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Nerve pain getting worse

Oct 12, 2014 9:02 AM

I had a car accident in July 2014, resulting in a concussion, some bulging discs in my neck and a herniated disc along with a bulging one in my lower back. The various MRIs also showed some degenerative things like facet disease and disc desiccation. I don't remember hitting my left knee on anything but it is acting up as well with a Baker's cyst having formed. I'm having issues with blurry vision and dizziness too. Long story short, after three months of chiro, PT, part time work (ladt week was my first week back full time) and OTC NSAIDs, things aren't getting any better. Instead, the pain from the nerves that are impacted seems to be spreading and getting worse. My doctor did a nerve block on the occipital nerves two weeks ago. That helped for about a week. I'm increasingly having problems with numbness (left side of face and left foot) and it worries me. I do weekly shots of Enbrel for my Psoriasis and they should also help with inflammation, so I wonder would I be off better or worse without that medication. Sorry for the whining, I'm a bit of a basket case right now.

Oct 12, 2014 9:24 PM

don't ever apologize for being in pain... you are NOT whining. I have several degenerative diseases and have carried a pain level of 7-9 each and every day for the last 18 years. I've had 26 surgical procedures in that time and there isn't any more doctors can do but give me meds (opiates) to take the edge off. I'm praying that when the medical marijuana comes available in NY that it will help me. I worked for the first 10 years in an office job until the pain was so horrific I had to go on disability. good luck to you. I hope doctors find something to help you along.

Oct 13, 2014 3:33 PM

I'm sorry you're in so much pain, Kathy. I've read great things about medicinal marijuana and I sure hope it'll work for you. I believe it's on the November ballot in Florida where I live. It would be worth a try. I had a therapeutic massage this morning and it helped for a little while. Now the pain is coming back... on the upside, I had three hours of relative comfort.

Has anybody heard of a pill called Voltaren? I heard it was good and was thinking about asking my doctor to let me try it.

Oct 14, 2014 10:23 PM

I went through the nerve studies and nerve blocks, then the doctors put me on Norco and Neurontin for pain, to take a lot of my pain away I had a spinal cord stimulator put in and it works.... make sure you get the Boston Scientific stimulator, they are the best

Oct 15, 2014 12:57 AM

Sorry to hear about your nerve pain. I deal with sciatica because of damaged nerves and a bulged disc. Pain and numbness is a regular part of life. My feet have been numb for several years now, so I have accepted it.. You asked the question about taking medication or not. What I would say is you must find out what works for you. For some people its medication. For me I have dealt with a lot of side effects from pain and nerve medication, so on normal days i take an anti-inflammatory, use heat nightly with a routine of water exercise and the whirlpool/spa. I also use menthol patches as needed. When I have flare ups or cannot function (nerve pain 9-12), I usually go to the emergency room to get an injection of toradol and some type of pain medication if needed. I really do not like the pain medication, but sometimes I don't have a choice (like now). Usually I am back on my feet within a few days and am able to focus on my routine. Nevertheless what works for me may not work for you. I have learned to live with or manage a certain level of pain in my life.

Oct 15, 2014 4:39 AM

Voltaren is a gel. It works for me for short periods of time.

Oct 15, 2014 12:23 PM

I used to be on different meds for nerve pain and all had bad side effects on me and didn't help my pain. I have a Neurostimulator (replaced 4 times) and when it was functioning, it worked wonders. I am no longer a candidate for replacement because of all the scar tissue from the surgeries. mine was implanted at C-1 (at the base of my brain stem). Now the doctor said he wants me to do a trial of the pump in my lumbar spine.i don't know what to do because my last surgery resulted in a horrible infection and a fever of 104.3. I had a gaping hole in my side for 8 months that ate down to my pelvic bone so I'm sure you understand why I'm concerned. I hope you all get some relief and much needed healing rest.

Oct 16, 2014 7:40 PM

Oh wow, Kathy! That is crazy scary! I hope you'll find some relief! I'm still hopeful that my issues are just caused by fixable disc issues!!!

Oct 21, 2014 8:15 PM

Today took the cake in terms of pain. Had a demanding day at work and now at 8pm I'm in bed in a world of hurt. I don't use upper range pain levels loosely, but tonight I'd say it's easily a 9. Ugh!!! I hope I'll be able to sleep some of it off...

Oct 22, 2014 1:02 AM

I hope you can get some rest. I'm sorry tonight is bad-:(

Oct 22, 2014 7:22 AM

Thank you so much! I took a Percocet 7.5/325 which helped me sleep reasonably well, so this morning the everpresent pain is tolerable again. I'm so greatfull for this forum and the support it provides when we hit a low.

