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Need help with the flare ups of fibromylagia I can't take the unbearable pain I am In

Jun 04, 2016 9:07 PM

I am taking lyrica,cymbalta,hydrocodone and do exercises, therapy and still with no avil of being painless ...what can I do just to be normal without pain.....help

Jun 04, 2016 10:13 PM

You don't have an old-fashioned NSAID in your regimen - but you must have tried before?

Jun 04, 2016 10:40 PM

Yes,I have they work but the doc says I can not take to much of them there bad for me ....

Jun 04, 2016 10:57 PM

They are bad for stomach and kidneys but there are some gentle ones I have taken bc I can't otherwise tolerate. Celebrex, Zipsor. I take Celebrex, Cymbalta, Tylenol, and am going to ask for trial of Topamax or Savella. Have tried many others and know it's a difficult process. Sorry to hear that you are hurting.

Jun 04, 2016 11:04 PM

I'm on most all of that too..o my my drs won't give me hydrocodone..I've asked for it many times they will only give me tramadol. Which is a joke. How did u get your Dr to give you hydrocodone

Jun 04, 2016 11:07 PM

Have you tried alternatives? Like a naturopath, acupuncture, massage, essential oils, heat, ice, supplements, epsom salt baths?

Jun 05, 2016 8:41 AM

Yes I have it dosent work. ....had a terrible night hurting especially my spinal cord ....they couldn't give me tram Adil it interacts with the medication and doesn't work ....that is why she prescribed hydrocodone....what is pain management what will it do for me...

Jun 05, 2016 9:13 AM

Nothing actually 'works' for fibro pain. You need to find several small things that temporarily help a tiny bit and keep doing them. For me diet change was a big thing. It takes time and experiments but I have found that eggs, sugar, asparagus, dairy, caffeine, any chemicals or preservatives of any kind make me worse. I have to keep moving or i get worse. My muscles cramp up and stay that way so for me massage and physio help to loosen my muscles a bit, it took me over a year of constantly going before not 'flaring' for a few days after an appointment but now i tolerate treatment quite well. The naturopath was actually the one to find some of my food issues and give me some of my life back, she also got me on supplements that are easier to digest and absorb which has also helped (and yes all my levels according to bloodwork are perfect). I think that by eating things that I didn't know that my body didn't like I damaged by digestive system so things don't absorb properly. Acupuncture is very new for me but she managed to finally get a tiny muscle to let go and gite me some relief from my shoulder pain.
I find Japanese mint oil is good for temporary relief of pain. I use it topically and it dulls it for a little while and gives my as needed medication a chance to work.
None of this stuff is a cure and works because it comes back but if i can maintain treatments and keep on top of it i can have some life, not pain free but not completely unfunctional.
Would you mind sharing what you have tried and how long you stuck with it? Everyone have different things that help, but there is always something that temporarily helps. And those things keep us sane.

Jun 05, 2016 9:26 AM

This is some help to me....I tried hot oils ,hot tub soaking ,massage,exercises and diets....the few days I have changed my exercises I was instructed to limit myself ...so I am doing the plank which I think it helps and walking the other thing that I do that seems to be helping me is aquatic therapy but remind yourself we don't live in water...

Jun 05, 2016 10:03 AM

No we don't live in water but any temporary decrease in pain is a victory so if you can keep it up.
Limiting your exercise is a very good idea, work up very slowly so that you don't overdo it and put yourself back a few steps. I walk on my elliptical and sometimes do yoga. I really need to do more stretching and actually start strength training because those will help too but for some stupid reason I haven't yet.
Try to keep going with the things that help a little and keep looking for other things that help a little. Then combine them all together and maybe it'll be a significant help.
But try not to do dumb things like I do. Standing all day yesterday trying to get a frame thing make so my portable ac will work in the crank windows has caused my hips and knees to be on fire today, and I'm not out of bed yet. But i know the cause so hopefully in the future i can avoid standing to long since this is the consequence.
Weather change will probably kick you ass (at least it does mine) so I keep a list of things that help and fun things to do to distract myself because when I feel like absolute hell my mind shuts off and I can't remember anything that helps at all. So I refer to the list and do several of the things on it both to distract myself and to try to bring the pain down. I find if I start on that list when it just starts to get worse than normal sometimes I can prevent it from getting really bad, sometimes nothing stops it and I just do the best I can in that moment and try to remind myself that there are ups and downs and it won't stay at this level forever.
I have a few lego sets that I build and take apart to distract me. I also have a coloring book that I photocopy pages out of and the boyfriend bought me better pencil crayons.
Also is it possible to modify thing in your home or how you do things in your home? I use a grippy thing to open twist tops and our kitchen has all drawers on the bottom so that we don't have to kneel down and reach into the back of a shelf. One lady (i dont remember if it was here or on a Facebook group I'm in) says she has a smaller laundry basket for each level of her home that she puts things into that have to go to a different level so that she can take things up in one load instead of several trips up and down the stairs. I have stools in my kitchen so that i can sit to chop veggies and do food prep. We don't have junk food in my house because when you feel like crap you eat like crap and then feel worse so if it isn't there the trip to the store to get it is too much work so you have to eat kind of healthy. Cooking too much and freezing leftovers is a good idea, then on really bad days you don't have to cook. We invested in a food saver system and I love it. Some people swear by crock pots or slow cookers, my boyfriend hates them so we don't use them. I always get a cart when i go shopping, even if it is for one or two little things, because then i have something to lean on if i get tired and I'll save my shoulders and back by not carrying whatever it is.
I try to make sure I eat every few hours so that I don't get a blood sugar crash and I'm not diabetic. But i will get very cranky and hurt a lot more if i don't eat regularly (this was found by accident and by my boyfriend so now if Im complaining about pain or being done and just wanting to go home he will ask when I last ate and get me some simple carbs and a protein and after eating I usually start to feel a bit better)
Lots of little things to help a little bit. Then life isn't so unbearable.
I wish you the best in finding what helps you a little bit and I hope that what helps is easily accessible and affordable.
Please keep us updated on things you find to help. Maybe it'll be something that will help someone else that they haven't thought of

