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Need someone to talk to... MY STORY..... (Reece)

Dec 28, 2014 5:28 PM

I've been in constant pain for about a year now, nothing happenend.. No one knows what caused it, I woke up one day with my hand swollen and bruised. I went to school (high school) hoping is would just go away suspecting it was a sprain or just sore from laying on it. I was in and out of the hospital (Inverness) and they finally casted me suspecting it was a brake but nothing showed on the xray. I only had the cast on for one week and when they took it off the bruises were gone but I had lost all movement in my hand. My right hand couldn't move for two months, I was in physio in march and slowly each month my fingers started to regain movement, I was back and forth to Antigonish, Sydney, Halifax, Inverness... My peditrition put me on Gabapentin. Only in august 2014 I was able to move all five fingers, I am still unable to move my hand. I have had 3 MRI's and only to find out I have more things wrong with me. I am in 9th grade and am learning to write again. I have had a hypersensitive area about an inch and a half on my wrist and if you touch it I feel a sharp stabbing pain in my hand, it feels like acid running through my veins meanwhile I also get feeling like somebody has poured gasoline down my arm and set a match to it, but my hand is ice cold. Sometimes I almost pass out due to this pain. I have daily struggles as simple as putting a jacket on. I try to talk to my friends and they're just scared away. Walking down the hallways being called a freak. I joined this site to meet people and learn about their pain. I know most people have it worse than me but I just need friends.

Dec 28, 2014 5:58 PM

Hi! I'm a 39 yr old mom and I understand what you are going through because I have had this pain since I was 14. Back then it was worse because there wasn't a diagnose for what I had and no one understood the degree of pain that I was having. Don't let this ruin your life, medicine has made its advance, go to a pain specialist, a Reumatologist and get all the tests to rule out any other disease. When I'm really swollen I take 4 ibuprofen and it helps. Also for the pain a good hot bath with Epsom salt helps a lot. Above all, keep positive, don't let this drag you down. Read, make research and don't let anyone out you down.

Dec 28, 2014 5:59 PM

I also have two service dogs, one is an emotional service dog and the other one helps me around the house when I need help in my mobility. :)

Dec 28, 2014 7:54 PM

Thanks for sharing Susie! I've been diagnosed with CRPS

Dec 28, 2014 7:57 PM

Becca, I was called a freak as well when I was still in school (25 years ago). I know what you're going through. Thankfully there were some other freaks at my school (for different reasons) and we all bonded because there is strength in numbers. And to this day I'm naturally drawn to the freaks as they tend to be more tolerant and understanding. You might be surprised how many people will want to be friends with you if you let them! And if you need someone to talk to, we're always here as well!

Dec 28, 2014 8:04 PM

Interesting, I've never looked at it that way. It's even worse with the teachers, I've been kicked out of school several times for being in pain and for being on medication, so many times my family has explained to them what I'm dealing with but they just get scared of this CRPS thing they know nothing about.

Dec 28, 2014 10:12 PM

May I ask what is CRPS? I'm new here. I have fibromyalgia and possibly RA(waiting for labs)

Dec 29, 2014 6:38 AM

They also call that chronic pain syndrome, don't they? I hear it is a very difficult thing to deal with. I have it but it is not as bad as when I first got it. If I am correct, and this may not be what you have. It is what I had. But it was similar if not. It has to do with the sympathetic nervous system. It doesn't no when to shut off. It thinks you are injured when you are not. I broke my ankle. Actually I took my foot off and they had to reattach it. After several surgeries, I had that condition. When I was healed, I would walk down the hall to the bathroom, and My foot would really swell up big. Then the scars from the surgery would turn black and blue. An hour or Two later, every thing would return to normal if I stayed still.

If you are having something similar to that, I am sorry. It is very difficult and painful. It sounds like you got it much worse with burning nerve pain. That must be hard to deal with. Kids at school can be very cruel but remind yourself how kind you are that you would not wish this on anyone else. If they only knew how you hurt, I don't think they would add to it. They are just not thinking because they don't have pain. Not the type you feel.

Keep your head up. It is hard to do. It has been hard for me to do lately. I have kids and when I saw how young you were to be going through this, I wanted to encourage you. I have been discouraged so I don't know if I did or not but I was trying😃😃. I hope you have a good day. Take care.

Dec 29, 2014 8:05 AM

Becca I'm here for you. The same thing happens to me daily and it can be unbearable. I've been in hospital 3 times and in the Emergency Department over 30. I pass out all the time.

You can email me: reecebrowne1@gmail.com

My kik and snapchat are: reecebrowne1

And my WhatsApp is 07999256726

Stay strong and never lose hope. I can talk to you in about 1.5-2 hrs

Dec 29, 2014 10:13 AM

Thanks everyone. This has definitely made an impact on how I think about my ingurie, I have Complex Regional Pain Syndrome (CRPS) it's so difficult to get rid of and they say I'll have 25% of it the rest of my life and if I'm lucky that 75% will go away, I'm down to the hospital 3 times a week for Physio and occupational therapy... Thanks again everyone.

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