Oct 22, 2014 9:44 AM

I'm glad its tolerable this morning. I know the feeling, I was up till 2 or so and I also took a percocet, 10\325 and slept till 8.
This forum is so wonderful, as families, friends don't understand how we really feel.

Oct 22, 2014 7:09 PM

Family and friends do not get it! They all keep saying your just a different person. Well yes when you live in pain all the time, you have brain fog, and no short term memory. Let's not forget the depression and nerve pain. Yes I am different. My boyfriend of 7 and 1/2 years just decided We should separate, he says it's not because of my illness or weight gain but please I'm not stupid! It hurts so much.

Oct 22, 2014 8:10 PM

I am so sorry to hear that, C! He clearly doesn't deserve a caring, passionate lady like you! I know exactly what you mean regarding depression. I have three bad days behind me of just wanting to cry and curl up in bed. We're here for you if you want to talk.

Oct 22, 2014 9:36 PM

I want to curl up and cry now........I was such a go getter. and now I feel like a whiny Debbie Downer. Damn it though it hurts. Mentally and physically...

Oct 23, 2014 1:48 AM

I had a TIA in 2010 which left me with debilitating leg pain, at times causing me to be unable to get out of bed. I had the Medtronics Neuro-Stimulator implanted it left has got better. There still us some pain getting through, but I can live my normal life now.

Oct 23, 2014 8:17 AM

Like most of us on this site, I too suffer from chronic pain and all kinds of side effects from the medications and pain, such as brain fog, groggy and lethargic feeling all the time, headaches, etc. My libido is weakened and so are most of my muscles in my body. I spend most of my days now just laying down so my muscle mass has dropped tremendously and my clothes just hang on me now.

Depression is now setting in and I am battling thoughts of why would I want to live this way for years. I know I won't live to a ripe old age but I just can't bare the idea of living in this much pain and being a couch potato for decades.

I have now permanently lost my job of 25 years and the insurance company is now sending those threatening letters like, we may find you a job and if you refuse to take the one we offer you then you are cut off. How the hell do I go to work when most mornings I can barely walk and make it to the couch. I am in agony for most of the time, I am in brain fog all the time and my motor skills are impaired from medications, weakness and agonizing pain.

My income has been cut in half with what the insurance company pays vs what I made as a Director of a large department and for the first time in 15 years I now have money issues with two kids in university. With my income cut in half it now means dipping into my retirement savings to pay for the kids university. at $150,000 for each kid, it will wipe out all our savings and then some.

I know its only a matter of time before my younger wife decides to leave me, I can tell, all the signs are there. She would have left me a while ago if it were not for the fact that she went through some challenging health issues recently and has now recovered. But now that she's better she is frustrated with the fact that I can't go anywhere and we will no longer be able to socialize or travel anywhere.

I have tried so many things to fight the debilitating pain and now yesterday the doctor at the Pain Management Clinic told me, there are no options left except to heavily medicate to try and make my days as comfortable as possible. So I lay here in a fog watch tv show after tv show. I can't read anymore because of the medications and I can't even hold up a book with my arms anymore as it causes extreme pain. Even typing this entry causes me excruciating pain. UGGGGGGGG

Oct 23, 2014 2:25 PM

Sorry to hear it's that bad.

Oct 23, 2014 8:21 PM

Oh CA, that's an aweful feeling. I hope you're wrong about your wife!

Oct 24, 2014 4:09 AM

CA Campbell, I know life is very difficult right now and you do not see any end in sight but do not give up. Despite all the pain in your life your family needs you and you are a fighter. Every thing you have accomplished comes from the fighter in you and although you feel like giving up with this battle, don't. As a director you learned tools to apply to this situation, pull those tool out and apply it to your life. You are an overcomer in-spite of how you feel. This is a difficult battle and I will not lie to you and tell you it's going to be easy, being in pain daily is a difficult task, but you can learn to press past the pain. Once you are able to get back in fighter mode, you will realize your job lost may be an opportunity for you to start you own business.

Oct 24, 2014 7:13 AM

Well said, lterry! I can only second that! I'm finding in my own job that I'm empowering my team more, I teach, nurture and praise more and focus more on strategic things and leave almost all tactical tasks to my team. The team really thrives on it and the bosses are adjusting to the new situation as well 😄.

Oct 24, 2014 1:26 PM

Campell, I'm sorry not sure if you read mine but my boyfriend of 71/2 years just decided he can't do it anymore he's done. my children considered him dad. forget in sickness and health!

Oct 24, 2014 7:36 PM

Well, looks like I've arrived at the Gabapentin fork in the road as well. My doctor first suggested Topomax, but I had some serious side effects when I was on that for migranes years ago. So, he prescribed Neurontin instead. I'll start tomorrow to get a feel for it over the weekend. I sure hope that I won't have the side effects some of you mentionned!

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