Jun 05, 2016 10:10 AM

Thank 's you are very helpful with your insightschedule ....I have a lot of support and you are right it's a painful situation when you bend down or kneel down so I try to avoid it a's much as possible. ..I will. ....

Jun 05, 2016 10:25 AM

Hugs. And remember things take time so try not to get discouraged. I've been in pain for 17 years (im 29) and diagnosed with fibromyalgia 2 years ago. I changed jobs from an active retail job to one with a lot of sitting 7 years ago and that change in activity levels (and probably an increase in stress) caused the pain to get worse to the point where I was regularly puking from the pain. I'm only just finally getting back to mostly functional (pain wise, i was poisoned at the beginning of april by chemicals at the airport and that has caused chemical sensitivities to almost everything and I'm still struggling with that one a lot)

Jun 05, 2016 12:56 PM

When I was first diagnosed with fibro I tried all the mess. Most caused me more trouble then they helped. Then I found Marciano trigger point injections from my rheumatologist they were a godsend for a couple years. Now I take Ldn. Low dose naltrexone. And it also helps. But there is no escaping this pain permanently. Since once we find something that works. Eventually our bodies adapt and we need to look again

Jun 05, 2016 3:11 PM

Gotobef, the neurosurgeon that wants to operate on 5 disks and more, when I told that the only reason I could still walk in the gro store to gather our groceries was because of the cart, he laughed and made fun of all the women that do this. I almost lost it and just wailed right there. I Wanted so much to tell him what an ---hole he was. He is the best at what he does, otherwise...

Jun 05, 2016 3:28 PM

Pinklotus what you said is the exact reason that I will exhaust all other options and alternatives before taking the meds. And if I do end up on meds eventually I will not quit with the natural stuff. My boyfriend had started his RA adventure by seeing a naturopath and then his disease progressed and he quit everything the naturopath told him and went on pharmaceuticals. Then it progressed again and 2 new knees and a new hip later (he's 38 now) and he finally listened to me and went to see a different naturopath.
Now by using both natural and pharmaceutical methods he is feeling the best he has in years, in fact he was able to get off one of the many meds he takes.

Jun 05, 2016 3:33 PM

Silvrrry that is a total asshole statement from the neurosurgeon. The whole point of using 'shortcuts' and 'cheats' like that is so that we can not be so absolutely exhausted and in agony when the task is done.
Most days I wish people that make comments like that would suffer pain and fatigue like we do for a year and see how they cope. But they can't know there is an end to the pain, it has to look hopeless and everyday tasks they need to struggle hardcore with. They they wouldn't make fun of us.

Jun 05, 2016 6:15 PM

What a heartless, insensitive doctor. Life is not fair.

Jun 05, 2016 9:47 PM

Hi there. These days I am surprised when I find a fibromyalgic who is not on the Guaifenesen Protocol. Because there is something that helps fibro.

Read the book. What Your Doctor May Not Tell You about Fibromyalgia. It might be in your local library. That's where I found it. It was life changing. And my only regret in life is that I didn't find it 20 years ago.

I know it seems like finding this book and reading it is a huge mountain to climb but I guarantee it will be a life altering event for you.

Good luck.

Jun 06, 2016 1:35 PM

I am currently being treated with meyers cocktail infusions . To help with my adrenal dis function from trying to push through my fibro pain and limitations. Be careful fibro friends to listen to your body. Btw my tens unit helps a lot too

Jun 06, 2016 2:59 PM

How are the infusions going? How long is each session? That was suggested to me but i don't like needles at all and I'm pretty sure I'd panic and rip it out

Jun 06, 2016 4:05 PM

My pain clinic recommended the lowest does possible of fentanyl. It is the only thing that has touched the pain at all for me.

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