't work for me.!!

Dec 03, 2015 11:41 PM

www.Proove.com Is the company that did mine. If your doctor hasn't heard about it they may be able to contact them to see if they work there or another company.

Dec 03, 2015 11:42 PM

Wonderful thankyou very much. I will most definitely have a look right now.

Dec 03, 2015 11:46 PM

I've been a guinea pig for 15 years. Docs never understood why meds didn't work. Testing showed that only 1 med out of everything they had tried was metabolized! One in 15 years. They tried telling me it was in my head too. I took the results by (don't see that doc now) and told him it's not in my head.....read it and apologize.

Dec 03, 2015 11:53 PM

That's just horrible I feel for you going through 15 years of hell and I think I have it rough!! I've only been suffering for about 18mths and I've had enough already. How horrid for a doc to tell you its all in your head I would have told him hes a wanker and to shove his diagnosis where the sun dont shine!!
I'm hoping with our warmer weather coming that some of the pain dissipates a little. It seems to with heat and humidity, we have heat but its very dry in my part of Aus.

Dec 04, 2015 12:12 AM

I hope the change in weather does help you. I always feel better in the summer or by the wood stove as long as I have several pots of water on to put moisture in the air :-) It's cold here, but anything below 70 freezes me anymore.

I wanted to say a lot more but refrained. My 7-yr old daughter was with me. She always is as I homeschool her. It was too much to be able to drive to the bus every morning and evening and wait especially in the cold. There were other issues with the school too. I have found that she learns much more and I concentrate on her instead of pain. She's grown up more comfortable at doctors and hospitals than most adults though she doesn't mind. We took care of my father-in-law on hospice for 3 years too. I have found that if I'm helping someone else or responsible for taking care of someone else I do better because I have to focus (which is hard some days) on them instead of on my pain. Sorry, I get sidetracked very easy :-)

Dec 04, 2015 12:15 AM

Sidetracked is good sometimes 🌼😊

Dec 04, 2015 6:30 PM

I have CRPS and requested Naltrexone. It has helped take the edge off for me but not a full blown miracle

Dec 04, 2015 6:31 PM

I should add one of the benefits is in low doses it has almost zero side effects

Dec 04, 2015 9:05 PM

CRPSfighter how low is your dose? I'm on 3mg and not getting any benefit at all.

Dec 04, 2015 9:08 PM

I am on a spray. It is 4 sprays twice a day. I believe it is around 1mg a spray. I can lower it if I am feeling better. Or raise it if need be

Dec 05, 2015 5:37 PM

How long have you been on Naltrexone? If you don't mind me asking and how long before it actually kicked in?

Dec 05, 2015 5:42 PM

I started it in August. It was pretty immediate. I stopped it in October because I had a spinal stimulator trial. It has to be out of your system to take some pain killers. My pain kept increasing so a couple days ago I took it again and immediately my pain went from a 9 to a 6. It also helps my energy levels.

Dec 05, 2015 5:44 PM

Ok thanks. I will have to ask my doc next fri or see if something similar will work. As the tablets are not doing much.

Dec 05, 2015 5:45 PM

I like the spray because I can adjust to dosage as I need to. I needed around 6mg to see the true difference

Dec 05, 2015 5:48 PM

Yes a spray would be very helpful as a 3mg tablet every day is not helping much. I'm in constant pain. Just laying hurts let alone walking!

Dec 05, 2015 5:50 PM

Good luck! It wasn't a miracle for me but helps take the edge off for sure

Dec 05, 2015 5:51 PM

Thanks at this stage I'll try anything πŸ˜”

Dec 07, 2015 1:34 PM

JShaff, I'm just catching up on posts, as I was sick from Wednesday on. I had a genetic test for meds metabolism, and it came back that I don't absorb & break down B Vitamins, especially B9/Folate. And my body also doesn't properly metabolize benzodiazepine meds. Both are gene defects; one is MTHFR (Ferretbandit has it too), but I can't remember the other one right now. I find the genetic testing fascinating. I oppose you've been able to find something to help with your pain. I'm allergic to our have adverse reactions to many pain meds. I'm learning to tolerate and refocus my thoughts to deal with my pain. πŸ™πŸŒΌ

Jun 19, 2016 7:48 PM

Jshaff where in va are you? I'm in Lynchburg va

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