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Neck Pain - help!

Sep 25, 2017 3:52 AM

I have some kind of inflammatory arthritis (not RA) and the worst place of pain is where my spine joins my skull. My physio floated me around the pool four weeks ago to loosen up my neck and since then I have been miserable. I have had altered vision, headaches, sore eyeballs, vertigo, dizziness, sore cheeks, weepy eyes, crunching/creaking neck bones, sore ears and blocked ears. No sinus or ear infection and I have daily antihistamines and nasal.spray.


My neck felt fabulous when I was on Plaquenil. Plaquenil took away the pain, my CRP went down and I had none of the above symptoms. I had to stop taking it though after 4 months because it made me insanely itchy.


Sep 25, 2017 5:19 AM

Hi. Sorry for your pain, I feel for you. I have fibromyalgia and my neck,shoulder and head is where I have my worse pain. I do yoga every day with much focus on stretching my neck and loosen up tight muscles I get trough the night. Rolling my shoulders and stretching my head towards my shoulder pulling my opposite hand towards the floor. I get worse swimming. I enjoy water, but now only standing on my feet, stretching neck and running and/or training in water. If I swim, my neck is ruined.
I avoid taking painkillers cause of my yoga and I really recommend it.
Best of luck to you!

Sep 25, 2017 10:31 PM

I was in a car wreck @ 23, I have had problems with my left side since. I lose use of my hands. Left side looses function and I have arthritis in my neck daily and the pain is horrible. I have no insurance, I lose the loss of my left side for days without it killing me. It feels like someone is digging their knee or knuckles into the chest wall. I have had crackling in my neck for over 25 years. I fell from a 4 story building from the 4th floor and have been in several car wrecks and used to Rodeo. We have finally determined since my last hospital stay in May. Finally after 10 years of them just hearing chest pain on the left side and treating it as heart-related, they are finally addressing the skeletal muscular issue. It affects my vision, headaches, neck pain, and so much more.
Maybe have them start looking at those kinds of things? Prayers.

Sep 25, 2017 11:17 PM

Hi Skeleons. I put my symptoms into Google and found out they are very similar to whiplash! Whiplash may be the reason your neck is still having problems. I haven't had any accidents though. Google also said Barre-Lieou syndrome but this is rare. I would really like an xray or something but the public health system sucks. I can't afford to pay for much myself. For.now I'll have to stick with painkillers and gentle exercise!

Sep 25, 2017 11:23 PM

I have been having migraines that begin in that area and the only thing that i have found that works after 10 years of searching is prednisone.

Oct 01, 2017 3:56 AM

Prednisone is fabulous. I felt so good on it. I would get up off the couch and it was so pain free and it would be like I was floating. Anon41414 - What is wrong with you neck?

Nov 16, 2017 9:07 AM

Part of my issue is Tietz Syndrome/disease. Finally getting into doctors to get further diagnosis. Thank you for all the info! I'll update as we find out more. There's an underlying issue causing this to flare up consistently and me to have issues with my hands. Prayers.

Nov 16, 2017 3:03 PM

UPDATE Well my CRP was 52 and 20mg of Prednisone took away my neck pain and headaches etc. Had and xray but haven't had results yet. My neck is getting inflammed. My CRP is the lowest in 2 year now at 5. Tapering off the prednisone now, so very worried that things will flare up again. My rheumatologist said methotrexate will be the next med for me if things don't improve.

Nov 16, 2017 4:45 PM

Methotrexate is a very strong medication, but it does help most people who try it. A family member was put on it for RA and Fibromyalgia. If you go on it you have take Folic Acid with it. Unfortunately, Methotrexate is a chemotherapy med that can lower blood counts, so blood tests are done every 6 weeks. Don't worry you won't lose your hair.

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