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Need words of encouragement

May 03, 2016 12:43 PM

I'm hurting bad. Very bad. Please help me..I know nothing will help Dr won't call back even if she did I wouldn't have the money to go see her. Please ..I just need to something ..I'm breathing TV is in I tried excerising meds.. Nothing is comfortable. Mind is going to a dark place anyplace where where I don't hurt. Fighting back tears.. Please..I just need up.words..feels like my bidybis being ripped in half..ease help me
....

May 03, 2016 1:13 PM

You've been through so much stress lately it's no wonder your pain is off the scales! You need to lay in a dark room, listen to uplifting or relaxing, soothing music, and breathe slowly in & out. Pray. Let go & let God hold you. I'm praying for you and sending you gentle hugs!! 🙂💕🙏🌼

May 03, 2016 1:17 PM

I've been where you are and I feel your pain I truly have empathy for you. I know things seem at their worst right now but there are better days ahead I know that's hard to believe. I wish there was something I could do for you other than words. Today is one of those days for me also needing words of encouragement. I know you don't know me and I don't know you but you will be in my prayers. I have a saying I use I Will Never Surrender and I will never give up so please don't give up on yourself. There are people that do care about you. I know what it's like to feel alone and no one understands. I just want you to know I understand wish I could do more but hang in there. I'm sure you're a good person. You will find the right doctor with compassion they're out there but until then you can always come to this site and vent. I know what it's like the money part sucks I pray that everything will work out for you. God bless you I will pray that you find the help that you need I know pain can drive you out of your mind. Whenever you feel down and out let us know we all need someone.

May 03, 2016 1:20 PM

Newfibrogirl, I am sorry that you are having a bad day. I know when we are in a lot of pain, it takes away all are recourses to cope. Now is the time to think about the only thing you can think about to help you. It is going to be hard. But just try hard to think about the nice spring days that we have had. Were you able to get outside just a little bit and see the green trees. I love when the trees are so green. I think about how the world is made up mostly of trees and water. So mostly green and blue. I wonder if God has a favorite color or did he only do that for us? Whatever the reason, it truly is a gift. I love the spring flowers to. I had some daffodils in my front yard. They were a brilliant shade of yellow. I miss them already. It is sad sometimes to see them go so quick. But new ones quickly follow to keep us surprised. Now my yard is getting ready to give me my peonies that I planted several years ago. I love them. Maybe I can send you a picture of one when it gets ready.

I read an article that said their is a new therapy for pain patients. It is psychological, diet, and exercise. But the Psychiatrist part is about living in the present. I never thought about it. But us chronic pain patients really worry about how we will feel when the weather will change or tommorow. And it Sid it has a big impact on our pain. This has nothing to do with you by the way. I am just gabbing. But it was trying us to deal with now. So I was thinking as you deal with now, try not to worry about later. Just deal with it moment by moment. I am giving it a try. They say it helps.

I am having a thunderstorm out right now. They can be so peaceful. Do you ever download those sound file like thunderstorms, fireplace, or the ocean. I like them. They help me with biofeedback. Maybe you can try that. I think that can help you. I tell people to use music like that. Something that doesn't have words in it. So you can focus on parts of your body getting warm. A good many times, I can make everything but my head go numb. It can get pretty scary. I will feel paralyzed. But then I make a conscience effort to move and then I am alright.

I hope this helps. I just thought I would help by talking about peaceful and helpful things. I hope I didn't make you feel worse.

May 03, 2016 2:13 PM

I went through that program of listening the waves and oceans and all the other stuff. I did that in physical therapy personally found it more stressful. It works for some people but I found it worthless but if it works for you give it a try.

May 03, 2016 4:22 PM

Thank you guys..I appreciate all your advice. And the support. This. Is a really hard day I e been running a fever and just plain feeling awful. Med do t seem to be working like I need them to but I'm really trying to hold on. The brighter day seems so far away. It's so hard to think and do much of anything.

May 03, 2016 4:33 PM

Sweet newfibrogirl, I'm so sorry you're going through this pain and awfulness. When we get down emotionally and mentally it just makes the physical magnified, doesn't it? (((((((((((((very gentle hugs))))))))))))))

We used to go through an "exercise" in an acting class I took that relaxed me like nothing else. We'd lay very still and focus on breathing... just in and out, on the sensation of air filling our lungs and flowing back out again. Then we would start consciously relaxing - by feeling our toes and fingers, feet and hands getting heavier, and our legs and arms, hips, back, abdomen and so on. We would mentally let the heaviness flow us right into the floor ... and lastly relaxed the face -- forehead, eyebrows, around eyes, cheeks, lips and jaw... it took about half an hour but after we learned how to get all relaxed, we'd focus on breathing again and it was easier.

