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2nd option from a different type of dr

Mar 08, 2016 11:05 PM

So I was diagnosed in 2014 with fibromyalgia by my pain management dr. But we think it stated way before that. I think I have had it since 2000 maybe longer. I asked my psychiatrist to support me in getting a second opinion. She gave me a list of rhemilogist in wichita. I went to my regular family dr and he set up the appointment. I have that appt March 22nd. I'm nervous. I have been having more pain and it is getting worse. My psychiatrist which she is really good at her job seems to think it's more than just fibromyalgia that it may have to with genetics. But this is not her area of expertise. So again as it gets closer I get nervous. I shouldn't be but I am. I want the dr to really confirm that I actually do have fibromyalgia or is it something else. I really don't know what questions to ask ?? Just wanted to say how I feel. I'm tried of living like this..

Mar 08, 2016 11:06 PM

Best of luck to you! I hope your appointment brings some insight.

Mar 08, 2016 11:32 PM

Most here can run off a huge list of diagnosis which include fibromyalgia. Which is where the issue lies does one or can one have just fibromyalgia?

Mar 09, 2016 2:19 AM

Hello Deb7, I do NOT have Fibromyalgia, but have Polymyalgia Rhuematica which results in severe chronic pain. PMR is one of several diagnosis I have been given without my permission. And I never thought I would have chronic anything but I do. This is a great place to get and give info as well as support and to vent when needed. I hope you find this to be a healing place. I have.

Mar 09, 2016 9:30 AM

Deb7, your apprehension is fear of the unknown. The worry that you'll go to the doctor and they won't be able to tell you what's wrong or may not be a doctor suited to your needs. You need to go in with a list of your symptoms, the meds you've been on so far, the tests you've had, etc.. Know it could take some time for you to be diagnosed as you may need to go to a rheumatologist and/or neurologist and have nerve conduction studies, CT Scans or a new MRI. These will give the doctor current views and a fresh look at what is going on in your body. Your pcp may want to do new blood draws to check your inflammation levels, etc.. Keep your chin up, go into the appointment with a positive attitude and be honest with the doctor. If he/she doesn't listen to you, find another doctor. I wish you all the best on your appointment. I hope they are able to figure out what is going on with you and give you some relief of your pain. {{{Hugs}}} 💕🙏🏻🌻😊

Mar 09, 2016 12:26 PM

Exactly right, Alwayz! The more info we can bring to a new doctor, the less they have to reinvent the wheel!
Some here have CRPS, which sounds like fibro - "I freaking hurt EVERYWHERE" XD. Except the pain isn't as amorphous, it is always everywhere and always bad.
Pain is kinda like cancer. Each cancer is different, and requires different treatments, and each chronic pain sufferer hurts in different ways, and different modalities help each person.
I pray the new doctor will be able to help quickly.

Mar 09, 2016 12:38 PM

My first appointment after suspecting fibro is tomorrow and I feel the same way. Everyone seems more worried about the diagnosis than I am myself. I am aware of how debilitated I've become over just the last few years, but I'm confident that none of my friends or family will let me just lay in bed and watch my life pass me by, as tempting as that sounds. I'm hoping that at least a diagnosis will be made so I can start trying things to change the way things are. It seems better than not knowing how to deal with the problem, allowing it to worsen, and losing hope for so much in my life. I hope that you get the treatment you need!

Mar 09, 2016 12:42 PM

In addition, I have a lot of health issues already, but after doing so much research, I believe fibro could be the cause of most of them. Oddly enough I developed asthma around the same time this pain began. Maybe fibro could be the cause of my constricted airways as well? It's all very new and strange to me, I hope to gain a lot more understanding about the effects of this tomorrow.

Mar 09, 2016 5:25 PM

Deb7, AlwayZ has given great info, especially about tracking about everything. I started with fibro symptoms in 2007-2008, but it wasn't diagnosed until 2010. I continued to worsen, with multiple symptoms & diagnoses. In 2015 I was dx with Sjogrens, and after starting the Plaquenil treatment my fibro pain & flares also reduced. Unfortunately the sjogrens is possibly moving into my joints of feet, hands, and hips; waiting on confirmation on that.

The best advice I can give you (& Queenofpixels) is to learn to pace yourself between activity & rest. And ask questions, no questions is dumb. Everyone on here has been so helpful. I've learned so much from others. Hugs!!!

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