I don't imagine in the least that it could make pain go away -- it never really goes away -- but maybe it can give you something to focus really hard on -- even just making one part of your body relax as much as possible.

I hope you feel better before too long. So far, the worst of it seems to pass away eventually, but getting through it can be darned tough.

May 03, 2016 7:01 PM

Just rest & try to relax Newfibrogirl. Your body desperately needs it. Hugs & prayers this will pass soon!! 🙂💕🙏🌼

May 04, 2016 3:47 AM

Is like to build on what GrandmaD said-she's on the right track but as you think of your body components, with your eyes closed in your body laying still, slowly flex the muscles on the part your focusing on and slowly inhale; all the while tensing that body part until your lungs full; then, slowly exhale through pursed lips while you slowly relax that body part. Go the to the next body part (ex: toes, ankles, calf muscles, thigh, etc.). You concentrate as you exhale pushing stress out of your body. This exercise is called "Progressive Muscle Relaxation" and is very effective if practiced correctly. I usually am asleep by the time I reach my chest muscles! Also, concentrate on nothing but stress leaving the part of the body your focused on. By controlling your breath your cleansing your lungs from negative ions and strengthening your blood chemistry. Try it, I believe you'll be very happy as to outcome!
I KNOW this works and works WELL!
Best Wishes,
Robinsage

May 04, 2016 6:43 AM

New, I have been in your situation alot lately especially when I was taking care of my Aunt. All my focus was on on her that I neglected myself for far to long, and it's easy to do when taking care of someone until the pain is so unbearable that nothing is working. My prayer's are with you from one care taker to another. Love you new and remember you have to learn to take at least 15-20 mins a day to your self for listening to some relaxation music or catch up on a much deserved nap or a television show. If you need me please free to look me up on email at mvp197889@gmail.com

I'm more than happy to help you out with any tip on helping out with the care of your parents that would be easier on you. Prayer's for you my friend!

May 04, 2016 7:02 AM

I'm having the same feelings. Im over it. Im sick of being tired and hurting. The only thing that keeps me going is my family. I know thats not much as far as advice goes but find your one thing and know you weren't alone in your pain blur today.

May 04, 2016 11:24 AM

The hardest part on bad days is dealing with the anxiety that comes with being in pain. A lot of this advice is awesome! Do some experimentation on relaxation techniques that work for you. I know it is hard, but remember that there WILL be better days. Escape to a world that it doesn't hurt if you can. Read a book, or listen to an audio book and focus on breathing deeply and relaxing. That is just one idea. Listen to music that makes you feel powerful, or that you relate to, and scream it at the top of your lungs! Do some yoga. Watch an episode of your favorite show. Think about a future when you are not in pain, what you will do, how you will feel. Read encouraging poetry, or a holy book of choice. Take a bath with epson salts and aromatherapy of your choice. Anything that helps you escape this world for a little while will help the pain. I am sorry you are going through this <3 we are thinking of you

May 04, 2016 3:14 PM

Look i feel shitty as well .. tbh I'm having ADHD and Generalised anxiety disorder .. over ofc RA .. having finals too so u can imagine how depressed I'm

May 05, 2016 2:42 PM

There are such powerful words of encouragement and compassion here, I'll just say: I have been in so much pain and do deeply depressed for so long, that living didn't seem worth it -But- I did survive and we here all want you to stick around. Please fight for yourself. The mind can be a dangerous place, remember you are not alone. 🌈

May 05, 2016 2:52 PM

Thank you 7 autoimmune. Im. Try to fight it's hard as u know.but I'm still here.

May 06, 2016 7:41 PM

I use a breathing exercise called Just This. Breathe in and say Just. Breathe out and say This. It tricks the brain to focus on breathe, two simple words and away from pain. It takes 5mins or less. Give it a try you never know it might just take the edge off for 5 mins and that can be a blessing. After that see if you can have a few mins outside. A little sunshine, short walk to your letter box also tricks the brain into thinking everything is just dandy for a few mins 😀 watch something hilarious and smile! It reduces the stress hormones and helps the body relax. Thinking of you sweety. Rest up 👍

May 06, 2016 7:58 PM

Wow, DipBop, that sounds like such a fine Exercise to use. I was looking for some meditations to use while on my recumbent. It is perfect.
I sure hope you get some relief Newfibrogirl. Pain sucks

May 06, 2016 8:03 PM

No worries Silvrrry....I hope it helps. It's something I learned at the pain clinic I went to. I have quite a few simple meditations to try 👍

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